It has been 14 days since my last update of the graphs, so here is the update and it all looks good!

-Vic

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I'm going for Ty #2 tomorrow! My 1st 2 weeks after the first dose I felt great. The last 2 weeks not quite so perky, but felt as good as any time on the interferons.

I still can't believe what some are being charged for their Ty. My total bill was under $2600! I don't know what the insurance is paying yet. They are taking their time processing the claim.

What my infusion center charged was only $120 more than the cost of the med. It just doesn't seem fair that some of you are being charged $5,000!

That is just nuts!

hello, I am new to Neuro Talk and was hoping there might be many here who have been on Tysabri for a year or more and can help me figure out if this is just me or not.

I have had 14 infusions and Tysabri has been very good at slowing my MS down, but lately I am starting to feel as though the initial effectiveness might be starting to decrease?

Just wondering if anyone else have noticed an increase in their rate of flares, symptoms, or disease activity after having a good long remission on Tysabri?

I think this concern was triggered by my recent flare. It was the first since starting Tysabri, and mild when compared to my previous flares, but makes me worry anyway.

Thanks for any related experiences! I hope I put this in the right spot, was gonna start a thread about it but saw the Tysabri sticky...

Katt,

It seems that my only issues have been associated with UTI's, and that is when my MS symptoms beat me up a bit. But, after a few pounds of Cipro, I am good to go and back on track.

-Vic

Hi Katt and welcome to NeuroTalk!

I haven't had a relapse or flare since I started. I can't give any advice as to that, I still feel good.

I do know that even with Tysabri you still have relapses. They are less frequent and milder for most people. Everyone is different. You should talk to your neuro and if you ARE relapsing, a dose of steroids may help. You CAN have steroids, just not long term steroid therapy, such as pulse therapy.

Please come back and let us know how you are doing, ok? I hope things improve for you!

Yes, I just finished an oral course of prednisone. I was hoping the whole time the pills would do the trick so I could avoid IVSM.

Luckily they did, or the Tysabri kept the flare short if not sweet, and I did not need IV steroids. I am coming out out of it slowly now.

Before Tysabri I had 4 MAJOR relapses a year and was worried I would be stuck in a wheelchair...those fears stuck with me and even though I knew Tysabri was not a cure and I would still have exacerbations this first one since has been hard for me to deal with. Even though I was only reduced to cane, then walker, and am now ok without assistance for short periods again.

It is mostly me being silly, borrowing problems and not looking at the big picture. Discounting the positive in my worry and fear.

Thanks for the responses!

There's never any need to apologize here for worrying!

We all understand the unknowns of MS and how we can be doing so well and look so good one day and then the next be on the floor!

Glad to hear the steroids helped!

I know eventually I will have another relapse and I dread it! Life has been so good lately, I forget sometimes I even have MS and THAT in itself is a miracle!

YES, I was fortunate to have a few days like that over the past year!

I think that is what has me freaked again, not ready to go back to more bad days yet! Did not do enough with my good days...but I suppose we never do in retrospect...

Ah, that is more a discussion for another thread though...