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Old 01-28-2008, 11:03 AM #71
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Quote:
Originally Posted by Joyce View Post
I am happy to say that my vision is better this morning. Hope that it stays
that way. The fatigue is also better.

It's a good start for this day. Now that I feel a little stronger I am going
to take Sage for a walk later. Hope no more falls. She walks good on a lead.
That's the advantage of having a daughter that is a Dog Trainer.

Hoping the rest of the day goes well.

Joyce

I'm so glad to hear it! Hope the rest of your day goes well.
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Old 01-28-2008, 11:33 AM #72
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me, I'm hobbling like an old crone today...

woke up at 3 am, all achy-breaky.

but hey... (channeling ol' Scarlett) "Tommorow's another day!"

gonna finally put in a call to my doc for some meds, this sinus thing's kickin' mah butt.
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Old 01-28-2008, 01:45 PM #73
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Hi mommywms Feeling any better today?

So sorry Finlady.. I hope things improve for you as the day goes on....Feel better..

Well, CayoKay, I am an old crone, but don't feel like one today. No, not another sinus infection among us. This must be the year or them...Ugh.

I hope you feel better tomorrow, Scarlett.
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Old 01-28-2008, 02:00 PM #74
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Kinda new to this forum but I guess this is one place I belong. I've also got MS, first attack when I was 16 yrs old. 15 yrs ago everything took a downhill slide . Today I'm feeling extra fatigued because of the holidays and two birthdays after that. I am so anxious to just settle down and try to regain a bit of energy. I've never taken any of the shots like Rebif, Copaxone, etc. I have such bad allergies that the shots would have worsened me, but I was actually glad I couldn't take them after seeing other patients taking them and going downhill just the same. I'm mostly in a wheelchair nowadays, but can still shuffle around in the house most days. I have a SD that used to help with balance issues and such. Now he mostly takes stuff out of the dryer and picks up anything I drop since bending is impossible.
I have meds for the muscle spasms which also helps with the seizures and I'm on morphine when the pain gets out of control. Other than that I only take something for my stomach since it bleeds easily since I've had hepatits 4 times now. All in all I hope I stay this well for yrs.
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Old 01-28-2008, 05:15 PM #75
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Hey Medic lady!

For this thread:
I am not one who likes to complain at all. I had an attack from you know where last year. I did not know the month of Jan or most of Feb. I have been in an upclimb battle for health ever since. I am doing so wonderful compared to a year ago, that I don't like to complain at all. how can I complain when I year ago I was bed bound? I am self sufficient now....a little slow....buy heh!

Visibly, people know I have mobility and balance issues, I use a cane. Visibly, people can tell when I've overdone my limits - I look really tired.

Hidden symptoms are the weirdest. you know I don't want to tell everyone everytime I see them...you know my face is still numb on the left side (when I'm really fatigued, it is more numb!) I don't like telling people that my right arm is still freezing. I don't like telling people that I still get nystagamus or vertigo or whatever it is when I lay down! In fact I'm afraid my doctor isn't aware of the numbness thing! I better make sure I tell him!!!

I was talking to another MS friend today (a woman at my kid's school!) And we were talking to another student and my child and you know we both agreed when the other child said I'm so sorry, that it is fine. It is what it is and we both have chosen to live and accept it. The days that are bad, make the good days so wonderful!

I'd rather find the good in MS....that's just me.

BUT on the same token SOMEONE needs to know what is going on! (In my case, preferably someone with MS!) Therefore this is a wonderful thread.

That's why I really like having MS friends. We totally understand if the other says. "I can't" today - we don't have to explain. It is what it is...."not today".....
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Old 01-28-2008, 06:40 PM #76
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Quote:
Originally Posted by the Bird View Post
Hey Medic lady!

For this thread:
I am not one who likes to complain at all. I had an attack from you know where last year. I did not know the month of Jan or most of Feb. I have been in an upclimb battle for health ever since. I am doing so wonderful compared to a year ago, that I don't like to complain at all. how can I complain when I year ago I was bed bound? I am self sufficient now....a little slow....buy heh!

Visibly, people know I have mobility and balance issues, I use a cane. Visibly, people can tell when I've overdone my limits - I look really tired.

Hidden symptoms are the weirdest. you know I don't want to tell everyone everytime I see them...you know my face is still numb on the left side (when I'm really fatigued, it is more numb!) I don't like telling people that my right arm is still freezing. I don't like telling people that I still get nystagamus or vertigo or whatever it is when I lay down! In fact I'm afraid my doctor isn't aware of the numbness thing! I better make sure I tell him!!!

I was talking to another MS friend today (a woman at my kid's school!) And we were talking to another student and my child and you know we both agreed when the other child said I'm so sorry, that it is fine. It is what it is and we both have chosen to live and accept it. The days that are bad, make the good days so wonderful!

I'd rather find the good in MS....that's just me.

BUT on the same token SOMEONE needs to know what is going on! (In my case, preferably someone with MS!) Therefore this is a wonderful thread.

That's why I really like having MS friends. We totally understand if the other says. "I can't" today - we don't have to explain. It is what it is...."not today".....


How true! People go by the way you look. I hate it when someone says to me you look so good "How Can You Be As Sick As You Say"

Then there are the days that you can't walk very good and
not to far, so you park the car in the Handicapp spot and get the looks to kill.
When I use the cane its a little different, also with the walker, but thank God
I might not feel good but I can make it without any assistance thats when you are considered the monster taking up a parking spot.

This thread is the best thing that has happened to me also.
You can talk, vent, scream, whatever you want to say and you are understood.

Jappy
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Old 01-28-2008, 09:34 PM #77
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Quote:
Originally Posted by the Bird View Post

BUT on the same token SOMEONE needs to know what is going on!
Lest you get your hand slapped a little by the neuro. LOL.

This is easier said than done. Something I really, really need to work at.

DDs and DBF sometimes know, at least with the visible symptoms as well as some of the cognitive symptoms. Glad they have a sense of humor, well, for the most part. LOL. I thought DDs were going to tear their hair out this weekend as I was trying to make things clear. Apparently, I wasn't making sense at all. Frustrated, I sent them to Target to hang out while I took a nap and finished some laundry. LOL. DBF was cracking up. He knew what I meant, it just wasn't coming out right.
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Old 01-29-2008, 07:30 AM #78
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So far I'm feeling better than yesterday. Probably due to sleeping for almost 12 hours last night.

Thank you so much for this thread letting us vent a little. It is so needed sometimes.
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Old 01-29-2008, 12:20 PM #79
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Well for me - it's a Rebif hangover day! And I am only on my 4th dose!! But I'm gonna keep on keepin on - hoping for better!! Scarlett's my hero!

Thanks for listening! You are right - it feels better just to say it!!

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Old 01-29-2008, 01:27 PM #80
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Hi Everybody!

I just got back from vacation Sunday night, and had a fabulous week nearly free of symptoms. Something about being treated like royalty while at the Caribbean shore laying in the shade... it can cure lots of ills, at least temporarily. Now I'm back to reality in chilly N. Illinois, sitting in the office and hitting the bricks. Fatigue is setting in but my sunny mood is going to hold me until springtime.
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