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#21 | |||
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Grand Magnate
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Yes, PwMS often suffer from peripheral nerve damage too, Debbie . . . but it is caused by a process that is going on from within our central nervous system (MS lesions). PN can be a stand alone condition, or as a result of various other conditions: http://www.ninds.nih.gov/disorders/p...neuropathy.htm Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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"Thanks for this!" says: |
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#22 | |||
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Elder
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if you got to the PN forum and read about PN, you will get a much clearer definition about PN. It's a disorder that affects the all the nerves except those of the brain and the spinal cord. "periphery" those on the outside...it's interesting reading. From WebMD Quote:
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Cheryl Dx: MS 2001 CRPS 2009 “When everything seems to be going against you, remember that the airplane takes off against the wind, not with it.” - Henry Ford |
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#23 | |||
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Grand Magnate
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The brain and spinal cord (CNS) are the "orchestrators", and our PN nerves are part of the "band". In PwMS, our "orchestrator" is messed up (lesions), so the band just does not play the song properly.
Sometimes though, just part of the band (PN) doesn't cooperate, even with a good orchestrator (CNS). Here's a good link on the different nervous system: http://webschoolsolutions.com/patts/systems/nervous.htm Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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"Thanks for this!" says: |
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#24 | |||
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Wise Elder
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Cheryl, have a good day and don't let others bother you. Your momma is #1 and that is what should be focused on. Family can be such a pain that you want to wring their neck. Save that for when Mom isn't looking! lol
Honestly, at this point let him chatter. It isn't worth the stress or aggravation. Some people just think they know it all and you can't change that. You've been through enough. Hugs to you and your family.
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. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt |
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"Thanks for this!" says: | tovaxin_lab_rat (04-09-2008) |
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#25 | |||
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Wise Elder
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I want to go to lunch with you! LOL. Sandy is right, maybe try to keep the focus on Mom where it belongs right now. Should he try to change the subject, redirect the conversation to Mom, family, and lighthearted things.
It would be a great time to take a trip down memory lane. It is fun to get our parents take on things now that we are older. Good luck today! |
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"Thanks for this!" says: | tovaxin_lab_rat (04-09-2008) |
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#26 | |||
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Legendary
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Good for you, FG!!! Don't let anyone shift the focus from what's BEST for your Mom to anything else. You just keep your level head and don't forget to let us know how Mom is doing.
Sending hugs to you, my friend! ![]() ![]() ![]() ![]()
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DM . |
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"Thanks for this!" says: | tovaxin_lab_rat (04-09-2008) |
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#27 | |||
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In Remembrance
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Yes PN is not a form of MS, although MS may cause PN.
I know someone with both PN, MS and Diabetis and they are all separate illnesses and yet intermingle, somehow. Maybe her Doc is thinking possible MS, but DXed her with PN?? Take care with your mommy, Cheryl. ![]()
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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"Thanks for this!" says: | tovaxin_lab_rat (04-09-2008) |
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#28 | |||
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Elder
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Cheryl,
It sounds like he has his terms all mixed up. He probably caught little scraps of information that the Mayo-trained neuro said and translated it in his own way. ![]() ![]() I'm glad you set him straight. I've been thinking about you, hoping you're managing ok while visiting your dear Mom. Take care of yourself and tune the bothersome relatives out if you can. ![]()
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Wiz Turn Left at the next election. . RRMS DX 01/28/03 Started Copaxone again on 12/09/09 |
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"Thanks for this!" says: | tovaxin_lab_rat (04-09-2008) |
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#29 | |||
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Magnate
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Flygirlie!
Get the paper and whack him with it. ![]() I am sorry to hear that you had to come out of the closet. Did you come all the way out or just stick out your neck? ![]() Having to deal with a parent's illness is ALWAYS a stressful thing, from beginning to end, and you don't need this carp on top of what you are dealing with. I'm holding you in my prayers, along with Mom. Please try not to stress out too much ( I know that will be hard!) and do the job you planned to do while you are there. I'm here if you need to talk, yell, blow off steam, etc. I am off until Sun. night, so call if you want! ![]()
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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"Thanks for this!" says: | tovaxin_lab_rat (04-09-2008) |
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#30 | |||
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Member
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Well, darn, I missed lunch! Let us know how it went!! Hopefully not too stressful. Prayers for you and your Mom!
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Marcia . . |
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"Thanks for this!" says: | tovaxin_lab_rat (04-09-2008) |
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