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Old 03-03-2008, 08:17 PM #11
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Originally Posted by Koala77 View Post
I'm so sorry to hear that you're suffering again Julie.




I also suffer from nerve pain. For me it's optic nerve pain, and although I take an anti-epileptic medication regularly, I do still get really nasty pain from time to time.

My doctor started me on Oxycodone which must be very similar to Hydrocodone, (except it's not a medication that I'm familiar with, and I'm not sure it's even available here in Oz). I've had no ill effects from the Oxycodone even though I suffered a very nasty broncho-spasm from Codeine, and now list that as an allergy.

I've heard it said that opiates will not help nerve pain, but believe me, I'm proof that they can. Initially my neurologist was surprised to hear I was getting relief for nerve pain with Oxycodone, but he told me that although it's unusual .... it's not unheard of, and he was happy for me to continue taking them.

Toradol (Ketorolac Tromethamine) was formerly used here in Oz as non-narcotic treatment for moderate pain, but I've not seen or heard of it being used for many years now. It may still be around, but I only retired from hospital work 6 months ago, and it was at least 5 years prior to that since I last saw it used. There's NO Codeine in that medication Cherie.

I hope you get some relief soon Julie. Nerve pain is the pits!

Koala, I get really bad headaches from codiene...that stuff just beats my body up. Hate it! Yeah, your oxycodone is very similar to my hydrocodone...I think the difference is the Ibuprofen rather than the acetometiphine <sp?>.

Gee, with my MT classes, I guess I better get the spelling down correct for these meds! I'm sooo buried in learning I need a pain killer just for that <grin> Not really....!!!!

Julie: I don't think they give pain meds for kids and laundry, but I can relate! LOL!!!
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Old 03-03-2008, 09:17 PM #12
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Originally Posted by greenjeans View Post

Julie: I don't think they give pain meds for kids and laundry, but I can relate! LOL!!!
LOL, I know, I have had good luck getting pain meds tho just because of the fibro. Now if I can just get one I'm not allergic to.
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Old 03-03-2008, 09:21 PM #13
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Well anything more than a mild headache or mild body pain, OTC pain meds just don't do anything for me.

I have endo so I pain with that, backaches from lifting kids, laundry and pushing really full grocery carts, LOL. I deal with headaches almost every day.

I also do have never pain like Koala77 said, all tho I haven't found pain meds to really help with it. I did try Lyrica for a year and it helped SO much at first and than it didn't help much at all after 2 months. Dr at the time kept upping the dose but after getting to the max I saw it wasn't worth taking and spend 6 awful months trying to get off of it.
Ok, I wasnt sure if this was a nerve pain or pain of a non-neuro origin.

I discovered last week that my migraine medication, Midrin, worked GREAT on the optic nerve pain from the ON. My ON must be healing now, because I'm not popping the Midrin so much...but I was really surprised that worked on it.

I do get the migraines a few times a month, or sometimes as often as a couple a week. (been awhile since I had a bad migraine)

I havent ever been put on any of the pain meds for the MS yet...except maybe Baclofen, which I dont like taking because it makes me sleep constantly, and I guess my spasticity isnt as horrible as some other MSers have.

I can understand the endo...I've never had it, but I've had friends who do/did.

My mom does have some nerve pain from spinal stenosis, and she's been in constant pain for about a month now from it. She's never had that back pain so bad until recently. I knew my mom's pain was a lot worse when she got even more grumpy than she usually is, and she cries while she's walking because it's that painful. She hasnt slept in her own bed for a month...sleeping in her electric lift Lazy Boy recliner for awhile now.

She did get a TENS unit last week and it seem to be helping her a lot. (not crying in pain as much as she was)

Have you looked into something like that for the nerve pain?
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Old 03-03-2008, 10:18 PM #14
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Julie, did you actually go through a laparoscopy/biopsy to ensure your endro dx is correct? My friend went through that and it's not a nice procedure.

I was just thinking that maybe it's serious monthly pains instead. My 15 yr old daughter has that and was put on birth control to manage it. It's working, and all the pain pills in the world weren't.

Birth control might not be a bad idea for you anyway.

Cherie
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Old 03-03-2008, 11:08 PM #15
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Julie, did you actually go through a laparoscopy/biopsy to ensure your endro dx is correct? My friend went through that and it's not a nice procedure.

I was just thinking that maybe it's serious monthly pains instead. My 15 yr old daughter has that and was put on birth control to manage it. It's working, and all the pain pills in the world weren't.

Birth control might not be a bad idea for you anyway.

Cherie


I had laser surgery for endo about 10 years ago, it was too bad. I have tried going on the pill many times but they make me depressed and than I have to take anti-depressants on top of that. I have found that 3000mg of evening primrose oil pills every day keep the pain down a lot. I went from hurting for 3 weeks straight and than 1 week just not too bad to not even having PMS and knowing that my period was even coming.

Oh and I have TWO birth control pill babies, so the pill doesn't work very well on me.
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Old 03-03-2008, 11:09 PM #16
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She did get a TENS unit last week and it seem to be helping her a lot. (not crying in pain as much as she was)

Have you looked into something like that for the nerve pain?


No I haven't really looked into that, since my neuro says I don't have neuropathy pain I haven't talked to him about it yet.
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Old 03-03-2008, 11:26 PM #17
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You don't have to have neuropathic pain or for anyone to acknowledge that in order to get benefit from TENS. I have used it a lot for sciatica, and it was the only relief I found for that. I cried the first time because it was the first time I hadn't felt the sciatica in about 10 yrs. Unfortunately, the relief only lasts a few days, but it's well worth the reprieve!

Cherie
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Old 03-03-2008, 11:48 PM #18
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My post is a bit long, so please forgive me.... but the replies to this thread have left me with lots of comments.

Erin said..."I discovered last week that my migraine medication, Midrin, worked GREAT on the optic nerve pain from the ON. My ON must be healing now, because I'm not popping the Midrin so much...but I was really surprised that worked on it".


I don't know that drug Erin, but I was interested (and empathetic) to hear you have similar optic nerve pain to what I endure! I checked the Australian drug sites but couldn't find anything similar, although I assure you I'd like to. As you in in particular would know , this eye pain can be like having a stabbing tooth-ache in an eye.....definitely not nice!


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... was just thinking that maybe it's serious monthly pains instead. My 15 yr old daughter has that and was put on birth control to manage it. It's working, and all the pain pills in the world weren't.

Birth control might not be a bad idea for you anyway. ....
I don't know if Julie will find this helpful, but for other moms reading I did exactly the same thing for my own daughter. It helped ease the pain that she was having so much that she was finally able to get back to functioning normally.

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You don't have to have neuropathic pain or for anyone to acknowledge that in order to get benefit from TENS. I have used it a lot for sciatica, and it was the only relief I found for that. I cried the first time because it was the first time I hadn't felt the sciatica in about 10 yrs. Unfortunately, the relief only lasts a few days, but it's well worth the reprieve! Cherie
This post is also close to my heart. Thanks Cherie for pointing out the benefits of the TENS.

My own DH has "popped" every disc in his lumbar spine, and lives with chronic sciatic pain. There are no medications that will ease his pain, but heat packs and the TENS machine do wonders. Thank you for bringing it up.
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Old 03-04-2008, 10:54 AM #19
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I don't know if Julie will find this helpful, but for other moms reading I did exactly the same thing for my own daughter. It helped ease the pain that she was having so much that she was finally able to get back to functioning normally.

We tried all sorts of pain meds, Koala, over a period of about a year. She spent most of two days every month in the sick bay at school during that time, and nothing seemed to be helping.

She is not sexually active yet, so I wasn't prepared for that option being offered to her. However, when I thought back to my teenage years, that is why I was initially put on it too. I didn't have pain (I have a really high tolerance though, so it's usually my mood that is the first sign I'm hurting 'somewhere'). I did get really bad PMS (depression), and my doc hoped it would help it . . . unfortunately, b/c and I didn't get along, like so many drugs I've tried.

Julie, I ended up on Celexa 5 - 10 days (initially) per month, to manage the PMS. Eventually I could cut it down to 3 - 5 days, and it worked wonderfully. Just something to consider if you find your moods are effected (by the pain or hormone changes).

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This post is also close to my heart. Thanks Cherie for pointing out the benefits of the TENS.

My own DH has "popped" every disc in his lumbar spine, and lives with chronic sciatic pain. There are no medications that will ease his pain, but heat packs and the TENS machine do wonders. Thank you for bringing it up.

I had gone to see a specialist to try to manage the sciatica, and we figured out that it was at it's worst just prior to my period. Apparently hormonal changes effect it too (something to do with blood thinning, I think). That is the only time it causes me problems now, but it was most of the month, to various degrees, for years prior.

TENS is a god-send! If things hadn't improved so much, I would have invested in my own personal TENS unit at home. It still requires that the person knows the right way to hook it up though, depending on the purpose, but I guess it comes with instructions. I just had it done at the physiotherapist, usually twice a week, and it was wonderful!!

Cherie
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Old 03-04-2008, 11:38 AM #20
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Ahem....what is "Tens Unit"???

Never heard of that one
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