Originally Posted by weegot5kiz

i dont think waiting is even a possiblity, i worry about my kids too and understand the over protective part of it, but like you said, being dx'ed is a long drawn out process, and yeah the docs do tend to blame us for being nuts or making it up, so i would say the sooner you get her tested, the sooner you can either rule out certain neuro illnesses or unfortunately rule one in, your daughter and you are in my prayers and thoughts, hang in there mom

Originally Posted by dshesq

My neuro's nurse (after 20 years of dealing with MS patients, she's really good with reality checks and the info she has on MS) returned my call yesterday and said that we should start with a work-up by her doctor (pediatrician specializing in adolescents) and see where to go from there. Winnie (the nurse) told me that they could do a full neuro work-up on her ASAP after that if it seemed to be warranted.

My heightened sensitivity to her symptoms was validated by the nurse. While she didn't want me dragging my daughter immediately upon having a strange symptom, she did agree that it's wise to be tuned in to those symptoms because a dx and treatment early in the disease process (if it's there) substantially improves the prognosis.

Now I just have to figure out when I can get her to the doctor . . . being 18, one month from high school graduation, working and playing soccer doesn't leave much time for things like doctor's appointments!