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Old 04-23-2008, 06:58 AM #1
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Originally Posted by joellelee2000 View Post
I called my mom at the hospita yesterday morning. She's decided to halt all treatments. She has fluid in her lungs and around her heart, a c-diff infection, massive sweling in her legs, and a lot of pain. I totally support her decision as do the rest of the family. I'm still a 1000 miles away from her because I have to be here for my dh and drive my son to the gastro tomorrow. I'm really scared that I won't get to see my mom again. I wish I had known before I left Pittsburgh that it would probably have been the last time we'd be together. I'm very worried about my dad. They've been married for 44 years. I can tell over the phone how despondent he is, which is perfectly natural. I wish I could be there for him too. OMG this is just so surreal to me. I feel like a mouse on one of those stupid wheels. Running in place and getting nowhere fast. Sorry agan guys. I hope to be back to my silly self some day .
Joelle I'm so sorry to hear about your Mom's latest problems...I know how hard it must be to be far away and not be able to visit whenever you'd like to. Sounds like you're being pulled in umpteen different directions and it's totally understandable to feel overwhelmed and stressed. One suggestion for your Dad (and you, too) is to go ahead and contact Hospice. They can be of so much help to ya'll long before you're ever to the point of needing them for other services. They are truly a blessing and helped me out immeasurably when my Dad was sick. I was the primary caregiver for him and they are available for the whole family - not just the ill person.

How's Tim doing? Any better? I hope he's getting stronger each day and can be of some help to you before too long.

You're due for a break and I've been praying for you and your family each and every day. Call me if you need to talk - I've not wanted to bother you 'cause I know you have precious little time to rest. I'm glad to see you posting again......
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Old 04-23-2008, 07:10 AM #2
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Joelle no need to apologize! I am so sorry for everything you are going through! Just know that you and your whole family are in my thoughts. I pray for strength for all of you during this difficult time! It must be difficult not being there for mom and dad. Take care of yourself too!
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Old 04-23-2008, 07:22 AM #3
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Thanks again all! Tim is not doing very well . He's running a low grade fever and is feeling very nauseated from the meds he's on. All three meds have nausea as a side effect but they are the most effective for treating his type of Crohn's. He may just have to go through an adjustment period with the meds. I told him 'welcome to my world' LOL. He did not find that amusing, teehee. Oh, I forgot to mention that I hardly ever drive because I'm just a bit cog foggy, I still drive better than most of the idiots in South Florida though, LOL. I really don't have anybody else to do the driving right now. I gotta get my men to the doctor somehow. I'll just turn on the old gps (a life saver by the way) and go!
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Old 04-23-2008, 07:58 AM #4
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Please be careful....do what I do and take the back roads! I know every alternate route to all the places I need to go! Maybe you could just put your flashers on while driving - at least people will know you're going slow for a reason and will be patient.
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Old 04-23-2008, 11:16 AM #5
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Originally Posted by joellelee2000 View Post
Thanks again all! Tim is not doing very well . He's running a low grade fever and is feeling very nauseated from the meds he's on. All three meds have nausea as a side effect but they are the most effective for treating his type of Crohn's. He may just have to go through an adjustment period with the meds. I told him 'welcome to my world' LOL. He did not find that amusing, teehee. Oh, I forgot to mention that I hardly ever drive because I'm just a bit cog foggy, I still drive better than most of the idiots in South Florida though, LOL. I really don't have anybody else to do the driving right now. I gotta get my men to the doctor somehow. I'll just turn on the old gps (a life saver by the way) and go!
I know what you mean when you make comments like that to the guys! Mine has NO sense of humor whatsoever when it comes to being sick or having any sort of medical problem. I live with the stuff every day and when he has anything that even resembles an ache or pain and complains I just look at him and say, oh gee...I have that ALL THE TIME... and he has no come back...

GPS is great Joelle...I use mine all the time, never leave home with out it anymore! I gotta admit, it was probably the best gift I ever got from PODH...finally something useful!!!
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