Kinda new to this forum but I guess this is one place I belong. I've also got MS, first attack when I was 16 yrs old. 15 yrs ago everything took a downhill slide . Today I'm feeling extra fatigued because of the holidays and two birthdays after that. I am so anxious to just settle down and try to regain a bit of energy. I've never taken any of the shots like Rebif, Copaxone, etc. I have such bad allergies that the shots would have worsened me, but I was actually glad I couldn't take them after seeing other patients taking them and going downhill just the same. I'm mostly in a wheelchair nowadays, but can still shuffle around in the house most days. I have a SD that used to help with balance issues and such. Now he mostly takes stuff out of the dryer and picks up anything I drop since bending is impossible.
I have meds for the muscle spasms which also helps with the seizures and I'm on morphine when the pain gets out of control. Other than that I only take something for my stomach since it bleeds easily since I've had hepatits 4 times now. All in all I hope I stay this well for yrs.

Hey Medic lady!

For this thread:
I am not one who likes to complain at all. I had an attack from you know where last year. I did not know the month of Jan or most of Feb. I have been in an upclimb battle for health ever since. I am doing so wonderful compared to a year ago, that I don't like to complain at all. how can I complain when I year ago I was bed bound? I am self sufficient now....a little slow....buy heh!

Visibly, people know I have mobility and balance issues, I use a cane. Visibly, people can tell when I've overdone my limits - I look really tired.

Hidden symptoms are the weirdest. you know I don't want to tell everyone everytime I see them...you know my face is still numb on the left side (when I'm really fatigued, it is more numb!) I don't like telling people that my right arm is still freezing. I don't like telling people that I still get nystagamus or vertigo or whatever it is when I lay down! In fact I'm afraid my doctor isn't aware of the numbness thing! I better make sure I tell him!!!

I was talking to another MS friend today (a woman at my kid's school!) And we were talking to another student and my child and you know we both agreed when the other child said I'm so sorry, that it is fine. It is what it is and we both have chosen to live and accept it. The days that are bad, make the good days so wonderful!

I'd rather find the good in MS....that's just me.

BUT on the same token SOMEONE needs to know what is going on! (In my case, preferably someone with MS!) Therefore this is a wonderful thread.

That's why I really like having MS friends. We totally understand if the other says. "I can't" today - we don't have to explain. It is what it is...."not today".....

How true! People go by the way you look. I hate it when someone says to me you look so good "How Can You Be As Sick As You Say"

Then there are the days that you can't walk very good and
not to far, so you park the car in the Handicapp spot and get the looks to kill.
When I use the cane its a little different, also with the walker, but thank God
I might not feel good but I can make it without any assistance thats when you are considered the monster taking up a parking spot.

This thread is the best thing that has happened to me also.
You can talk, vent, scream, whatever you want to say and you are understood.

Jappy

Lest you get your hand slapped a little by the neuro. LOL.

This is easier said than done. Something I really, really need to work at.

DDs and DBF sometimes know, at least with the visible symptoms as well as some of the cognitive symptoms. Glad they have a sense of humor, well, for the most part. LOL. I thought DDs were going to tear their hair out this weekend as I was trying to make things clear. Apparently, I wasn't making sense at all. Frustrated, I sent them to Target to hang out while I took a nap and finished some laundry. LOL. DBF was cracking up. He knew what I meant, it just wasn't coming out right.

So far I'm feeling better than yesterday. Probably due to sleeping for almost 12 hours last night.

Thank you so much for this thread letting us vent a little. It is so needed sometimes.

Well for me - it's a Rebif hangover day! And I am only on my 4th dose!! But I'm gonna keep on keepin on - hoping for better!! Scarlett's my hero!

Thanks for listening! You are right - it feels better just to say it!!

amen.

today was "moving day" for the guinea hutch, which disassembles into parts.

four of us carried over the frame, (each holding a corner) and then the roof, which is pretty heavy.

by the end of two 50 yard trips, I was panting like a dog that ran for an hour!

and swaying a little, to boot.

I try to explain it to people, like, that for me, that much is equal to them running a few miles.

I got all the little suites swept, brushed, and restocked with hay, salt licks, feed pellets, freshly-scrubbed water bottles, cabbage leaves, and carrot sticks, and now, I'm about ready to PASS OUT !!