[cat265]

I was just wondering if anyone here had an MRI that said the leasions were not in the typical place for MS? Is there a typical place?

[Jensequitur]

Originally Posted by cat265

I was just wondering if anyone here had an MRI that said the leasions were not in the typical place for MS? Is there a typical place?

I have a lesion in the rt cerebellum, which is a little unusual. Most people have them in the periventricular area, or in the corpus callosum.

[braingonebad]

And I trust your word Jen, because I know you to be knowledgeable. Yet I was told by a previous neuro that my lesions were not in a typical area, and they're periventricular.

I looked it up on NMSS and found that the neuro was incorrect, this was a typical location. That was part of the reason he became a prior neuro.

[lady_express_44]

"Lesions" is just a generic word for "damage", and not necessarily just damage to the brain. People use the word lesions to describe open wounds sometimes.

Attached is a link to "demyelinating diseases", which describes the various locations of lesions, based on the condition. There is a fair bit of info on MS lesions in this document.

http://spinwarp.ucsd.edu/NeuroWeb/Text/br-840.htm

They are looking for the right size/shape and location of lesions for MS, either in the brain, T or C spine (or all of the above, in my case ).

Cherie

[TheSleeper]

Cat, my first mri report had a lot of maybes on it, also a notation " given the location a demyelinating disease is not entirely excluded ".

This meant exactly jack to my first 2 neuros, even after lesions were found on the c-spine with a notation " consistent with a demyelinating process such as MS ".

A good neuro is going to do the needed testing to dx it or excluded it and find the true cause. Sometimes a passage of time is needed to confirm.

[Erin524]

My brain MRI said that I had little white "spots", but that they were not the typical size or shape and that they were not in an area typical of MS.

I was surprised four months later when I had my spinal MRI's (my regular doctor wanted to see if I had any degenerative disk disease since I was having a lot of back pain) and that's when they found the 2 lesions in my spine. (I'd asked the doctor to order some contrast just so we could check for MS since I was in the MRI machine anyways.)

[thav1]

Yes..I have 11 not in the "typical" place.

[cat265]

Thanks for all the comments. I had an MRI of brain and cervical spine. The Brain reads like this. Non-enhancing subortical and deep white matter punctuate hymperintensities in both cerebral hemispheres, a non-specific finding with the fifferential diagnosis tha includes MS buth MR findings are not pathognomonic of MS??????
The c-spine: degenerative disc disease with bulging disc annulus at C6-C7 No evidence of demyelinating plaque in cervial cord .

I also had a lumbar puncture which was normal. Iam just tying to wrap my bain around this. I feel like crap but all the docotrs can not come up with a diagnosis. BTW this all started witha b12 defiency.

[hjmom]

Yes, my MRI said the lesion/lesions was not in a typical place. The main one mentioned was one in the frontal lobe. It was active at the time, I had two other small old ones that I don't remember where they were because they were barely mentioned on the report.

[hollym]

I'm atypical, too. The neuro says it is definitely demyelinating, but not typical of MS. That is why my dx is CNS Demyelinating Disease - he also calls it atypical MS. I have been told that my particular lesions can be seen in MS, but it is the lack of other more typical lesions that is confusing my case.

So, I have lesions that are seen in people with MS, sx and neuro exam seen in people with MS, some amount of permanent damage, but I'm still a mystery. At lease my neuro treats my sx and has done pulse IVSM which really helped with a lot of the disability I had. A lot of people with less than typical results get dismissed completely.