advertisement
Reply
 
Thread Tools Display Modes
Old 02-06-2008, 07:28 AM #1
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Help Weird & Strange New Symptom

My right arm/hand has been numb since October. I've gotten most of the use back although it still feels tight and "asleep". I can now write and hold things without dropping them (most of the time).

Now, my right leg and foot are affected. They are numb but do not have the "pins and needles" sensation. It's different - my foot is very sensitive and the big toe is the most affected. I can just touch something to the end of it and my whole leg jerks. It's almost like an electrical shock without the pain. If I curl my toes up they get the weirdest sensation - not painful but definitely not normal. If I touch my upper thigh it's almost a tickling sensation - and I am extremely tickilish so I notice every touch! I have been using my right thigh for my Beta shots for the past few times since I cannot feel anything there! So, there are advantages!

This is the first time I have had this sort of thing and just wondered if anyone else has had it and what they did to help with the symptoms.
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote

advertisement
Old 02-06-2008, 09:06 AM #2
Jodylee's Avatar
Jodylee Jodylee is offline
Senior Member
 
Join Date: Jan 2008
Posts: 1,365
15 yr Member
Jodylee Jodylee is offline
Senior Member
Jodylee's Avatar
 
Join Date: Jan 2008
Posts: 1,365
15 yr Member
Heart

I haven't had this Kelly. I just wanted to bump you up. Sorry about the new carp.
__________________
Multiple Sclerosis-Dx May 2007

.
Jodylee is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitty (02-06-2008)
Old 02-06-2008, 11:08 AM #3
sugarboo sugarboo is offline
Senior Member
 
Join Date: Jan 2008
Posts: 1,516
15 yr Member
sugarboo sugarboo is offline
Senior Member
 
Join Date: Jan 2008
Posts: 1,516
15 yr Member
Default

I'm sorry you've had such a hard time lately

Just wanted to offer some
__________________

.
Wisdom to the soul is what health is to the body
sugarboo is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitty (02-06-2008)
Old 02-06-2008, 11:30 AM #4
Chris's Avatar
Chris Chris is offline
Member
 
Join Date: Aug 2006
Location: Georgia
Posts: 975
15 yr Member
Chris Chris is offline
Member
Chris's Avatar
 
Join Date: Aug 2006
Location: Georgia
Posts: 975
15 yr Member
Default

I'm sorry, Kelly! Perhaps all the emotional stress you've been under recently is playing a number on your MS, in addition to all of the physical stress you've been under. Have you run any of this by anyone at your Neurologist's office? Perhaps it would be a good idea.

I hope you start feeling better soon.

All the best,
Chris
__________________
"I didn't know he was dead; I thought he was British"
Woody Allen

.
Chris is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitty (02-06-2008)
Old 02-06-2008, 11:39 AM #5
lady_express_44's Avatar
lady_express_44 lady_express_44 is offline
Grand Magnate
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
lady_express_44 lady_express_44 is offline
Grand Magnate
lady_express_44's Avatar
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
Default

Sounds like a lot of sensory symptoms, as described in this website:

http://www.mult-sclerosis.org/mssymptoms.html

Spinal lesion attacks can take a LONG time to heal from, and I have found them to follow a distinct pattern for me; approx 6 weeks of escalating symptoms, followed by 6 weeks in the recovery stage. Ultimately, I count on about 3 months of major fluctuations, but then several more months (12 - 15) before I know what I have left to deal with from that attack.

Did your October attack follow a similar pattern (6 + 6)?

It sounds like there is new activity, which could be from the same (or a different) lesion. If there was 30 days between the recovery phase and these NEW symptoms, it would be considered a new attack. Sometimes it's hard to tell though, cause those attacks last so long.

I have experienced most of what you described; shock sensations, hypersensitive to touch (it can hurt ), numbness. I am very sensitive to drugs, so I haven't tried anything but Naproxen for the inflammation. Some people find neurontin helpful, and others have resorted to narcotics if it gets too bad.

How long have you been on B and how many attacks have you had while on it? It may be your body isn't favoring that particular drug.

Cherie
__________________
I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
.
lady_express_44 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitty (02-06-2008)
Old 02-06-2008, 11:42 AM #6
karousel's Avatar
karousel karousel is offline
Senior Member
 
Join Date: Jan 2008
Location: Webster, NY
Posts: 1,956
15 yr Member
karousel karousel is offline
Senior Member
karousel's Avatar
 
Join Date: Jan 2008
Location: Webster, NY
Posts: 1,956
15 yr Member
Default

Kelly, it's no wonder you're feeling like you are with all the stress you have been going through. Just wanted to send some hugs your way.
karousel is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitty (02-06-2008)
Old 02-06-2008, 12:08 PM #7
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default

Quote:
Originally Posted by lady_express_44 View Post
Sounds like a lot of sensory symptoms, as described in this website:

http://www.mult-sclerosis.org/mssymptoms.html

Spinal lesion attacks can take a LONG time to heal from, and I have found them to follow a distinct pattern for me; approx 6 weeks of escalating symptoms, followed by 6 weeks in the recovery stage. Ultimately, I count on about 3 months of major fluctuations, but then several more months (12 - 15) before I know what I have left to deal with from that attack.

Did your October attack follow a similar pattern (6 + 6)?

It sounds like there is new activity, which could be from the same (or a different) lesion. If there was 30 days between the recovery phase and these NEW symptoms, it would be considered a new attack. Sometimes it's hard to tell though, cause those attacks last so long.

I have experienced most of what you described; shock sensations, hypersensitive to touch (it can hurt ), numbness. I am very sensitive to drugs, so I haven't tried anything but Naproxen for the inflammation. Some people find neurontin helpful, and others have resorted to narcotics if it gets too bad.

How long have you been on B and how many attacks have you had while on it? It may be your body isn't favoring that particular drug.

Cherie
Thanks, Cherie. I read the link you posted and it gave me some good information.

The symptoms seem to get better some days and then come back on others. I've gotten to the point of not really worrying about it too much - I just try to keep track of things that are unusual or that I've never experienced before. I hate to blame everything on MS but so far it's been the culprit for most of my symptoms!

I've been under a lot of stress lately so I can only imagine that has attributed to some of my problems.
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
Old 02-06-2008, 12:29 PM #8
the Bird's Avatar
the Bird the Bird is offline
Senior Member
 
Join Date: Jan 2008
Location: Georgia
Posts: 1,650
15 yr Member
the Bird the Bird is offline
Senior Member
the Bird's Avatar
 
Join Date: Jan 2008
Location: Georgia
Posts: 1,650
15 yr Member
Default

Kelly,

here are some major feel betters!
the Bird is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitty (02-06-2008)
Old 02-06-2008, 12:32 PM #9
lady_express_44's Avatar
lady_express_44 lady_express_44 is offline
Grand Magnate
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
lady_express_44 lady_express_44 is offline
Grand Magnate
lady_express_44's Avatar
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
Default

Yes, stress can be a MAJOR problem for us, and definitely does stir up symptoms for me.

Try to rest as much as possible.

Cherie
__________________
I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
.
lady_express_44 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitty (02-06-2008)
Old 02-06-2008, 12:46 PM #10
HSPCraig's Avatar
HSPCraig HSPCraig is offline
Member
 
Join Date: Nov 2007
Location: Richmond, Virginia
Posts: 177
15 yr Member
HSPCraig HSPCraig is offline
Member
HSPCraig's Avatar
 
Join Date: Nov 2007
Location: Richmond, Virginia
Posts: 177
15 yr Member
Default

Cherie,

I also found your response to this post very interesting. I don't really have the severe symptoms that Kelly describes but while substitute my legs went numb by 12 noon and I was afraid of even having to get up with my crutches.

Same pins and needles for some time there after.

Thanks for the link.
__________________
Craig Mattice
"Live Like You Mean It!"

.


Dx'd 12/00 w/RRMS
Dx'd 05/01 w/SPMS
03/05 Rescinded MS Dx Neuro thinks something else
03/06 New Dx of Hereditary Spastic Paraplegia (HSP)
Rare deteriorating motor neuron disease. No cure. No Treatments.
Only 20,000 Dx'd patients in US
HSPCraig is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitty (02-06-2008)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Is this weird or not? Megan Peripheral Neuropathy 15 10-19-2007 03:44 PM
weird day shelly Bipolar Disorder 3 04-18-2007 12:38 PM
Strange Symptom? Mona Parkinson's Disease 6 10-15-2006 06:37 PM
My mom is weird about drs Mari Bipolar Disorder 11 10-08-2006 12:44 PM
Wow, that's weird! Tamie Children's Health 7 10-07-2006 10:45 AM


All times are GMT -5. The time now is 12:34 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.