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Wise Elder
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Okay, Judy, let's see.
For me it started at 19, possibly earlier, but that's our mark. I had a six-week hospitalization due to dehydration from intense vertigo and the fact that I had somehow become depressed and mentally ill overnight. ![]() Life went on well until 28 when my right pinky tip went numb. By 30 it had spread to more of my hand, but life continued. By 32 I was diagnosed and in a major exacerbation that lasted 22 months and basically ended my career. At 35 I got my manual wheelchair for long distances. At 39 it was the scooter because I could no longer propel the chair. Last fall, at 43, my neuro said she thinks we're looking at SPMS and it's time to be fitted and prequalified for a power chair. I didn't go because my mind isn't ready for a power chair. I'm 44, almost 45 now and have a fleet of wheels, 2 scooters, 2 rollators, the manual, and lots of rolling desk chairs. I had been on Beta for almost 4 years but couldn't handle the mental side effects so interferons were nixed. Then Copaxone which I just quit July 1 because I am convinced that it has done nothing in these last 5 years as I have been in a steady progression the entire time. My neuro is now exploring the chemos, LDN, and Tysabri for me and we will make a new plan in October. Right now, I just need a break from all this. I still drive (thankfully, it's my left leg that's dead weight), and I do almost everything I want, just differently and a lot more slowly. Hope I got everything!
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—Cindy For every day I choose to play, I set aside a day to pay. —AMN "Sometimes plastic wrap just won't cling, no matter how much money you put in the meter." —From the Book of True Wizdom |
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