Hi everyone! :)

Dx'd with MS in 2007. I'm on Copaxone at the moment.

In my other intro thread, I talked about how my mom and grandmother (dad's mom) also had this disease. Semi-familiar with it, but so different when it's you. I'll still ask questions and such, have no fear. :)

Docs are starting to make noises that I may be progressive, but have no idea at this point.

I'm glad I found this board. :)

Hi to the MSers!
 

Hi everyone! I posted on the main page and now I've got the time to post here in the MS area.
Hi to all from MSW :)

Quick intro. :

I was dx'd RRMS in 2000. They symptoms began a year earlier.

I take Betaseron and have been on it since 2002.
For fatigue I take Ritalin-SR (20mg) and Ritalin (20mg 2 x day).

If you're wondering if the Ritalin works for me.... ummm... actually it doesn't really help much. I guess that qualifies as severe-fatigue.

Anywho, that's all I can think of to post right now.

Cheers! Niko:cool:

Hi all!
 

Hi! I'm new here, but it's nice to see names from the other site that have moved here, too.
I'm not yet dxd, but my neuro said I'm...okay, can't think of the word he used right now, but it's like early, or beginning, MS. Rats! the brain's taking a nap again!
Began with fibro in '85, then started getting neuro sxs three years ago, with numbing toes. Went on to numb fingertips, gait problems, vertigo, blurred and double vision, bladder problems, cognitive problems (memory, problem solving, crying/laughing, etc.), occasional tremors in hands/arms, floppy right foot. Now things have quieted down a bit after two weeks of prednisone last month. It was a wonderful 2 weeks...I felt almost human again.
I live outside of Chicago, am a Bears and Cubs fan, have three sons and a daughter, all adults, and a great husband. We have a 9 yr. old golden retriever named Sanford. I am not working now; I had to quit a year ago due to my cog problems, and haven't felt quite up to the task of being able to work just yet.
I have the first draft of a novel in my desk drawer, and a lot of poetry that I hope to string together to get published this year. I like photography and reading (when my brain is able to concentrate!!).
I'm really happy to have found this site...lots of forums to look into!

Hello Everyone.

I'm Vegasgrl. I was dx'd RRMS in 2000 and I think I've had it since childhood. I can remember strange things bothering me as a kid that would get chalked up to "growing pains".

I have tried most of the meds and I'm now on Tysabri.

I'm newly married to a wonderful man who is very patient, understanding and helpful in my little crazy world.

I think I'm going to go lurk around now and find my way through the site.

New to this board
 

Hi, y'all.
I was diagnosed with PPMS in February, 2003. I was just shy of my 61st birthday.
I also have a peripheral neuropathy apparently caused by a B12 deficiency. It went unchecked for several years.
Anyway, I am mostly wheel chair bound although I do crab walk around my house with the help of a cane.
I do not take any meds except for sub lingual B12 and Flexoril.

I have been marrried to a wonderful man for 48 years. We have 4 living children which includes a set of twins. ( One son died several years ago). We have 12 grand children and 2 great grand children with one more on the way.:D

hi guys....
Im new here,tring to look around and find everything. I found the ms page. finally lol
Ok here goes,my name is Alyson,im 28,married,have two wonderful kids, their my whole world. They really keep my busy. lol. thats good cause it keeps my mind off the ms for awhile anyways. lol.
Im now a stay at home mommy..
. I was dx febuary 07 with ms. and doing well as of now.
Im really glad I found neurotalk.

new to the community..hehe

I am undx though, but have many neurological sxs....feel it is MS..but tests look good so far....

38 year old woman married 17 years, mommy to five kids....work full time managing a restaurant...so busy person here....just wanted to say hi...:hug: hugsss all, sarah

I checked in on the main page but thought I would check in here too. I'm really glad to see lots of familiar faces here! It feels like coming home.


I've been "officially" diagnosed with RRMS for 3 years now, but told I've probably had it since my early 20's (which is lots of years!)

Jensequitur here...
 

Jensequitur there, Jensequitur everywhere!

Just poking my head in to say howdy and how-ya-doin... I see some familiar faces! Good to see you again.

Diagnosed in March 2007 with relapsing-remitting, but like many, I've probably had it for years. Currently on Copaxone and hating it, but it's better than the alternative! And I'm in remission... ah, remission! I'm going to enjoy it. And do as much stuff to the house as I can, because who knows how long this will last.

I have RRMS and am 39 years olds. I was dx'd 14 years ago (after 6 years of flares) but looking back I know that I have had MS since my teens. I was taken out of work over 6 years ago. I spend my time taking care of my beautiful daughter and husband, reading books and getting together with friends.

Well,I was diagnosed probable RRMS on Sept 21,2007,I will never forget that day that's for sure. I'm probable because in Nov of 2006 I was Dx'ed with Optic Neurtis(had no insurance at the time thank goodness I do now) and I've only had one flare-up(ON) and you need 2 for a definate dx's of MS,yet I have enough lesions in my brain for a clinical dx's and have 2 lesions in my cervical spine. I started taking Copaxone on Oct 16th last year so far so good.

I'm having a hard time keeping up, but just wanted to welcome all of you to the Neurotalk MS Forum.

WELCOME ALL..:grouphug:

Hi Everyone,

Lovely to meet all of you. The only thing I was bummed out about last year was my 50th birthday coming up in October - until I was dx with MS in September...that put things in a new perspective. So I'm still trying to get used to it (having MS, not turning 50). It began suddenly last August (07) when I woke up with numbness on the left side of my body, and after a couple of weeks of researching symptoms, and having my regular GP do a check-up and some blood tests that were unremarkable, a new doctor I saw was able to get me in for an MRI on the same day. The MRI revealed a 2.5 cm "mass" as it was called, and it sent me straight to the nearest hospital emergency room. From there, all were in agreement that I had a brain tumor (cancer). Long story short, within a month of that dx I was admitted to UCLA for resection of my cancerous tumor. Alas, after I was given a 2-5 year death sentence, put on steroids and anti-seizure meds (never had one seizure), admitted, prepped, knocked out, head shaved and all, the biopsy that was performed just before they took the real big chunk out of my skull came back negative for cancer, probable for MS.

Since then, I've gotten a definite dx of MS - tumefactive style. Newer MRI's have shown the lesion has shrunk to about half it's original size, but my symptoms of numbness have remained the same. At least no new ones - well, except for the fatigue and this ridiculous drunken brain fog I walk around with 24-7. I still don't know if it's because of having air hit my brain or from the MS? My neuro put me on Tysabri - my 3rd infusion is coming up in a couple of weeks. Nothing to tell yet.

Before I got MS I never spent time on websites or chat rooms or anything like this and I'm afraid I'm terrible at it, so please give me a little room to grow here - I will learn! I am sooo glad you're here. I don't know anyone else personally who has this stupid disease and I don't walk around talking about it, and I don't look sick, so it's been a rather isolating experience these past few months, but for the web. On the inside I'm scared to death and frequently break into tears when I'm alone.

I'm married, and have a 24-year old daughter and a 15-year-old son, I was born and have lived in So Cal my whole life, - I live in Mission Viejo, (Orange County) CA currently, and run a family owned offset & digital printing company in Irvine, CA with my husband and brother-in-law. I also have a liver and white English Springer Spaniel.

Bye for now - thanks for allowing me to tell you about myself.

Hello My name is Sue I am relocated from another board. I am a stay at home Mom with 2 kids. I was Dx Febuary 2006 after losing sight in my right eye. I have goten most of the sight back but I just found out yesterday at my appt that I have optic atrophy with means the same as ON.
I am so Happy to see some familiar faces.

Hi, newest newbies! :Wave-Hello: Welcome to NeuroTalk!

I'm also having a hard time keeping up, please forgive me, I am excited to see all of you here!:)

This is a huge, exceptionally well-run message board and I encourage everyone to look around, see what's out there, sample your options and join in anywhere. This is a wonderful, caring community.:)

Nu2U
 

Hi! Paul, TheSleeper, Sicko, I answer to just about anything!

Dx`ed with PPMS like March of 06, sick since Feb of 03, dx unsure? But mono for sure!

Male, 56, married, 4 kids, 2 8/9ths grandkids, 3 dogs, 2 cats and 2 bird feeders.

Busted out of Cleveland Ohio in 73, still in the area sort of. Retired and disabled by MS, but still having fun, did have to lower the bar though.

If you see me walking? I haven`t been drinking! No matter how it looks!:D

Hi everone!

I was diagnosed with MS in 1995 after strange symptoms that I thought had to do with my inner ear, or possibly a stroke. I ended up going to the hospital for 6 weeks, and had to learn to walk, talk, and feed myself again.

And, here I am over 12 years later, fabulous as ever! The only problems I really deal with are being clumsy and tired. I have a normal life with work, family, and friends. I look forward to getting to know everyone!

Hi Nik, do I remember you???:Ponder:

Join in anywhere and let us know if we can help you navigate the forums. :)

I've joined the flock from "the other board".

I've found swapping w/other MSrs (experiences, etc) has been helpful. So here I am.

I was dxd in August of this year, five months after the birth of my fourth child. Symptoms started around June w/numbness in my right foot.

Sheryl

Hello and welcome to everyone!! (I recognize some of you....Muahahahaha!!)

Hi, I'm a regular on the Parkinson's disease forum. Chemar, Curious, jo55 and kimmydawn will recognize me as that nutty white rat Professor who thinks that low-dose dextromethorphan is providing him with neuroprotection. For your information, it has been demonstrated in laboratory animal brains that several drugs in the morphinan class, which includes naloxone, naltrexone and dextromethorphan prevent the inflammatory response of brain microglial cells to LPS (bacterial cell wall lipopolysaccharide). These compounds are effective at unbelievably low concentrations. This may be the basis of the apparent effectiveness of the low-dose naltrexone (LDN) treatment made famous by Dr. Bihari in New York. According to reports, a very large number of MS patients are achieving complete cessation of MS crises with this medication.

I have chosen to use dextromethorphan in cough preparations such as Pedia Care Long Acting instead of naltrexone since it is available over the counter, whereas naltrexone requires a Rx. I have been taking 4-6mg each night at bedtime since 2002, and have experienced very little, if any, progression of my PD.

I would like to hear from members of this forum whether and how many of you have heard about LDN, or are currently taking it. Please feel free to pm me if you prefer not to respond on the forum.

Thanks, Robert

:hug: hi robert.

i know some are on ldn. maybe make your own thread? or i can make your post it's own thread. i would hate for it to get lost.

(butting in here) Hi Robert! You've been here alot longer than me, but let me just say "It's nice to meet you".

Hi I'm over here from MSW - good to see familiar names... :)

was new there,now im new here.
 

my info

My name is Scott
Have had ms for a long time,diagnosed in 2004 when it turned progressive.
Im in a power chair now"oh well"its not too bad.
I was in the USMC in the early 80's and worked as a tech for 10 years at a Chevy dealership until I could no longer walk.
Now I spend my time designing stock car paint schemes,working on my web site and web logos and design.
happy to find a good place and good people!

Hi there my fellow NASCAR fan. How many weeks? February 17th, I know where I'll be. Haven't picked my new fav yet. Still disappointed in Kasey Kahne for getting in trouble. Didn't he learn from the Busch brothers. LOL.

Good to see you here.

Hello from Seattle
 

Ditto. :)

Post as its own thread.
 

Yes, Curious. Please post my message as its own thread.
Thanks,
Robert

Hi All!
 

I can't remember if I introduced myself. ;) I think I did on the main intro page.

My name is Joelle. I was dx with RRMS on my birthday last year. I have been married for 21 years. I have two man/boys ages 20 and 16. I have 4 cats (one is pictured to the left, Millie).

My youngest son has Crohn's, so I'm pretty well-versed on that disease too.:cool::eek:

Glad to see so many familiar faces and to meet new ones! :Wave-Hello:

:holysheep: this place is gigantic!:D

Welcome new Friends. Nice to meet you all. This is the place..:D

:grouphug:

Hey,

I'm RRMS...was in remission for 10 years, in fact nothing interesting happened, so during that time doc took away dx!!! (something about new dx standards) and then I had the attack from you know where last year. Now I'm on Avonex and doing ok.

Been recovering nicely, but ever so slowly!!!

I, too, belonged to another group, but I am so excited to be here! I check it out a little at a time!!!

I recognize Maureen I think from a smaller group???

Anyway I'll see you guys around!

HI everybody! I too am new here from another site...I was diagnosed in May of last year out of the blue, I have been married for almost nine years and have 3 children who we adopted about 6 years ago....twin boys who are 19 and a girl who is 18, my son in the picture with me was in a car accident 2 years ago and is a very lucky to be alive, I consider him my miracle child! so anyways I will stop rambling now! talk to you all soon!

New here
 

Hi - My name is Kristin - I have been a "probably" patient of MS for the past almost 4 yrs - go to Shepherd Ctr in Atlanta - I recently heard of this site and thought I would nosey around and find out more about things as I wait for more definitive testing to prove either I do or do not have MS - such a struggle as I'm pretty sure alot of you can relate to. Thanks in advance for creating someplace we come and read on!!

Hi, Kristen! :Wave-Hello: Welcome to NeuroTalk!

Feel free to jump in anywhere, the water's warm!:)

Hello, I am new here
 

Hello!

I am a transplant for the "other" site. I was upset at some of the changes that happened and moved over here following the trail of bread crumbs left behind by the masses that are leaving. I am happy to be here!

I was diagnosed in March of 07. it was a complete shock to me, even though I had many sx and many signals that something was wrong for a long long time. I was told by MDs that I was "sensitive" and or "over analyzing" or "looking for answers, when none were needed" "typical migraine syndrome" I moved to a new state and had to get a whole new health care team. My new MD was upset that I had a headache and was hesitant to let him examine me. I said, "look, I have played this game for years, you look, and say its nothing, go home and rest. I go home and stay upset, so lets not start this game" After some pushing I allowed him to examine my eyes and dropped foot. he said " dont be upset again, but i believe I know why you are always having trouble. lets get you signed up for some simple tests" He turned my world upside down. All here have been extremely compassionate, and not once have I been made to feel like a "whiner" or a "hypochondriac"

Started Betaseron in March and was pulled off in July because my liver enzymes were so high. I set a clinic record. Went on to Copaxone in August and just had my follow up six month MRI. I am now in the "stable" catagory. No new lesions! I was starting a collection. So, I feel better, I look better, I walk better, and I am once again hopeful for a better tomorrow.

I was forced to retire as a nurse/medic because I wasnt able to keep up anymore. At first I thought it was a horrible thing, but it has given me so much rest, peace, and time to be able to care for myself. Had I known I had MS I would have retired years earlier.

so, that is me! I am happy to have found this place

New to this site
 

:Wave-Hello: I too came from the other site. I was dx'd with RRMS in July 2007. My dx came one month after getting married and moving to Houston. Having places such as this to come to and make new friends has been a God send to me and I am so appreciative of everyone here! :You-Rock:

just crossed over
 

Been out of the loop for a while - Bird directed me over here to join the rest of the crew.

Dx RRMS since May, 2007 with sx since 2004. Currently using Rebif and trileptal for TN. Need to go back on xanax for anxiety (oh wait - that's the work stress......:eek:)

My name is Keith and I too am a refugee/member of the other site. I'll still go there from time to time but I appreciate the opportunity to socialize a little (and laugh at our situations) with others that know where I'm coming in the MS respect. I was dx'd via craniotomy last year and the surgery is far worse than the disease let me tell ya.

My symptoms have been relatively mild so far. A little speech difficulty when I'm tired and a myriad of ever changing twitches and strange vision. Nothing that hurts too much, thank God. Fatigue has been the biggest issue so far. But I'm figuring out how to cope.

I take the bif (rebif) and have tolerated it ok I guess. I hate the stuff but I'm seeing no progression so - so far so good.

Thanks a bunch to all here at NT for being so hospitable with the rash of us newcomers here lately! Cheers! :)

I posted in the Newbie section out on the main board, but I belong in here. :D About me:

I started having MS symptoms around 1990 - first visual stuff, then pain in my wrists while keyboarding. Tests came back negative. After that, four definite flares which I never saw a doctor for - three were numbness and "heaviness" in my legs, and one was my whole right arm.

In fall of 1995 my lifestyle and relationship were unhealthy and my stress level high as I tried to get a job at a company where I was temping. On a Saturday my legs got "that feeling" again...by Tuesday I knew something was seriously wrong. I was admitted to the neuro ICU early Wednesday morning, numb and near parylized from the chest down with ON in my right eye and a contracted left hand. By that afternoon had a diagnosis of Multiple Sclerosis (RRMS).

I've been fortunate to not have a flare that severe since. My legs would occasionally give me trouble in very cold weather or during illness, but nothing else. In recent years my disability has progressed somewhat, including an unsteady gait and hand tremors.

In a bartering move with my neuro to get a prescription for Estriol, I started Copaxone in October. Estriol is a pregnancy hormone currently in clinical trials, and it is making a difference. I am steadily improving now. I tolerate the Copaxone well, too. The increased disability affected my outlook on life, though, and I finally asked for an antidepressant so that I could stop being a miserable meany to my DH. It has helped - a lot.

I'm a former karaoke diva/host (met the love of my life at a karaoke bar) and a tech gadget junkie. I love to cook and invent recipes, research stuff on the internet, and share the wisdom of my personal journey if it might help someone else.

I am a very spiritual and intuitive person, but not all that good at relationships. Fortunately, God sent me a man who understands me. We have a business out of our home, and he does the technical work while I keep the books, keep him company and tend the cats. We are up to our ears in debt, business is booming, and we're happy as pigs in a wallow. I am truly blessed.

It's good to be here. I'm looking forward to getting to know everyone and seeing some familiar "faces", too.