While I am not on Ty at the moment, I know exactly what u are talking about. Ty weakens your immune system as do all other approved MS meds. I can't say if u had a reaction to TY or if it weaken you (as in my case). I did not have many headaches, but was ill 80 to 90% of the time I was on Ty. About 1-2 visits a mo to the GP for drugs. For me it was worth it. Quality of life was low, but my MS become stable. The illness was kind of like a 2yr old who caught everything. I'm sever MS so I continued the med. I understand your decision to leave and wish you well. Just wanted u to know there are others out there somewhat like you.XOXO

Tysabri price increase.

Effective 12/23/08 there is a 3% increase in wholesale price from 2295.16 to 2364.01.

Not sure how that compares to the wholesale price increases on the CRABs, since they have all gone up in price, maybe someone has the figures for the other drugs for comparison.

Hi All

Hope this finds everyone well. I had my third Ty infusion yesterday and so far I am pleased. I did my first 2 at home in NJ and my third while on vacation in south Fl.

I was suppose to have been done lat Wed but someone gave this site wrong info and they called and cancelled saying my insurance does not cover Ty. That was finally starightned out only hours before my infusion time.

I am not saying one place is bettr than the other I am just comenting on how diffrent they each run. In Nj I must be seen by DR each time here come early any time no need to see Dr and he does not draw blood each time after the first visit. He was very nice and that suits me cause appointment was 1 told to come 1230 to fill out papers and I left 450. I was alone in infusion room from 330. He cant leave till last person is done infusing. In NJ they have about 30 seats people come and go all day. They had 10 seats busy day is 14 total. They did say this is the smallest of their 3 sites but still only do about 25 a day in their other sites. Nurse took bp before I saw Dr in NJ they also take it while on Ty and when finished.
take care
laurie f

Glad to hear it went well Laurie!

Was it hard to set up the infusion in FL for that one infusion?

I would love to be able to do that when I go somewhere on vacation! I've been held back more than once due to my infusions falling inside of a time when I planned a vacation out of state! At this point I just plan around infusion, but it would be nice to be able to do that instead!

Riverwild

The Touch program was very helpful in setting up the Fl infusion. We did run into a problem and it was delayed by 5 days because the Fl facility waited till the morninng of the infusion to check my insurance. It was Wed and they were closed Thurs and Fri. Insurance company gave them wrong place to call but with TTouch programs help it was resolveed. I will know in the future to call ahead. You must give them 3 weeks notice.

Good luck
laurie f

#22 Down!

Nothing to report, just a usual infusion, everything was on schedule and over within the usual time.

This will be my second month of two infusions, the first was last January. I can't wait to see what the insurance company and the hospital do with the billing this time! Last year, I got the $10,000.00+ bill! It disappeared before I could ask questions. It WAS funny when I called up and the billing office said "Oh, that was just a glitch!" I laughed and said "Good thing cause I wasn't paying it. We'd have been filling out the poverty paperwork!"

No itchies today!

Life is good! Happy New Year!

How much are your infusions? I don't understand why the costs are so different across the nation.

My infusion costs are $2703. Only $150 of that cost is for the facility that gives the infusion. If you get a bill for $10,000 for 2 infusions, that is making your infusion $5,000. I can see maybe $1,000 difference, but something seems funny to have them be so varied!

I know Vic's were expensive, but he lived in CA, and everything seems to be more there. But Maine is a potato state like Idaho. You'd think we'd be similar !

I heard through the grapevine that infusions are ~$10,000 at Rush-Presbyterian in Chicago. I think it all depends where you go. My neuro's office charges a nominal fee compared to most.

The bill I saw back in Jan. 2007 was for 10K+

I have never seen a bill before that time.

I have an old style insurance plan. The plan cannot be dropped due to a clause in the contract between my company and the insurance co (BCBS)

My policy is under contract with a clause that as long as any original plan members remain in the plan, it cannot be cancelled. I may be the last member, i don't know. That is confidential information. All I know is what I pay per week for premium and what they are paying out every year to cover me.

Someday I am sure they will make me enter the real world of how people are getting bent over and screwed ( watch and see if THAT prints! ) but for now, I have a chance to save and pray and thank whatever made
me sign up for it back in 1990!

Thanks for the sense of humor!!!

It may be adjusted way down with your insurance. Still, it doesn't seem right that places should charge so much. I don't believe in national health care, but I do think some reform needs to take place with those kind of differences.