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Old 02-01-2008, 04:55 PM #1
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Originally Posted by Friend2U View Post
I waited until I was progressive to bother to notice it all... well I noticed, but ignored things.
Actually, that helps. I think I'll call the neuro today, just to make sure she understands what I thought she did: that I have these symptoms constantly.
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Old 02-01-2008, 05:22 PM #2
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Sorry to hear there's been little let up in symptoms.

I understand. Same here since my DX process began in '06. The docs are trying to figure me out since I don't complain about my symptoms much in between visits, but my clinicals get worse each time I go.

My doc is MRI happy, so I keep track of temperature changes or an illness that might be making my MS go nutty. I only call if a totally brand new symptom hangs around for about a week.

I've been on Copax since May, and my recent brain MRI shows it's been stable since then. So I also understand that.

Hang in there, and know you're not alone.
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Old 02-02-2008, 06:39 AM #3
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Catch,
One of the things my first neuro told me has stuck with me to this day; When we get the MS diagnosis, we tend to become "hyper-aware" of everything going on with our bodies.
My dx was similiar to yours. Once THE BIG ONE hit, it was only three months until it was official. Meanwhile, all my symptoms worsened and it felt like new ones cropping up, literally, every day.
I explained this to him and he assured me I wasn't dying. But it did make me realize that some of it I wouldn't have given a second thought to had I not been recently labeled MS.
And like you, I can remember things from months and even years prior that may have been MS trying to expose itself.

I'm not trying to belittle your post, mind you. I just saw things in it that I went through. After the official dx and I started on Rebif and a BUNCH of pills, it still took another 6 weeks or more before I could see things improving/remission.
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Old 02-03-2008, 12:02 AM #4
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Hyper-aware. Yeah probably, but things have definately been worsening, particulary over the past three weeks. If an attack is new, or worsening of existing symptoms, lasting longer than 24 hrs; this seems to qualify.

Thanks for your input, everyone. I probably would've just continued to ignore all the Sx until things may have gotten really bad. Instead, I see the neuro on Tuesday.
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Old 02-01-2008, 05:36 PM #5
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Actually, that helps. I think I'll call the neuro today, just to make sure she understands what I thought she did: that I have these symptoms constantly.
I'm glad you are going to be proactive... Though I'm sure you probably never used to put yourself first....but in this... It's got to be ALL ABOUT YOU... to some degree. Go the extra distance for yourself... I'll have to try to follow my own advice...
(Easier said than done...and all....) Good luck!
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Old 02-02-2008, 12:29 AM #6
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hello and nice to meet you.
it's a good idea to keep your dr informed.

i've been on copaxone almost 5 yrs.
my mri's have been stable altho my disease has very slowly progressed.

it can take up to 8 mos for the copaxone to start working in your CNS.
hate to tell you that but with time you might see improvement.
the DMD's are meant to help stop progression but may not do anything to help with sx's (symptoms).

that's why you should contact your dr.
please keep us posted.
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