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Old 04-10-2008, 03:09 PM #51
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Some minds think alike - I was just writing about taking omeprazole for acid reflux twice daily when your post popped up - solved most of the acid reflux problem - never liked waking up at night trying to breath and having stomach fluid (nice way of putting it I think) in my lungs and up my nose - although it still happens on occasion - feels like you're dying - I did do steroids three times and I know now that they can be hard on your esophagus and stomach -

I did have a whatever you call it with a camera down my throat and they found a had a small moveable hiatal hernia which might explain some of my feelings of pressure but no scaring from the prednisone or fosamax - am also having some nausea and I think it might have something to do with my eyes - oh great - so at appt end of April I'll have some new questions -

Won't it be nice to have an answer to one of our questions someday -
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Old 04-10-2008, 04:28 PM #52
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Quote:
Originally Posted by weegot5kiz View Post
yes the thread has turned
Well, here's another turn. I was going to post this in my urodynamics thread but based on what we all have talked about I felt it was more appropriate here.

Today was my kidney ultrasound. I got a tech that I know from working at the hospital as well as her doing an pelvic ultrasound a few years ago. Well, we got to talking and she asked why I was having this done. I told her MS. She said she was wondering because most of her neurogenic bowel and bladder patients are in wheelchairs, using walkers, or need assistance.

Well, I started explain to her some of the issues I was having and that these were baseline tests. Then she started telling me that she has some sort of autoimmune disease and takes 3 different anti inflammatory. She went to the dr for her yearly physicial and was explaining to him that her urine smells funny. So they did a urine test and she had a UTI. She was surprised as she didn't feel anything at all. Her dr said, logically, that because of all the pain meds she wouldn't have felt anything and wouldn't have run a fever.

Why am I telling you this? Well, we have talked about infections and exacerbations that can start because of an infection. UTI's are common in MSers that have a neurogenic bladder. The pain meds can mask that. Be aware of your daily habits and should something change call the dr so that you can be tested and treated and not end up having an increase in symptoms.

I care about my NT family.
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Old 04-10-2008, 05:24 PM #53
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Quote:
Originally Posted by lady_express_44 View Post
Is your hug (sometimes or always) accompanied by numbness/skin sensations too? I used to describe the sensations as like having a 6 or 8 inch elastic belt or band, stretched to the max, wrapped around my middle, and released so that it is squeezing my skin (and everything else).

Honestly, this isn't that common, but your neuro should recognize what it is.
"should" being the operative word there, Cherie!

in 1992, I had my first date with the MS Hug.

it was JUST like you described, a wide BELT around my waist, tight, and squeezing me.

except... it was only 2 inches wide, not 6 to 8.

my neuro said it was Guillian Barre, and was prepared to immediately admit me to the hospital, as he said it (the squeezing) could RISE to my chest, and make me unable to breathe, and I'd have to be put on a ventilator, ASAP, or I could DIE...

http://www.emedicinehealth.com/guill...ome%20Symptoms

he had me FREAKED out, totally!

so, I was actually RELIEVED to get a second opinion, and the MS Dx.

I have been getting "acid reflux" at the drop of a hat lately, and always keep a bottle of TUMS on the nightstand, for when it wakes me up with burpy burning.
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Old 04-10-2008, 10:01 PM #54
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Kay - I am so relieved for you. How scary! Especially with little ones at home.

My "band" starts at 2 or so inches and then as it comes towards the front of my ribcage it widens.

Funny how some of us are actually relieved by the diagnosis of MS. They thought I had a nerve tumor. Then I was diagnosed with MS a few months later. Was I relieved, yes.
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Old 04-10-2008, 11:06 PM #55
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weird, as deb and I sat for two days in hospital waiting for mri results, 2 separate mri results that should take no more than 2-3 hrs and now going on 2 days, we began to fret about brain tumors or cancer and other horrid inoperable things and thoughts, and as stupid as it sounds, yes after all those fears running the gamut for two days, ms was the lesser of those other evils, although in long run had i in fact been crazy i could be out on street well medicated and on my way but then tat is not always a given either so what i got is what i got and what i Will deal with is what i will deal with
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