Hi Mishi....Welcome. I'm so sorry for your MS DX, but glad you found us. You will find our bunch a very welcoming fun lot of people.

We are Family and if you want, you are now a member. Come back and talk to us....don't be shy, join in anywhere.:)

:grouphug:

Another Newbie...
 

Hi all:

I was diagnosed with MS a little over a year ago. I'm a 30 year old woman, but as of late, I feel more like I'm 60! I'm still trying to get a handle on all of this; I'm confident that I can.

I'll poke around on here and see what I can learn from all of you.

All Best,

AaHaA

Welcome to NeuroTalk, AaHaA. Glad to have you here. Pull up a chair and stay awhile.:)

I am a 60something year old, so I can tell you how it feels..LOL!

http://i489.photobucket.com/albums/r...fulFishies.gif

Hi AaHaA, and welcome to NeuroTalk! This is a great place to come to with lots of friendly and helpful people.

I have MS, and this is mostly where I hang out. There is also The Stumble Inn for non-MS posts and games that are fun and help take your mind off your problems for awhile. Hope to see you around.:)

New member
 

Hello everyone,

I have not been diagnosed with MS as yet, but am due to see a neurologist in the next few weeks. I have had 2 MRI scans in the past, both of which were on the brain, (1996 and 2003) but came back OK. This time round, I am getting more neurological symptoms which do not appear to be abating.

I know no one other than a neurologist can diagnose me after the appropriate tests, but can anyone comment on the list of symptoms that I have, especially those with a *
*Temporary blindness, after increasing blurred vision (resolved after about 20-30 seconds)
Numbness in legs, right hand and arm
Slurred speech/hesitancy in speech/can't find right word
Burning/pins and needles
*Pinging electrical sensation down spine
*Sensation like someone is unzipping my spine?
*Inflamed back
Stiffness in legs on walking and worsening when hot and stayed in bath too long
*Groin pain
Tremor in hands
Limbs feel very heavy, even after a short walk
Sensory neural hearing loss
Tinnitus
Vertigo and nystagmus
Balance problems
Dizzy/giddy spells
Tingling in lips
*Had drooping left eye lid in 2003 and unequal pupils (went away within a month or so), this is also when I lost my hearing in my left ear, but had mild hearing loss prior to that
Arthritic fingers and one lump on right middle finger and ganglion on wrist?
Swollen glands behind the ears that appear to be up most of the time....
Feeling of my chest tightening, which does not appear to respond to my asthma inhalers

I already have degenerative discs in the c region and lordosis...

I was previously diagnosed with ME in 1993, but had neurological symptoms from the outset and now beginning to wonder if this was right. The pattern was relapse/remitting, but neurological symptoms are much worse now...

Sorry to go on and on...

Regards Maroc Orange

Welcome to our little corner of the world, Maroc..:)

I'm not a Doc but, I hereby deem you as most likely having MS or something similar.:D

Some Neuros wait to give a formal DX of MS, until 16 zillion tests are positive....but, that's just it, there is no positive test for MS.

Hang in there and hang with us. We are helping each other through this carp, one day at a time. In the meantime, make sure your Neuro or PCP properly treats your symptoms.

Again, Welcome and I hope you like it here.:hug:

http://i489.photobucket.com/albums/r...me-bug-ag1.gif

Hi MO, and welcome to NeuroTalk! :Wave-Hello: This is a great forum, I come here myself quite a bit. There are lots of friendly and helpful people here, and before long you feel like you fit right in. :)

My advice to you is to keep a journal, if you haven't started one already. I keep one with all doctor visits (not just neuro), questions, tests, answers, lab work, and meds. It makes every visit so much easier if you have everything written down and in one place.

I'm looking forward to seeing more of your posts. :hug:

Hey, .. some of you may remember me,

After approx 2 years of going really well, I was set majorly back by a nasty flu in about Feb this year, it left me fairly weak in the legs and bought back on my anxiety and memory problems.

So I'm back researching stuff .. I've kinda been through hell and back with other stuff since I was on MSWorld (my main hangout...account has since been removed upon my request)

So to all my old buddies, hi :) And drop me a PM if you'd like! Id love to know how you're all going.

:Wave-Hello: Hello, PhireX and :welcome_sign: to NeuroTalk.

I'm sure you have already seen many usernames that are familiar.

I remember reading about you and another board member. I hope it's going well ;) Why not start a thread and tell us all the latest news, good or bad.

I'm sorry you had the flu. It's recommended we get the flu shot, I wish you would have gotten one :(

I do remember you...nice to see you here.....:)

I've actually been travelling the US .. been to CA --> MS --> TN --> PA --> NY --> Canada (TO) --> LA now I'm in hollywood!! w00t!!

The US is cool but it has its quirks. Australia is still where my heart is :)

Hi Phi, nice to see you here. I hope you stick around and tell us all about your travels and other things..:hug:

:Wave-Hello: Hiya PhireX and welcome to NT!

Good to see you again!

This is a great board and I think you will feel right at home!

Sorry to hear about your bout with the flu and the results of it. I'm a firm believer in the flu shot!

Hi...I have rrs MS, I was just Dx's in 2005. I am 59 and the V.A. is sure I have had MS for many years. It made sense to some of my appearing then disappearing symptoms. Thanks to a MRI a 'involved' PA did we now have answers to many questions. I have other autoimmune diseases too.

I love the sense of Humor here..it is like mine 'different' and hilarious!

Huggles from Texas

Welcome to NeuroTalk, Ting, nice to meet you.:).. It sounds like you are going to fit right in. Pull up a soft cusion a join us.

This thread is sometimes neglected, but that doesn't mean we don't like you. It just means that we forget to look here..:o

Again, welcome home, Ting..:hug:

http://i489.photobucket.com/albums/r...fulFishies.gif

Hi ting, and a warm welcome to you! :Wave-Hello: This MS forum is awesome, and do check out The Stumble Inn also. You will find so many interesting, kind, sweet and caring people here! :)

I have MS, and this is where I mostly hang out. Hope to see you around. :)

Hi! My name is Gerry and have SPMS. I was diagnosed in San Antonio, TX in 2002. My first symptoms happen in 1996, though. Weird! I'm married to my great wife Janet, and have one son. I'm new to all this, so excuse shiness. :D

Welcome, Gerry, nice to meet you..:) This is a great place. Please don't be shy, just join right in anywhere....we were all newbys at one time and there are many newbys here.

It's a good place to find out all you ever didn't want to know about MS.

Be sure to visit our Stumble Inn, where we talk about almost anything and have a little fun.

Welcome to the family..:hug:

Hi there all you newbies! I forget to look at this thread sometimes.....I forget alot of things so that's nothing new!! :o

Don't forget to visit The Stumble Inn, too. It's a place where MSer's can go and talk about things other than MS. It's a nice change of pace.

Glad to see you all here! I look forward to getting to know you all.

:hug:

I am Sally, and have been DX with MS for 32 years, with symptoms dating back to 1964. :eek: Yep! Long Time. The good news is, I was in remission for 18 of those years. I am now SPMS, can still walk, but use a scooter around the house and for outside distances. I walk as often as I can, so I won't lose the ability.

I am on LDN (for 3.5 yrs) to steady my MS and Paxil for Anxiety. I have used Avonex and the Copaxone in the past.

Tell us about yourself and ask any questions you want. We are here to support you in your fight and your coping with MS. We might even have some fun, while you're here.:D

Best Wishes,[/QUOTE]

I don't have MS, not real sure what it is, perhaps you get brief me(?). I am an alcoholic that despite repeated horors have not lost the desire and enjoyment of it. I don't want something over me i can't contol, and is part of my problem with AA, and i also do not detrect from it's benefit.
A gift from Lord Jesus, Holy Spirit and God Alimighty in His Name gave me naltrexone, which seems to have been majored in the treatment of illicit drugs. Still has sounded much in the area of alcohol addiction. This is wonderful and awesome and, after couple days (or immediately) have noted the lack of interest in being drunk or drinking-even to the extent of forgetting to want to have some.
Still, as wonderful as this is, i would like to hear about other discoveries, or hopes for Naltrexone, in treating such a vast array of ailments (which i cannot again find!!). I saw one site that hoped for aid in Alzeimers disease and both my mom's (whom i rather favor (though male)) parents had this disease and i have had a brain trauma & spinal fracture in a car accident and this makes me worry more about losing memory and such.
Thank you and God bless you, am thankful to have this discussion. A building in the Kingdom of Heaven, bless you and keep you in Christ Jesus.
ronald

Hello, Ronald and welcome to NeuroTalk.

There is a thread dedicated to LDN:
http://neurotalk.psychcentral.com/thread71392.html

We also have a Alcoholism, addiction and Recovery forum you might be interested in: http://neurotalk.psychcentral.com/forum31.html

Wishing you all the best.

I am 36 years old and I have not been officially diagnosed with MS but have had MS like symptoms over this past year that are progressing. The Dr. is keeping his eye on it for now. No lesions that were showing on my MRI thankfully but from what I understand in my own research that is not entirely conclusive.

In my heart I do feel that it is MS.

I have several friends and acquaintances that have had great success with MS or other autoimmune diseases that they treated through strict nutrition so that's the route that I am taking right now. But I would like to find out more about what other people do and how you cope with it.

Hi Kristin and welcome to NeuroTalk! :)

Lots of information here in all the forums, so jump right in!

If you have any questions just ask, there's always someone with helpful advice.

Good Luck!

Welcome Ron..:) in addition to what Snoopy said..You may want to check out the LDN homepage...http://www.lowdosenaltrexone.org/ .

We with MS only use the very low doses of Naltrexone. We don't dare use the higher doses that you use for Alcohol Addiction.

Good luck to you..:hug:

Welcome Kristen....Hang with us until you are diagnosed. It can be a long lonely journey. You are a couple of yrs younger than my Daughter, who also has MS..:mad:

Join us for a lot of support, some info and a littl fun.:hug:

just adding another reply to change the triple 6 (devil's #):eek:

:icon_evil: :icon_evil: :icon_evil:

:ROTFLMAO::ROTFLMAO::ROTFLMAO::ROTFLMAO::ROTFLMAO:

Polymicrogyria
 

Looking for someone to talk about this disorder with:confused:

Hi gmalinda, welcome to the club house. Pull up a chair and chat with us.

You will see loads of topics listed below, or just start one of your own, and fire away. We are happy to answer as many questions as we can.


Welcome to all the new ones I missed. :hug:

http://i489.photobucket.com/albums/r.../welcome-2.gif



Hello gmalinda, and welcome to NeuroTalk and to the MS forum. This is a great place to hang out with lots of friendly and helpful people. :)

I'm glad you found us!

I'm a newbie
 

As of today. I just found this forum, much by accident.

I have been diagnosed with MS for 20 years. I look great but feel off most of the time. I take Copaxone and just muddle through.

I like to spend my time knitting, playing and petting my cat (thus the name) and reading.

I work full time. I have 1 husband and no children.

I'm glad to be here.

Hi knitten kitten. thats quite a tongue twister.

I too take Copaxone. Welcome to our lil club house. :hug:

Welcome to NeuroTalk, KnitKit, nice to meet you. Please join in anyWhere you like..:)

Hi I'm new here...
 

Hi Yahna..Welcome Home..:) I hope you like this place as much as I do.

Come on in and join us anywhere..:hug:

Hi im Jay
 

Been having gm seizures for the past 2 yrs. Doctor put me on dilantin and tegretol. Still having seizures.. if not more. Dont seem to be getting anywhere with my doc. Had MRI and EEG done... He said that im showing some scar tissue on right side of my brain. But all he wants to do is keep increasing my meds. Im in a little bit of a financial crisis since ive been out of work a while now(doc's orders). Would love some info or referrals to some GOOD neuro's around Georgia. Thanks

Hi Jay and welcome to Neurotalk. I am so sorry for you seisures..:( Are they testing you for MS?

There are many fine Neuros in GA. and someone, from GA, will be here soon to advise you.

Come on in and join the fun and gore..:D

:hug: