Last year, just before I was diagnosed (right about this time) my feet were cold and tingly

and then they got cold and tingly and burning pain

and then after that, they got cold and tingly, and burning pain, and a weird boot-full-of-thumbtacks feeling.

I think we're starting to get to the cold and tingly andburning pain stage. It's not quite to burning, but the tingle feeling is a warm sensation (accompanied with the cold feeling) and this time they're a wee bit numb. (the burning sensation is on the back of my calf right now)

I hope this isnt a yearly occurrance.

And both of my eyes are being annoying with some weird leftover from the Optic Neuritis.

I wonder if my neuro would be willing to toss me an IV bag of solumedrol? Probably not...when my eye doctor wanted me to do a couple of bags, the neuro said nope because I was having problems with an infection and he didnt want the steroids to mess with the infection some how (not sure why)

The eye doctor wanted me to do the steroids because I had developed a new case of ON (my second one, opposite eye from the first case of ON) I wasnt having any obstruction of my vision, but my eye felt really weird. The eye doctor thought that if I'd had an MRI at the time, that the optic nerve would probably be flashing a big neon sign saying "obvious optic neuritis here!!!"

That was just a couple of months ago.

Oh well, I've done the oral prednisone and that was really not all that fun...too many funky side effects.

Sorry to hear you are having the nasty stuff rearing it's ugly head! Are you still dealing with infection now? If not, I'd call the neuro again!

I personally hate doing steroids, just hate the way I feel on them, but I think if I was starting a flare at this time of year I would do them just because I hate winter more than I hate steroids! Winter always seems to make flareups worse for me!

Good Luck and let us know how it goes!

Hope you perk up soon, Erin. Nothing like feeling crappy over the holidays!

Oral pred has some pretty nasty side effects! Blech!

Sorry to hear that you're feeling poopie, Erin. Isn't timing just toooooooo funny with this *&^&*%^&%^##%$^*%* disease??

Hang on to your sense of humor, kiddo, it's the only thing that keeps reality at bay.

Well, now this afternoon, it's a warm tingly feeling, not totally unpleasant and it's only in the right foot. I had one heck of a charley horse this morning (ahhh...spasticity, how it sucks!) in my right calf.

Walking into the bathroom this morning was very...painful. Especially when the charley horse decided it was not finished annoying me when I sat down.

I do wonder if I should call the neuro...but it seems like the weird numbness changes about once every week or two. Maybe I've got a nerve flickering on and off somewhere?

I dont think I have any infections going on. For the first time in months I dont feel like I've got any weird little bacterias brewing in various parts of my body. (that's a neat feeling, not having any weird infections in a certain area of my anatomy for once)

Hi Erin,

Your situation is precisely why I take my disease one day at a time and am never surprised by the symptoms that just show up out of nowhere.

I don't like the symptoms, can't do anything about them really, so why fight it and just go with the flow? Some MS symptoms do seem to appear at different times of the year. Funny isn't it?

Sorry you're feeling yucky and all. Try and take it easy and stay away for IVIG is you do have an infection as the Solumedrol lowers your immune system and can cause an infection to go crazy since you can't fight it.