Limbo check in 3/5

braingonebad · 03-07-2008, 04:55 PM

Quote:

Originally Posted by Jan4you

Hello and Oh Happy Daze~!!

I am going for my 2nd sleep study tonight, but this time will have the CPAP on in order to regulate how I will use it. Next I see this neuro to get my RX for it AND talk to him about what my Rheumy thinks it wrong.

The Rheumy does think these "episodes" I get are autonomic dysfunction, EXACTLY what I told my MS neuro's nurse last November when she called. She told the MS neuro called back and said he didnt think so.

Autonomic dysfuncton is a problem that can come from having lesions with MS. Hmmm...

BUT the other neuro thinks its Narcolepsy with cataplexy. I just dont buy it. My "episodes" aren't sudden nor do I ever sleep. I do get very weak but then my heart/bp and oxygen levels are going wild. I LOOK unconscious but can HEAR it all!! THATS why the Neuro thinks its cataplexy.

The diagnoistic train moves on... and on.... I am ok though. BUT I notice I stop breathing a lot during the day... so.. who knows?

Hope you all are improving, gettin relief or finding answeris..
Brain... how's your pain level?? relief yet?

luv you all ~!
Warmly Jan

I was just watching a Medical Mystery type show about narcolepsy/catoplexy. It affects everyone a little differently.

They showed a girl going into these episodes, where she could hear and see what was going on around her. She did tend to go into it quickly, but not all of them did. The older woman just kind of stopped moving. Nobody noticed for a few seconds anything was up with her, and her breathing/heartrate stopped to a point she woke up in a morgue!

She was pronounced dead!

Thewre is some brain chemical they are studying that seems to get shut off in these people when they have certain good emotions. Happiness, being excited, laughing, etc seem to shut them down.

Dogs who suffer from the same condition will lose control of their limbs when they eat or play vigorously. They quickly learn to lay down or they'll fall down.

If I find a link to the show, I'll pm it to you. They are testing txs for these people with something that is simialr to what their brain is not making - seems to be working.

Pretty bizarre, but interesting stuff.

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