[tamiloo]

Sorry so long...Need/Support, some help from all you fellow MSers…my Olhipie is having a very bad day. I think most of his days are bad he just won’t admit it. Yesterday he didn’t function very well and even eating tired him. he fell asleep on the couch about 8:30is.

Today I just tried getting him up to shower and he was in the bathroom and was very confused…confusion is somewhat of a norm for him but this was more than the norm. He had rinsed his bed-bag out and had not put a plug in his catheter and when I got out of the shower he had the funnel to plug the cath with. He felt so bad and stupid. I asked the same question I always ask….did you do it on purpose, he said no. Then I told him that it wasn’t his fault. I told him that I wasn’t going to shower him because he was too weary. I put the bed bag back on him and put in back in back after I put clean under garments on him.

He felt so bad going back to bed. He told me he felt lazy…he beats himself up when he has a bad day and he needs to go back to bed. Everyday I get him up and dressed for the day and he follows me around all day. Before putting him to bed he said, I just don’t want anyone to think I’m lazy…I told him that anyone that knows and loves him will know he is having a bad day and be concerned because he isn’t at the helm.

So he is resting…I don’t know for how long…as far as I’m concerned he can rest all day…time for a chocolate shake…Dairy Queen here I come…

He needs to know that where he is with his MS right now…22 plus years…that there will be days spent doing nothing. I love him and don’t want him thinking so badly of himself. Some days he has a hard time dealing with his MS as if he had just been diagnosed...I love him so much...don't want him to feel bad!!