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Old 01-31-2008, 08:50 AM #21
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Chris is the same way, heat just wipes him out and he has learned that. Sometimes he will still take a hot shower and then sit there and cool off before he gets out so that he doesn't fall to the floor.

I would assume since MS effects everyone different that the heat would also be different for everyone.
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Old 01-31-2008, 09:05 AM #22
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Quote:
Originally Posted by Erin524 View Post
I've noticed problems in extreme cold. We've been having -15 and -20 degree temps here. I'll go outside and my feet will suddenly feel like someone dropped them in a bucket of water and I suddenly had giant ice cubes surrounding my shoes. (ice shoes) and I had to walk slower.
Wow, that's cold. I just have to be below 60 and my body hurts really bad and limbs don't want to work well. But the heat gets me also, I go numb, brain doesn't work well (I feel like I'm dreaming).
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Old 01-31-2008, 09:52 AM #23
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Heat turns me into a ragdoll, and I get very weak. So standing in a hot shower is out for me. I still take hot baths on occassion to help with some of my muscle pain, but I only let myself stay for about 15 minutes and it's usually right before bed so I don't have to worry about moving around too much. I also never do this when I'm home alone, just in case.

When the cons get worse than the pros of doing this, I will definitely stop. ***knocks on wood*** Haven't gotten to that point yet, but I know it may come at some time.
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Old 01-31-2008, 12:48 PM #24
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sometimes I LOVE a hot bath!

Sometimes a hot bath makes me feel pretty sick

Some hot days dont bug me, some make me limp like a noodle.
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Old 01-31-2008, 02:20 PM #25
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Hot Showers are the highlight of my day, can't get started without one and the hotter the better.....but they definately drain me. I just plan ahead and know that when I get out I will have to just sit for 15-20 minutes while I re-energize. Hopefully it doesn't get any worse - I would hate to have to give them up!!

Extreme cold - yep that too! Not always, but frequently, when I first go outside and it is cold - I do the Frankenstein walk. I have to stop and really stretch my muscles out to get them kick started.

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Old 01-31-2008, 02:41 PM #26
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When I am FINE totally....then I can bath hot! However if there are MS things happening, forget the hot bath!

I too had those stars and never told anyone!!! (I'm a classic keep strange sx to myself person!!! BUT I'm learning to behave and call the doc!)
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Old 01-31-2008, 03:19 PM #27
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Because is excerbats your sx.
I cant take hot baths,I cant be in the heat,And I can not drink my coffee in the summer months. Which sux big time. I drink NOS in the summer months,and if its cold out I can chance it and maybe drink one cup of coffee.
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Old 01-31-2008, 04:59 PM #28
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Here is some information about Heat Intolerance and MS from the National MS Society that you might find helpful as well.

http://www.nationalmssociety.org/sit...ourcebook_heat

Many people with MS experience a temporary worsening of their symptoms when the weather is very hot or humid or they run a fever, sunbathe, get overheated from exercise, or take very hot showers or baths.
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Old 01-31-2008, 06:58 PM #29
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I have been reading this thread and I have a question about the eye thing you were talking about. I get those sparkles, I always thought that was a sign that my b12 was low. Has anyone ever seen (I know this sounds weird) like and x-ray type of picture of an eye ball when you close your eye?? I don't know how to explain this sorry
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Old 01-31-2008, 07:41 PM #30
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I'm VERY heat intolerant...no hot baths or showers. If outside temps are above 70 degrees, I am a virtual hermit. When I get overheated my legs feel like walking on wet noodles, my eyes get blurry and cog fog sets in and I feel like all the blood has been drained from my body because I am so weak.
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