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Old 04-05-2008, 06:48 PM #31
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What about in the longer run, Cheryl? Tim (one of the first advocates and volunteers) had PPMS, didn't he, and he seemed to do really well.

Cherie
He was in the initial testing and I think Tim could answer that a lot better than me.

The trials now are designed for RRMS and CIS as the protocol is approved by the FDA.

As for the longer run, I have no idea. I am just a lab rat...I know nothing...absolutely nothing...seriously. I am not trying to evade your question Cherie. I truly know nothing!
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Old 04-05-2008, 08:01 PM #32
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He was in the initial testing and I think Tim could answer that a lot better than me.

The trials now are designed for RRMS and CIS as the protocol is approved by the FDA.

As for the longer run, I have no idea. I am just a lab rat...I know nothing...absolutely nothing...seriously. I am not trying to evade your question Cherie. I truly know nothing!



I haven't seen Tim around in a couple of years, I don't think. Do you know if he still out and about on the forums?

It's probably the same as all drugs/meds, where people with SPMS and PPMS end up trying it eventually, even without trials backing it. Why not, eh?

I like that someone with PPMS has tried it and he seems to have had considerable success though. It's all good.

Cherie
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Old 04-05-2008, 08:17 PM #33
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I haven't seen Tim around in a couple of years, I don't think. Do you know if he still out and about on the forums?

It's probably the same as all drugs/meds, where people with SPMS and PPMS end up trying it eventually, even without trials backing it. Why not, eh?

I like that someone with PPMS has tried it and he seems to have had considerable success though. It's all good.

Cherie
I thought he was still posting on thisisms, but maybe not.
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Old 04-08-2008, 11:33 PM #34
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I haven't seen Tim around in a couple of years, I don't think. Do you know if he still out and about on the forums?

It's probably the same as all drugs/meds, where people with SPMS and PPMS end up trying it eventually, even without trials backing it. Why not, eh?

I like that someone with PPMS has tried it and he seems to have had considerable success though. It's all good.

Cherie
I heard from Tim he is not PPMS. He did have 1 CD-8 cell in his MRTC set, and CD-8 T-cells are usually associated with PPMS. Since his study had both RRMS and SPMS, how he was classified didn't matter.

I hope that answers your question.
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Old 04-09-2008, 12:08 AM #35
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I heard from Tim he is not PPMS. He did have 1 CD-8 cell in his MRTC set, and CD-8 T-cells are usually associated with PPMS. Since his study had both RRMS and SPMS, how he was classified didn't matter.

I hope that answers your question.

Thanks a lot, Cheryl. He was quite disabled when he started, and saw considerable improvement. Hopefully it wasn't just the "remitting" stage then . . . and was indeed due to the treatment.

I have my fingers and toes crossed on this trial.

(I haven't been looking over at that site in years . . . maybe I'll have a look if he is still updating.)

Cherie
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