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#1 | |||
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Grand Magnate
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How long are you into this relapse, yb?
I have been paralyzed; numb in just the face/mouth/tongue; numb from head to toe; numb just on the right side; and numb just in the lower 2/3. Every time, no matter how much (or little) numbness I had, I was scared. A couple of times I was sure I just wasn't going to come out of it "this time", cause it didn't follow the same pattern. Normally, it takes 10 - 12 weeks to escalate (6 weeks) and recover (6 weeks). . . BUT then sometimes, within a few weeks of completing that recovery, it starts all over again somewhere else for another 10 - 12 weeks. I have learned to rest, pace myself, treat fever and infections . . . and WAIT for that 12 weeks to be over to guage how much I will recover. I have been left with very little permanent damage each time, and I hope you have the same luck. Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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#2 | |||
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Wise Elder
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Good to hear your still feeling well Char. When Jim did steroids he felt good for a while but some symptoms are just symptoms and go away in time. Some may stay but as RW said, you adapt to them. And yes, close those eyes and see the dream you have. Open them and see you are loved and respected by many here.
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. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt |
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"Thanks for this!" says: | Victor H (05-09-2008) |
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#3 | |||
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Senior Member
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Char I just hope the steroids continue their job and you get better and better every day! You're strong and will come out on top of this! And, as Cindy said, you are LOVED!!!
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[[ ABBA Free Zone ]] . Rob Thomas, beautiful, beautiful, beautiful man! . . |
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#4 | |||
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Legendary
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Chalk up another you are respected and loved from me!!!
Hope you continue to improve Char. This Winter has kicked your tail, so keep smiling and let your wonderful, loving spirit shine through. I do remember the oral roids making my taste buds goofy too. Oh and RW~~ glad the Ty is helping. Sometimes we have no where to go but, up.... Well, I do, your'e already up there RW!! Can I have a couple of your inches???? *standing on Tippy toes and grinning* ![]()
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DM . |
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#5 | |||
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Magnate
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Quote:
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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"Thanks for this!" says: | AfterMyNap (05-09-2008), SallyC (05-10-2008) |
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#6 | |||
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Magnate
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thank You eveyone. was having a bad emotional morning but things are fine this morning. Sorry for feeling sorry for myself, I personally hate it when I do it.
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Tough Times Don't Last ~ Tough People Do Courage is doing what you're afraid to do. There can be NO courage unless you're scared.
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#7 | |||
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Wise Elder
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Char? Are you apologizing for being human???
![]() I'm glad you're feeling a little better. ![]()
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—Cindy For every day I choose to play, I set aside a day to pay. —AMN "Sometimes plastic wrap just won't cling, no matter how much money you put in the meter." —From the Book of True Wizdom |
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Thread | Forum | |||
No steroids for me. :( | Multiple Sclerosis | |||
Finished Class | The Stumble Inn | |||
How much STEROIDS? | Multiple Sclerosis |