Thanks! I agree that my vitamin levels should be retested anyway. So far there isn't a more specific reason for the high CRP.

Unfortunately today's appointment with the neuro was frustrating and not helpful. Basically he thinks it's all in my head and didn't order any tests. Ugh. When he did the strength tests he only used one finger. He thinks that since I can walk at all that it's not neurological. I have an appointment with a different neuro but it's not until 8/4. I hope it's worth the wait and I can get some answers.

Just a thought, have you ever considered going out of the conventional medicine box doctor thinking. I left that world probably in late '99 or so. I started with integrative MD's and can't imagine going back. The IM doc I see now is a woman and I'm with her about 8 yrs or so. acam.org (I think that's the link) for integrative docs in the U.S. I'm sure it's not a total listing.

Hello Jess, I was really hoping your doctor’s visit would go well for you. I don’t know what’s the matter with neurologists. So many of them are arrogant and think they’re god’s gift to the human race. If they can’t make an accurate diagnosis, then of course the cause must be psychological! Did he even mention your high CRP level? That’s certainly not all in your head.

If you don’t mind a few suggestions, I think it is quite important for you to have your MRIs and blood tests for B12 and D redone as soon as possible. I don’t think you need to wait until 8/4 to have these done. Since you have already had the imaging and tests done before, your GP should be able to order these for you right away. My PCP was able to order these very quickly for me after I encountered problems with my neurologist.

Your B12 levels are quite important, because a B12 deficiency can cause demyelination and many of the neurological symptoms that are typical of MS. If you are deficient, you want to start supplementation as soon as possible. If you wait too long, some of the associated neurological problems can become permanent. To be safe you may also want to supplement with B12 (methylcobalamin) even if your test results are on the low side of normal. There is a sticky B12 thread on the PN forum which has many pages of helpful information.

Thanks, I hadn't heard of integrative medicine.

Yeah I don't know what his problem is. He didn't like that I didn't fit in his neat little neurology box. He didn't mention my high CRP level but did mention my TPO but no one has ever pursued that. When I can barely walk, it's not in my head!

I think I forgot to mention here that I also have inappropriate sinus tachycardia (which I told him). They were never able to find a cause (so I take meds for it) and I wonder if there is a neurological connection there.

Whoops, I only got part of my thought out. I'm going to go back to my rheumatologist in the meantime and have her run more tests.