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Old 02-15-2008, 09:14 PM #21
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Originally Posted by braingonebad View Post
And then I read SBrown's post - wow, good call!

Where did you get that LP done, GJ? I'd call and tell them I want a copy of the results from them. (The one you have now is from your doc, isn't it? I bet the other one is more complete)

Curiouser and curiouser.....



Can I get you a nice hot cup of chamomille? Send a cabana boy over to give you a neck rub or something? This stress has gotta be killing you.
Hey, if you're sending out cabana boys....
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Old 02-15-2008, 09:19 PM #22
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Originally Posted by Koala77 View Post
Oh Jeannie, you poor thing! Looks like you're back on that Limbo Roundabout with a vengeance!

I'm inclined to agree with the others when they said your results obviously aren't all through yet, and if you were being tested or MS....then those results are not on the list you gave! I'd have been expecting to see results for:

Serum Alb -
CFS Albumin -
CFS IGG -
CFS Index -
IGG stnthesis Rate -
IGG -
Ogliclona Bands
Myelin Basic Protien

OG Bands, myelin based and other proteins (albumins) have been used for a long time now when diagnosing MS.

I'm a bit bewildered as to why these wouldn't have been tested.
Koala,
Thanks for the list it's a big help! I'm speechless at this point. Look forword to getting to the bottom of it soon. Once I got the 'fight' out I felt alot better. You'd think I was the drama queen but every step of the way its been the health care system. Every single test I've done has had some kind of failure. I'd list them but this note would be a book! I think of the bill's I've seen my insurance company pay (and me) and it must be approaching $20,000 USD.


I'll be sure to share when I get some answers from the idiots in Anchorage, Alaska with hope the doctor I love will have my answers, as well as my new PCP!!

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Old 02-18-2008, 04:00 PM #23
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I called the hosptial today. They failed to send the correct report, and are now sending it to me. I should have it in the mail the next few days. I'm going to assume that it will turn up 'negitive' at this point. But I'll let you know. Thanks for all your help last week.
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Old 02-18-2008, 04:05 PM #24
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Originally Posted by greenjeans View Post
I called the hosptial today. They failed to send the correct report, and are now sending it to me. I should have it in the mail the next few days. I'm going to assume that it will turn up 'negitive' at this point. But I'll let you know. Thanks for all your help last week.
I can't wait to see what all is on this LP report.
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Old 02-18-2008, 05:18 PM #25
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I just saw this thread, and although I'm tickled that it was the hospital's screw-up and not a testing or lab mistake, I still feel all loud and growly that you've had to go through, or that anyone would have to go through, worrying about possibly having to have it re-done.

Somedays it seems as though if you aren't sick already, the medical system will make you so.

Glad you were able to get some answers.
Now just hope they send it to the right address...
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Old 02-18-2008, 05:54 PM #26
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Shocked whoa..i have to have this done soon too
so thanks for your post--i assumed it would be obvious but i guess it's just as mysterious as those white spots on my cranium! the findings sounded terrifying --examination discloses evidence of signal changes seen the periventicular area and it appears to be mass-like with peripheral edema. this lesion measures about 1 cm in length and .5 cm in AP dimension. small hypodensities are seen in the parietocccipital area on the left side. a smaller are is seen in the parietooccipital area on the left side. ---

until neuro went over em w/me....then they were just devastating! only 1 cm but looked gigantinormous to me! hang in there! mary aka volada
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Old 02-18-2008, 06:42 PM #27
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Originally Posted by greenjeans View Post
I called the hosptial today. They failed to send the correct report, and are now sending it to me. ................
I'm pleased you didn't just give up GJ. It did appear a bit odd that the tests you cited seemed to be an incomplete list.

I daresay you'd have heard if there were any abnormailities, but then again if you didn't get the lot.....did your doctor?
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Old 02-18-2008, 07:16 PM #28
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Good question! My sluthing detective work shall get the answer

LOL!!!
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Old 02-18-2008, 07:17 PM #29
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Originally Posted by volada View Post
so thanks for your post--i assumed it would be obvious but i guess it's just as mysterious as those white spots on my cranium! the findings sounded terrifying --examination discloses evidence of signal changes seen the periventicular area and it appears to be mass-like with peripheral edema. this lesion measures about 1 cm in length and .5 cm in AP dimension. small hypodensities are seen in the parietocccipital area on the left side. a smaller are is seen in the parietooccipital area on the left side. ---

until neuro went over em w/me....then they were just devastating! only 1 cm but looked gigantinormous to me! hang in there! mary aka volada
Welcome Volada!
I must of missed you come in the door and wanted to say HOWDY!!
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