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02-12-2008, 10:50 AM
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Grand Magnate
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'Tis the season to see neuros it seems, LOL.
 Tomorrow is going to hurt. First available appointment is 8am (ouch) since he is the top MS guru of the neuro group I go to. This is a consult asked by my regular neuro. He's not sure whether or not I may be progressive and he wants another's take on this. Plus the guy I'm going to see is the only one in the office who could prescribe Ty if they think I need it. My brain MRI has been stable since May, but my clinicals are getting worse. So much fun.  My DH thinks it's 'cuz my current neuro doesn't know what to do with me, LOLJust hoping for something to come out of this besides more testing. Thanks for listening.
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Strength comes in all types of packages, even those you don't expect Dx'd MS 2007, Fibro 2009 |
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02-12-2008, 12:20 PM
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Member
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More testing? Don't worry about it and just go with the flow. It is not unusual for a knowledgable neuro to ask for a second opinion by someone who may specialize in MS. There is always something he may have missed in your overall evaluation.
Look at his appt as a good thing and only in your best interest. Also, be prepared for whatever news you may get, positive or negative. As a suggestion, I would have your DH accompany you into the examroom which will give you a two on one advantage and your DH may retain info that you may not catch or forget in light of everything going on. My wife has been with me on every neuro appt since day one in 2000. What a relief and help that has been. The neuro also gets another person's point of view on your symptoms. Good luck and keep us informed. 
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Craig Mattice "Live Like You Mean It!" . Dx'd 12/00 w/RRMS Dx'd 05/01 w/SPMS 03/05 Rescinded MS Dx Neuro thinks something else 03/06 New Dx of Hereditary Spastic Paraplegia (HSP) Rare deteriorating motor neuron disease. No cure. No Treatments. Only 20,000 Dx'd patients in US |
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02-12-2008, 12:32 PM
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Wisest Elder Ever
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Quote:
Good luck - I'll be thinking of you and sending good thoughts.
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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02-12-2008, 01:09 PM
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Elder
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Hi Finlady,
Good luck with your appt, I hope you get good news, that it turns out NOT to be progressive and maybe Tysabri will be available to you if you want it. Maybe they'll find a reason for the clinicals getting worse and do something to help you too?
__________________
Wiz Turn Left at the next election. . RRMS DX 01/28/03 Started Copaxone again on 12/09/09 |
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02-12-2008, 01:13 PM
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Fabulous Belizean Member
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hopin' right alongside ya, Finny!
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And the trouble is... if you don't risk anything, you risk even more. - Erica Jong |
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02-12-2008, 01:21 PM
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In Remembrance
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Good Luck with your consult, FinLady. I hope all goes well.
__________________
~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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02-12-2008, 02:10 PM
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Senior Member
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Best of luck with your appointment!
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Early consult tomorrow
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