The whole "fatigue" thing is so bizare. When I was first diagnosed, I was taking two naps per day (I wasn't working, so I could work it into my schedule).

When I got to the point that I was taking *three* naps per day, my doctor prescribed Provigil.

I started at 50mg, but soon (2 weeks?) progressed to 100mg/day.

Within ~6 months, I was up to 200mg/day.

I took that amount for about a year and a half...and then I JUST DIDN"T NEED IT!!

Nothing else changed...I just didn't need Provigil.

A few months ago, I started taking 200mg/day again. In the last couple of weeks, I've started noticing that by about 1-2:00pm, I'm dragging.

Tomorrow I'm going to start taking another 100mg at lunch, and see how that goes.

I was pretty happy with my health for quite awhile. I seemed to have pretty decent stamina. I was sleeping well at night. I seemed to be able to accomplish everything I was trying to.

I feel like I'm slipping back to where I was a few years ago...

-Tired all the time.
-Just not quite able to follow the thread of the conversation as fast as everyone else.

I don't feel like I'm in a flare...like I said, I felt like that for a couple of years, and I had IVSM several times during that for actual flares...but the IVSM never touched the fatigue and "cog-fog".

I'm just a little down to think I'm going back to where I was. Back then, I was volunteering in my daughter's kindergarten class once per week.

Now I'm working full time.

Hi Victorya!

I'm sorry the fatigue has caught up to you. I understand!

I would suggest you talk to your neuro about other fatigue treatments.

Currently, I'm taking Ritalin-SR (20mg) and Ritalin (20mg) 2 x day for the fatigue.

Everyone's fatigue is different and everyone reacts to medications differently. Hopefully you'll find something that will help you out.

I used to take Provigil. Then I took Amantadine 3 x day. Then I took both of them together.

Now I take Ritalin. ... not sure what else I can take.

For me, the fatigue can ramp up due to: sitting in front of the computer doing something repetitive for too long, or sitting for too long ... :tired:

I wish you well and hope you can get your fatigue under control!!

Cheers!

Niko

That stinks. Just for quality of life sake- is there any opportunity to work PT instead or do some work from home during part of the week (or get that nap you need in the middle of the day). I've never taken P, but I bet it's disappointing to have to up it. Hope it gives you some energy back.

aww... bummer, victorya...
these are the kinds of things that cause us to doubt, bring uncertainties, etc...

our ms is so unpredictable

try not to waste too much precious energy imagining the worse.

it is so natural to think, "uh oh ~ is this forever?
is this going to get worse?"
whatever your ms does, you are going to handle it with courage and class... cuz THAT is who you are.

Yeah! I second that motion!!

With courage, take each moment as they come

Cheers!

Niko

Sounds like your MS is either cycling or progressing in general. I don't think it too unusual that you would need to pick up the doseage of Provigil. The one good thing is, you know your body better than anyone else and know what works for you so do what you need to do and don't worry about it.

I don't know what the half-life of Provigil may be but I would think it would leave you system pretty quickly and after stopping would be noticed in just a few days vs. months.

One day at a time and roll with the punches.