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Old 12-13-2007, 06:53 PM #1
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Sorry, Joyce. It's darn hard to keep a positive attitude when things are not going well. Who as the jerk who said we had to..

I hope things get better soon for you.

Sending Healing Thoughts.

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Some of my problems have gotten a little worse. I can't walk as far as I did. The pain starts and I loose control of which way I want the leg to go. I have been having more vision problems.


The problem that has me really worried is my memory. That seems to be getting worse. I don't know if it is because the anxiety has gotten worse or God forbid it can be something else that I don't even want to think about.

The pain in my muscles are getting worse. The medicine does not help like it used to. I know I am still better than some people. At least I still can take care of myself.

Got to think positive. That is the what keeps me going. But I am sure you know there are times things are so bad that all the negative thoughts come around and really get you down.

Joyce
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Old 12-14-2007, 12:32 PM #2
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OK Sally, you asked for it!

After getting over the shock of my HSP diagnosis and no longer having an MS diagnosis, things have been a challenge.

Currently I use Canadian crutches to get around outside the home. Legs, hips, lower back, and arms are noticably weaker. I can't stand as long as I used to even with the crutches. Any long walks are accomplished with a store motorized cart or wheelchair on boardwalks and malls.

Many sensory symptoms very similar to MS severe cases. Cognitive is always a challenge everyday. I just go with the flow and take the symptoms as they come.

Again, thank you for letting me be a part of this forum. It is such a big help.
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Dx'd 12/00 w/RRMS
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Rare deteriorating motor neuron disease. No cure. No Treatments.
Only 20,000 Dx'd patients in US
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Old 12-14-2007, 01:04 PM #3
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Quote:
Originally Posted by HSPCraig View Post
OK Sally, you asked for it!

After getting over the shock of my HSP diagnosis and no longer having an MS diagnosis, things have been a challenge.

Currently I use Canadian crutches to get around outside the home. Legs, hips, lower back, and arms are noticably weaker. I can't stand as long as I used to even with the crutches. Any long walks are accomplished with a store motorized cart or wheelchair on boardwalks and malls.

Many sensory symptoms very similar to MS severe cases. Cognitive is always a challenge everyday. I just go with the flow and take the symptoms as they come.

Again, thank you for letting me be a part of this forum. It is such a big help.
I'm so sorry things have been tough on you lately, Santa. Going with the flow can sometimes be a "Bumpy Ride".

I hope your feeling better and stronger soon..
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Old 12-14-2007, 01:43 PM #4
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Oh, man, you all, why do things seem so extra-rough this time of year? I hope everyone can hold on and get past this holiday madness so that we can resume our own versions of normal.

My kingdom for a body transplant!
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Old 12-14-2007, 05:44 PM #5
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Isn't that the truth Cindy!

Sounds like we are all in a sad state of affairs right now. I just want this bloody sinus infection to go away...geez, I've been reading Chris' posts! Can ya tell! LOL!

Where's Our Little Princess?
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Old 12-14-2007, 08:10 PM #6
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Quote:
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Isn't that the truth Cindy!

Sounds like we are all in a sad state of affairs right now. I just want this bloody sinus infection to go away...geez, I've been reading Chris' posts! Can ya tell! LOL!

Where's Our Little Princess?
Ahem. Excuse me, madam, we do not have any royalty among us. Our little peasant is sick today. She is really feeling the weather and she has a belly ache. Poor kid, she's been pushing it too hard lately and it's catching up with her.
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Old 12-14-2007, 08:36 PM #7
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Hi everyone:

We are all in the same boat and at this time of the year it seems we are sinking faster.

I don't know if it is because of all the stress and pressure we are under at this time of the year that all our symptoms get worse. We want everything to be perfect and happy.
Today I went and did some shopping. Myvision went blurred while I was out. Couldn't read things clearly. When I got home my body fell to piceces. My legs, back, and arms were hurting so bad and tingling I just to wanted cry.

I am supposed to go on a bus trip this Wed. to New York to see a Christmas Show. I am so scared that I won't be able to go.

Just praying all of us have a Merry Christmas and the enjoyment and love of family and friends.
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