advertisement
Reply
 
Thread Tools Display Modes
Old 03-14-2008, 10:25 AM #11
SandyC's Avatar
SandyC SandyC is offline
Wise Elder
 
Join Date: Jan 2008
Location: Somewhere over the rainbow
Posts: 9,227
15 yr Member
SandyC SandyC is offline
Wise Elder
SandyC's Avatar
 
Join Date: Jan 2008
Location: Somewhere over the rainbow
Posts: 9,227
15 yr Member
Default

Brenda, I know all too well how you feel. Jim and I cringe each time we hear Chris fall in the tub or complain about his knees. We know it's probably just damage, we pray that's all it is. However, this is the child who always fatigued easily, had the "growing pains" in his legs, now has trouble walking with his knees. His MRI was yesterday.

He knows the possibility is there about ms, we've always been open. I believe knowledge is very important. He said something to me the other day that mimicked his father 20 years ago. He said "Well, if I have something wrong like ms, I am going to play sports and do what I can for as long as I can." It took all I could to hold back the tears. It reminded me of the day back in June of 1988 when Jim came out and told me he had ms. He said those very words. The only difference was Jim had the dx.

I too say a silent prayer even though that annoying little voice inside fights my better judgement. I will say a prayer for your son as well.
__________________
. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt

Last edited by SandyC; 03-14-2008 at 03:17 PM.
SandyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
sassy (04-09-2008)

advertisement
Old 03-14-2008, 11:44 AM #12
Girlie Girl's Avatar
Girlie Girl Girlie Girl is offline
Member
 
Join Date: Jan 2008
Location: Massachusetts
Posts: 604
15 yr Member
Girlie Girl Girlie Girl is offline
Member
Girlie Girl's Avatar
 
Join Date: Jan 2008
Location: Massachusetts
Posts: 604
15 yr Member
Default

Quote:
Originally Posted by sassy View Post
I'd just soon be alone in this, I hate to see you other guys having the same worries. Our children will always be our babies no matter what.

My sister brought up another thought too. Diabetes type 2 runs in our family and he has been losing weight lately. She's bringing her glycometer over later and we'll check that out when he's over again. I'm thinking no on that but never know. He has been to the doctors quite a bit lately so you would think that has been checked there or in the hospital when he was there last month.

My prayers go out for the other parents here with worries about their children.
Sassy, HereKitty and Sandy,

I am hoping and praying that your children do not have to go through what we do. I agree with you Sassy that I would rather be alone in this than have my child or loved one be affected by this as well.

It is always in the back of my mind for my 11yo son. I have been having a rough week with sx and he has been complaining of his leg hurting. I know it is just growing pains but the thought is there....what if??

Take care all of you and take care of your babies...no matter how old they are, they will always be our babies.
__________________

.
Live, Laugh, Love
Girlie Girl is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
sassy (04-09-2008)
Old 03-14-2008, 11:56 AM #13
tante's Avatar
tante tante is offline
Member
 
Join Date: Jan 2008
Posts: 151
15 yr Member
tante tante is offline
Member
tante's Avatar
 
Join Date: Jan 2008
Posts: 151
15 yr Member
Default

Quote:
Originally Posted by snoodles View Post
He is now almost 30 and gets around like a much older man in spite of the fact that he is a good weight and fit. He hurts all over, all the time and you can tell he just doesn't feel well. He talks to me about how bad he feels and he does follow up with doctors but he continues to ache more every year. .

Snoodles, I am so sorry, I somehow missed this earlier and replied only re: Sassy's and herekitty's children. How rude and uncaring that must have seemed.

My apologies, and for you and everyone else who is watching and worrying, my thoughts are with you.

__________________
tante
tante is offline   Reply With QuoteReply With Quote
Old 03-14-2008, 12:00 PM #14
Kitty's Avatar
Kitty Kitty is offline
Wisest Elder Ever
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Kitty Kitty is offline
Wisest Elder Ever
Kitty's Avatar
 
Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
Default

Quote:
Originally Posted by snoodles View Post
I know this feeling well.
My daughter has always been lively and full of energy and the picture of health.

My son, has always been less blessed but still generally healthy - he had asthma and horrible allergies as a child and was sick a lot but the normal childhood things.

He is now almost 30 and gets around like a much older man in spite of the fact that he is a good weight and fit. He hurts all over, all the time and you can tell he just doesn't feel well. He talks to me about how bad he feels and he does follow up with doctors but he continues to ache more every year. Like Blessings - I want him to stay on top of things but don't want to scare him either. He just seems to be me all over again in terms of how his health is progressing though.... I just wish I could take all his aches and pains for him - fortunately - he has not, so far, mentioned any numbness anywhere.
It's so hard when our kids are sick or hurting. We just want to take it all ourselves so they can be spared. I'm praying for all of our kids. At least they have good Moms (us!!) who care and would do anything in the world for them.
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Kitty is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
sassy (04-09-2008)
Old 03-14-2008, 12:01 PM #15
Girlie Girl's Avatar
Girlie Girl Girlie Girl is offline
Member
 
Join Date: Jan 2008
Location: Massachusetts
Posts: 604
15 yr Member
Girlie Girl Girlie Girl is offline
Member
Girlie Girl's Avatar
 
Join Date: Jan 2008
Location: Massachusetts
Posts: 604
15 yr Member
Default

Quote:
Originally Posted by tante View Post

Snoodles, I am so sorry, I somehow missed this earlier and replied only re: Sassy's and herekitty's children. How rude and uncaring that must have seemed.

My apologies, and for you and everyone else who is watching and worrying, my thoughts are with you.

Snoodles, me too!!!! I apologize for not sending my thoughts out to you as well!!!! Oops!!!
__________________

.
Live, Laugh, Love
Girlie Girl is offline   Reply With QuoteReply With Quote
Old 03-14-2008, 01:14 PM #16
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default

My DD was DX at 33 with MS and it broke her Father's and My heart.. She had another attack at 34 and the Neuro wanted her on one of the DMDs.

She refused and went on 4.5mg LDN, like her Mommy and hasn't had any signs of MS since. She is now 37 and still in remission, due to LDN, I believe.

Get your Kids some LDN, as a Precaution, if nothing else. At this early date, it may stop the disease????

My heart goes out to you All..
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Twinkletoes (03-15-2008)
Old 03-14-2008, 09:47 PM #17
eduzit's Avatar
eduzit eduzit is offline
New Member
 
Join Date: Feb 2008
Location: Carson, CA
Posts: 5
15 yr Member
eduzit eduzit is offline
New Member
eduzit's Avatar
 
Join Date: Feb 2008
Location: Carson, CA
Posts: 5
15 yr Member
Default

I'm with all of you on this I have to kids and when they mention anything like tingling or numbness I start to get really anxious. I pray that they never have to go through this.
eduzit is offline   Reply With QuoteReply With Quote
Old 03-15-2008, 11:48 AM #18
ewizabeth's Avatar
ewizabeth ewizabeth is offline
Elder
 
Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
15 yr Member
ewizabeth ewizabeth is offline
Elder
ewizabeth's Avatar
 
Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
15 yr Member
Default

Oh I'm sorry so many of you are going through this. We have two sons in their 20's and I hope and pray they never get MS. I'm also very watchful of their health and I feel panicked if they stumble going up the stairs or fumble their words or something.

They're both sleepers, needing lots of it, and I worry about the tiniest things that could possibly be MS.

I'll keep all of our children in our prayers.
__________________
Wiz

Turn Left at the next election.
.


RRMS DX 01/28/03 Started Copaxone again on 12/09/09
ewizabeth is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SandyC (03-15-2008), sassy (04-09-2008), Twinkletoes (03-15-2008)
Old 03-15-2008, 12:36 PM #19
Chris's Avatar
Chris Chris is offline
Member
 
Join Date: Aug 2006
Location: Georgia
Posts: 975
15 yr Member
Chris Chris is offline
Member
Chris's Avatar
 
Join Date: Aug 2006
Location: Georgia
Posts: 975
15 yr Member
Default

To all of you who are suffering through the "ifs and maybes" of this bloody disease, my goes out to you. I will keep you in my thoughts and prayers.
__________________
"I didn't know he was dead; I thought he was British"
Woody Allen

.
Chris is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SandyC (03-15-2008), sassy (04-09-2008)
Old 03-15-2008, 01:31 PM #20
Victorya Victorya is offline
Member
 
Join Date: Jan 2008
Location: Los Gatos, CA
Posts: 187
15 yr Member
Victorya Victorya is offline
Member
 
Join Date: Jan 2008
Location: Los Gatos, CA
Posts: 187
15 yr Member
Default

I know what you're all feeling. And my heart goes out to you.

But don't panic until you need to.

A few years back, my son (he was 23-24 years old at the time) called me and said he went to the doctor because his hand was numb. So numb in fact, he was having problems using his hand, picking things up, typing. The doctor was sending him to a neurologist. How long had it been numb?? Uhm, about two months, he said. TWO MONTHS??!!!

I got off the phone, and turned to my husband. I started to cry. Jon's hand and forearm have been numb for two months. He's being referred to a neuro! HE HAS MS!!!

IT'S MY FAULT!!! I gave my baby MS!!

Jump ahead a couple of months. It turned out he had a lipoma (fatty tumor) that was growing on a nerve in his forearm (they are common in our family) which was causing his arm and hand to go go numb.

In a 40 minute outpatient surgery, the lipoma was removed and after sufficient healing time he was as good as new. The numbness was gone and he had complete use of his hand.

Now, I don't mean to belittle your son's symptoms or to tell you that you don't have any right to worry...you are MOMs, of course you have every right to worry...but don't worry about MS until you know it's MS.

There are many things it COULD be. Many so much better than MS...and some much worse. But because we HAVE MS, and we dont really know about all of the other things...the first things we think of IS MS.

Warm wishes to every one out there with a child (no matter how old) having any kind of health problems.
__________________
~Victorya~
------------------------------------------
Spring 2002/present - Double Vision
Feb./Dec. 2004 - Optic Neuritis
Dec. 17,2004 - Diagnosed RRMS
Feb. 9, 2005 - First Rebif injection
Mar. 7, 2006 - "Copaxonator"
------------------------------------------
Victorya is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitty (03-16-2008), SandyC (03-15-2008)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
ALS mentioned on Ghost Whisper (the series) JAH39 ALS 0 01-05-2007 09:08 PM
Since Johnny Cash was mentioned-- glenntaj Peripheral Neuropathy 16 12-29-2006 05:22 PM


All times are GMT -5. The time now is 01:02 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.