Hi Jay! What part of Georgia are you in? Do you have a diagnosis of MS or of anything in particular?

The MS Center is in Atlanta. Also Emory is in Atlanta and probably has a good referral service.

Welcome to NeuroTalk!!

Newbie from Saskatchewan (Canada)
 

Hi everyone, I'm not really sure whether or not I belong in this forum, but I'm not sure where I belong...in terms of a health category.

I am currently under the care of a GP, an ophthamologist, and a neurologist. All have mentioned the possiblility of MS, but they don't have real "proof" of anything...and I'm not sure that much else has been ruled out, either. I've had two (relatively) clear MRIs in the past two years, but I have Babinski's sign in both feet, and a few other obvious signs and symptoms. I'm scheduled for two types of evoked potentials tests on July 13th, 2009. I hope that something helpful shows up.

...in order to share why I'm here, I've included (below) the general info that I used in order to introduce myself on the main "welcome" forum a couple of days ago:

I don't have a diagnosis yet, but have several symptoms that are neuropathic. In the fall of 2007 I developed double vision. I've also been having muscle twitches for more than 3 months now...every day, all day. I get sharp 'electric' type pain sometimes down a limb. Sometimes my feet go numb, sometimes my hands tingle. I have had a rash on my face for about 10 years now. I was told it was rosacea though. I have some hair loss too. There's more, but I think those are my main symptoms.

My mom has primary progressive multiple sclerosis. She is 56 years old and has lived in a nursing home for 10 years already. I have two aunts that were diagnosed with SLE (Lupus)...both on my dad's side of the family. One is struggling with lung problems mostly, and the younger aunt (58 years old) passed away due to Lupus in April 2009.

I don't know what I have, but it would be nice to find out. I'm hoping to learn from those on this forum...about their lives and the roads to (and beyond) their diagnosis.

Kind regards,

Jayne

Hi. I made a post about my issues and concerns before I saw this.

My name is Jessica and I am from WV.

I am in limbo and I am lost and confuzed.

and I'm really depressed about my mood. NOt to be so gloomy but I am never happy anymore so I am worried that this situation is running my life or if it a side effect fo whatever is going on with me.

Anyways, I am teacher, just graduated from college. But taking some time off again. I have a daughter who will be 4 in August and I am married.

Nice to meet yall.

Hi Sask, nice to meet you and welcome to your new home. I'm so sorry for all your troubles and pain. Limboland is the worst, but we are all here to help each other thru the tough times, so anything we can do to help, just ask.

Join right in anywhere and be sure tro visit the Stumble Inn for a little fun. :hug:

Hi Ya Shortfusion...hehehe, I love your nick..:D I hear you, with the worry worry stuff. It's darn hard to be happy with this carpola hanging over your head.

Come on in and join your family away from home and let's see if we can put a smile on your face..:hug:

Hi SaskMom and shortfusion!

Welcome to the place you never thought you'd be in! Make yourselves at home! Ask questions and someone will answer. We've got lots of folks with lots of experience here!

If anyone sees a sweet woman from Kentucky come in here let me know. Jim and I met her while in Kentucky at the Cracker Barrel. Her hubby looks like George Jones. :wink:

Hi All. My name is Jen. Today is my first visit to NeuroTalk. I was diagnosed with MS in Jan. of 2007.

I live in Corning NY with my husband Adam. We have a 6 month old daughter named Hannah and a dog named Fred. Hannah is the best thing that ever happened to us!!

I work in early stage 1 research as a polymer process technician. I know you're probably wondering what the heck is that. My background and education is in Chemistry. I work in an organic lab with plastics.

I'm currently taking Copaxone. Nobody loves a shot, but it could be worse.
I'm very happy that I found this site. I've already learned a few things in the last hour browsing the threads, so let me just say thank you. :)

Welcome to Neurotalk, Jen. I'm glad you found us and decided to join us.:)

Your profession sounds interesting....tell us more. :cool:

Just join in anywhere and enjoy..:hug:

New!
 

Hi there... I'm new to this site and new to MS. I am 24 years old. I was dx last December 2008 with RRMS with symptoms that started 3 months after giving birth, so January 2008. I have had two attacks since but am doing well today. I was on Copaxone for a bit but had problems with the injections. Severe reactions at injection site. I will be starting a Phase III clinical testing in 2 weeks called Teriflunomide.

I'm greatfull that sites like these exist and look forward to keeping up with many relevant discussions!

Welcome to Neurotalk, Fouf, Nice to meet you..:) I hope you do well in the trial and thank you for being a geunea pig for all of us.

I just hate it when youngsters get this carpy disease..:mad: I had my first sX at 24.

Please do just join in any where..:)

Welcome to you Jayne, Jessica, Jen, Saksmom, Fouf!
 

Welcome to NeuroTalk! I'm so sorry for the reason that you're all here.....but we have a wonderful group of MSers and I think you'll find that we all support and encourage each other and find a way to have a little fun while doing it! :)

Hi there fouf and welcome to NeuroTalk.

I too was your age when I was diagnosed with MS, and I also had a young baby at the time. My daughter was just 6 months old when I had my first major attack. My neurologist thought that maybe the trauma of childbirth had brought the illness out into the open. It didn't cause MS, it just was the trigger to bring the symptoms out.

That was over 30 years ago now, and I want you to now that I'm still doing OK. Yes I have better days than other, but I only gave up work 18 months ago, and that was more because of a cancer diagnosis than it was to do with MS.

Welcome again to the site; it's good to have you with us.

Welcome to MS NeuroTalk Jayne, Jessica, Jen, Saksmom, Fouf! You will find such a great group of people here. Feel free to jump in wherever you want to post.

We're so glad you found us!! :D

http://i489.photobucket.com/albums/r...fulFishies.gif

Koala77, thank you for your message (well in fact, thanks to all of you for your welcome messages, this site is just awesome.. sometimes we feel so alone with this stupid illness, disease.. whatever they call it). Anyways, I was going to say that my first attack was also brought on by childbirth, seems that many times trauma will bring on the first attack. I'm happy to see that even 30 years later you are doing ok.. but sad to hear that you are battling cancer.

Hi all,

I've just been diagnosed with MS...I'm a mom of two under 3 years old, a boy and a girl, and my attacks started after the birth of my second. I'll try and post a thread in the main forum with more about me. Glad to "know" you all :)

PL

Welcome PL, nice to have you join us..:)

Hi Fouf and Poetic License and welcome to you both!

Hi PL! Nice to meet you.....sorry for the reason you're here but I hope you enjoy being here with us. :)

Hello everyone!

I was referred to this board by a friend on another board and thought I'd stop in to check it all out.
I'm 32 years old with 3 kids, married and living in Southern California.

I've had MS-like symptoms for 2 years now, on and off. MRIs were all clear two years ago when they started. Brain MRI a few months ago was clear but they didn't re-do spine. I am also seeing an opthamologist for eye issues but I don't see my neuro again until October. Did a nice (:eek:) month of rule out testing in June, all normal. So I guess you could say I'm in limbo. Just searching for answers and playing the waiting game.

I hope to get to know all of you. :)

Hi Ruthie and welcome to NeuroTalk..:)

So sorry as to why you are here, but glad you found us. There are quite a few still in Limbo, here, and us oldsters can help you along the way to DX.

Join right in anywhere and be sure to visit our Stumble Inn for a bit of comic relief.:)

:hug:

Hi Ruthie and welcome to NeuroTalk! Some here have had to wait quite a while for the diagnosis. I'm glad you joined us.....hope alot of your questions can be answered while you're waiting. Between us all there's many years of MS experience here! :)

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Hello PL and Ruthie, and welcome to NeuroTalk and the MS forum. This is such a great place with lots and lots of friendly and very helpful people.

We're so glad you found us!

Be sure to check out The Stumble Inn for non-MS topics.

http://neurotalk.psychcentral.com/forum102.html

Also, Games and Such is a lot of fun and can help take your mind off your problems for awhile.

http://neurotalk.psychcentral.com/forum104.html

New to the chatbox here.
 

I have many questions about MS and some of its effects.

I am new here but not to MS. It has been living rather silent for a few years and then suddenly it was all over my life....again.

I am looking fwd to finding some of the answers and advice here.

Thank You for offering such an informative place for those of us in need.

Welcome to NeuroTalk, HHChick, nice to meet you..:) So sorry that MS has raised it's ugly head for you.

Join in anywhere here and glad you found us.:hug:

Thanks for the warm welcome Sally..and the nickname........

Signed,
HHChick :D

Hi HHChick and welcome to NeuroTalk! I'm so sorry that MS has decided to invade your space but I'm glad you found this site. We have a good time here and support each other throughout the ups and downs of this confounded disease. I hope you'll post more so we can get to know you better. If you have any questions just ask any one of us here and we'll be happy to help you. :)

Hi Everyone!! I was just diagnosed 2 months ago and just started with Copaxone last week...so far so good!! My situation is a little unusual I think because I don't have any symptoms right now but some tingling/numbness in the past coupled with 2 MRIs that showed active lesions resulted in a diagnosis. I'm curious if there are others on here that are in the same boat - the meds are always way more troublesome than the disease! Good luck everyone!

Hi Everyone!
 

I was diagnosed 2 months ago and have been on Copaxone for 1 week - so far so good! I am curious if there are others on here with my same situation - I have no symptoms at present but was diagnosed due to tingling/numbness in the past coupled with 2 MRIs showing active lesions. The cure is sooo much worse than the disease...at least for now. So far the Copaxone is going great but I hope I don't have to go back on Solumedrol..that was rough...I'm looking for to "meeting" all of you!

Hi Kats, welcome to NeuroTalk, nice to meet you. Please come on in and join us.

You are so lucky to be in remission right now.. I'm a firm believer in, if it ain't broke don't fix it. In other words, no DMDs if you are having little or no symptoms. That's just me...everyone is different.:)

Hi Kats and welcome to NeuroTalk! I'm so glad you've decided to join us.

We have a large MS community here and offer support to all who come. There are quite a few here on Copaxone. It was the first DMD I tried but it didn't work for me. Everyone is different, though.

Please post more about yourself so we can get to know you better. I'm glad to read that you're in remission. I hope it lasts for a l-o-n-g time! :)

Thanks!
 

Thanks for the kind welcomes! It's weird...I don't feel like I'm in remission because I'm just now putting together my symptoms as MS...I just turned 36 and have lived in Seattle for 1 yr after relocating from CA for work. Like I said, I've only been on Cop for 1 week but I really hope it continues to go well. The reason for being on meds now is the location and size of one of my lesions - it concerned the doc so I started on meds as soon as I could. I feel very lucky to live in a place with so many MS clinics and researchers!

Hello, HHChick and welcome to NeuroTalk :)

You will find quite a few of us who are "oldies" with the disease.




Hello, kats and welcome to NeuroTalk :)

You do know that Copaxone and the other Disease Modifying Drugs (DMDs - Copaxone, Rebif, Avonex, Betaseron, Tysabri) are not a cure.

These drugs MIGHT slow progression, MIGHT decrease relapses and their severity and MIGHT reduce the amount of lesions.

Hoping the Copaxone works well for you :)

Hi
 

Hi I just joined because I think I am starting to have my third episode. The doctor was no help in letting me know what to expect so I don't know if what is happening is even related to my MS. I don't have a lot faith in my doctor or maybe this is just how it is in the beginning.
Look forward to meeting you all.

Hi and welcome to NeuroTalk!

Unfortunately, MS is a very individual disease and no two people have the exact same symptoms. What symptoms are you having that lead you to believe you're beginning your 3rd exacerbation? It might be helpful if you keep a daily journal of your symptoms so that you can relay that info to your doctor and he can update your medical file with it. That way, he can compare this episode with future ones (if you have others).

Take a look around and join right in....we're glad you've decided to join us! :)

Hi kitty thanks,
I have this horrible onset of sleepiness where I can barely keep my eyes open it is so bad,,,then 10 minutes later I am fine. Also when I first wake up I am very very clumsy and have fallen twice.
any help is appreciated.

:Wave-Hello: Hello, Notaclue and welcome to NeuroTalk :)

Welcome to NeuroTalk, Notaclue (love your nick.:D) So sorry for your illness..:(

Are you seeing a MS Neuro specialist? Just make sure he/she does all the tests necessary to make a clear diognosis and if he/she doesn't, get yourself another Neuro.

I'm glad you are joining us..:hug:

http://i489.photobucket.com/albums/r.../Welcome-7.gif

Hello kats and notaclue, and welcome to the MS Neurotalk forum! This is such a great place, and I hope to see you around. Feel free to join in anywhere.

We're so glad you found us! :yahoo:

Hi!
 

Hi Snoopy! Thanks for the info - I do understand that Copaxone (or any of the other drugs for that matter are not a cure)...I was just getting used to it...it's almost the end of my second week and I'm getting into a routine and not freaking out with the site reactions...Now I know what to expect so it's much easier...I'm starting to figure out that this is a very unpredictable disease!