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#15 | |||
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Magnate
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Thanks everyone!
She told me to start out slow, since it's been so long. I know all about NOT pushing through the pain, work it easy and only do as much as I can. I had to talk to her about the whole spazz thing, she'd heard of Baclofen pumps but not pills ![]() If I sit for any amount of time, it all gets stiff again and I have to go through the whole stretch and go slow just to MOVE. So I just don't sit for very long, which makes me more fatigued and then I get stuck again... I feel like the Tin Man, needing my oil can. I hate feeling like this and I have to be able to move to work. Even getting out of a car takes me 10 minutes! I am watching my calories and since all the chocolate in the house is gone now, that helps... ![]() I am back to swimming too. I got a pass for the HS pool, lap swim starts at 6:00 a.m. and I just change at work and go straight there. The pool is freezing at that time of day and the cold affects me worse than heat does, so I have to stretch before I go and then take it slow once I am in the water. The derned kid keeps putting up the "Slow Lane" sign at the end of my lane and THAT is discouraging! ![]() I want it all to work NOW...LOL! I've never been good at waiting and taking it slow just frustates me. I don't want to hear age and weight and MS!! I want to be healthy, elastic Rivergoddess! ( picture me stomping my feet here like DM's avatar) The only good thing is when I get home from swim, I am so tired that I fall asleep immediately! I slept today for 8 hours for the first time in AGES! Rant over... ![]()
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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