OUCH about that fall, sowwy. Were you being chased by reindeer?

Mine checked me, but had me do them regularly at home and much of the clinic time was spent with things that I couldn't do on my own...stretches, manipulations, equipment, ultrasound, etc. Didn't you say the therapist is cute, kinda like a cabana boy? Is that worth nothing?

Greenjeans...thanks for you sweet sentiments. It helps.


But lately, I do feel sorta left out or lost. I dont have ANY real DX and feel farther and farther away from a MS DX that I am not sure why Id be in LIMBO any longer. Just love you guys so much~!

If I do have Narcolepsy I dont want to leave this forum ya know?
I would even miss my MS neuro. Isnt that too weird??

In my heart I know there is something wrong and more than one thing too.

Its not that I WANT a DX but so much goes on and yet an answer would be of comfort ya know. A name to the enemy so you know who you're fighting eh?

Anyone else feel like this? I know this will pass...it has before.

AGAIN I CHOOSE WELLNESS... whatever that will look and FEEL like LOL

Jan

I'll tell you what I told Gazelle :

You need to clear your mind, take a nice calm week or month, whatever you need. Relax. Let the answer float to the top of your head like a Magic 8 Ball. It's in there, you know it. You just think too much, you know too much.

And as nice as validation from any doc would be, validating yourself would give you real peace.

I think sometimes the waffling within ourselves (is it ms? is it something else? Worse?) is the stress that exacerbates the illness, puts our lives on hold, makes us feel the bars of the limbo cage more than the physicality of it.

More than anything that happens to our bodies, it's what happens to our minds in all of this that hobbles us.

I know it messed with my head. I will not allow that anymore.

I know what I know about my health, my diseases and disorders. And the answers came to me when I let it go, and let the truth float to the top.

After everything I've been through, I wonder if I'd believe anything a dr told me anyhow... so it was important for me to know what I thought, with or without a dx.

I still want them to dx me. I still want them to tx me. But even if neither happens, I know I will be okay. Maybe not my body, but my mind will be.

Thanks Brain.. well said.

I dont think its the DX that I want, Its not having a place to "belong" if I have no Dx that I miss, ya know? If it weren't for YOU and the Limbocheckin..I dont think Id still be around.

And now, I'll just float away......aaaaahhhh........

You've got NO hope of floating away now Jan......

I doubt there's anyone here that would allow it!

You're here now, and you my dear are part of this big wide family! How dare you think about floating away.....

Now you get that thought out of your mind or we'll have to be washing your mouth out with soapy water to get you thinking about other things!

.....and this is for you.........

Jan.... whtever you have, whatever you don't have, if you fit or don't fit anywhere, you've been a good friend to me when I needed one most.


Don't you dare go anywhere lady.

Jan
I've tried to break away a few times, and I get lasso'ed back in

What I finally decided, and this is just me, is that I can't live "in limbo", but I do know what I went thru, and I do know that my sx fit here. This is a very active board, and friendships are founded here thru more ways than MS.

I suppose in a way, I'm in limbo because I don't have concreat answers yet, but until my body goes numb, or I lose sight in an eye, or something, I'm just living and moving on. I don't know what are bodies have, but I know we have friends here we can reach out to.

I know we are not chasing a dx of MS, but as long as we are faced with the possibility, or have sx that others here can relate too, you are in the right place. You are home. That's what matters!

Take some time if you need too...but chances are, you'll find it difficult to find a board where you feel this comfortable, so pull up a chair, relax, don't worry, and know that something brought you to this site for a reason, even if its just companionship as you sit at your computer....

Spend some more time at the Stumble Inn....where friendships grow!

YES HE IS!!! LOL!!!
Good to know that he is treating me 'right'
I go back on Tuesday...I NEED him LOL!!!

Jan,
One more thing...a few years back when I had a bunch of blood tests ran, they found I carry the "Scleraderma" gene (The body turns into a rock ) So I understand having a gene of an autoimmune disease and not having the sx. I think I was more upset about turning into a rock, then turning into an electric pole <numb/buzz>

See how well you fit in with this motley crew? LOL!

hey all..a bit late...like what 3 days....

Anyhow, Jan we love you that is why you are here hehehe hugssss

hugss to all ...

I am doing ok, working, kids, getting ready for my trip for work, going away
9th-14th for work...for school...gonna miss the family...but will also enjoy some time...quiet quiet...

Today was a tough day at work, I was missing two workers..and no one could fill in...uggggg and busy busy morning...it was sunny and warmer than usually so many were out and about.....and coming to McDs...ahhhhh

My baby has a fever, and I feel awful, kindof a cough but more a throat thing....

anyhow...nothing new medically to report..as I dont see drs...I just keep going right now...and learning to accept...how I feel ...as it is pretty norm for me..to tingling pain...or the other stuff....just keep going....

hugssss,sarah