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Old 04-15-2008, 10:19 AM #5
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CayoKay CayoKay is offline
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CayoKay CayoKay is offline
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Join Date: Jan 2008
Location: Belize
Posts: 2,508
15 yr Member
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there weren't any online groups (that I could find) back when this whole MSss started for me.

and yes, seeing people in W/Cs frightened the HECK outta me.

my support group (in rural California) met only once monthly, and the people were all at such varying stages and forms that sometimes it was HARD to see what we had in common.

then, our group leader went through a divorce, a nasty relapse, and then moved away, and there was nobody willing take it over... so I did it for a couple of years.

my main function was supplying a listening ear, and making information pamphlets available, and lugging around our library of books for folks to check out.

I arranged monthly speakers, or sessions on particular issues or symptoms, and it was educational and friendly.

I turned the group over to someone else when I relapsed, and wasn't able to give it my full interest and attention and energy.

but if I had EVER gotten to the point of that guy, Beauty?

where I was *talking* and not listening, or so cog-foggy that I couldn't remember someone's NAME, well then, I would've stopped doing it for SURE.

oh, and Beauty?

FIGHT it, with all your MIGHT, never give in to the MS, never back off, just make little necessary adjustments along the way, and you'll do fine.

in solidarity, Kay.

PS: you are doing well, kiddo, keep it up!
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