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Old 04-12-2008, 04:25 PM #2
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
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15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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I have pain with the spasticity. It's like living on the edge of a charley horse or a cramp when it's not bad, and it IS the full cramp when it is bad!

When I have the leg pain, I am scared to bend my leg because I am afraid it will go into the full cramp and stay there for days! There are times that pain is there for days, and then it will just disappear, as if the muscle just relaxed all at once. The hands - same thing. I will be steering my car and have to take one hand or the other off the wheel and stretch it out and massage it to try to relieve the "edge of cramp" feeling. I have to stretch my hands all the time when I am typing.

I have spasticity in both legs and both hands,and sometimes in my trunk area. I used to call the abdominal ones "lifejacket cramps" thinking I had my lifejacket cinched down too tight. I still get them now and I don't have the lifejacket on! I guess it could also be called the MS hug when it's abdominal, but whatever it is, the Baclofen helps! I'm on a minimal dose daily ( 10 mg TID) and I take tizanidine at bedtime for the night spazz. I just increase the Baclofen dose when it's really bad and go back to my usual dose when it goes away.

( my doc knows this and agrees with my increasing the dose. He says I know my body better than he does, so go ahead and increase when needed and taper back when it's over.)
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.
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