Newbie here, saying hi!
 

I was recently diagnosed in December '07 but even that is not 100%. I presented with Transverse Myelitis in May '07 which left me with permanent buzzing in my legs. It affected my gait pretty bad and gave me severe pain in my mid-back. I has a pseudo exacerbation in Sept. '07 and finally realized I needed to take time off from my type-A job and life. The second day on disability I had my second attack of Optic Neuritis in my left eye. 5 days of high dose Solu-medrol kicked it pretty well but I am left with consistent eye pain, dry/red eyes and I get headaches now from too much tv or computer work. I have one large, old lesion that could be the cause of my migraines or have nothing to do with anything...the doc said it could have happened at birth or 5 years ago there is no way to tell...so I have no other lesions, no visible lesion on my spine but 3 abnormal bands in my CSF and an elevated IgG count.

Lately my feet have been buzzing more after doing nothing...it had changed to only buzzing with moderate activity now they buzz all the time...annoying. My eyes were super painful for about 3 weeks and now the pain has died down...so I'm thinking it's the calm before the storm and am just waiting for the next shoe to drop.

I was on Copaxone for a short bit but could not tolerate the large, burning, itching welts. I have stopped the copaxone and will start Rebif next week...sigh. Not looking forward to the flu-like side effects.

I am a classic goth girl who loves NIN, the Cure, Depeche Mode and others. I am also a non-typical So-Cal native who lives in LA with no tan and no surf board and I do not like sprouts. I drink my Martinis straight up and prefer Bombay Sapphire. Shaken not stirred. ;)

ok, that was enough, thanks for reading this far...see you in the threads. :D

Hi! I'm Desinie from Pennsylvania. I'm married for 15 years to my high school sweetheart. We have a 14 year old son ( who knows everything..lol ) and a 3 year old chocolate lab named Samson. Diagnosed in 1999, but had symptoms back in 1992 that were mis-diagnosed as Lyme Disease. Been on Copaxone since October of 1999, one month after diagnosis. I've been on SSD since 2001 due to MS symptoms. I'm a nurse though and really miss working. I was a much better nurse than I am a patient.
I found out about NT from MSWorld and followed the comforting, familar faces over here. Thanks for being so welcoming to all of us, you have a really great site here! I look forward to meeting all of you!

Hi, newest newbies! :Wave-Hello: Welcome to NeuroTalk!


Have a look around and feel free to jump in anywhere, the water's warm!:)

Here!!!
 

Am a newby here....also a crosover.:p( does one month count?) I guess? Newly diagnosed, RRMS. No meds. New to the internet world. New computer...not likin' my vista!!! Just a quick hey!...then I'll get back to nosing into your world....hehe.::Popcorn:

hi
 

I was diagnosed 2 years ago with rrms. Have been doing fairly well until fatigue has been really hitting me recently. If it was not expected to burn the candle from both ends and the middle anymore it would be much easier. Looking at options to help to improve this. Just have to take the time to do it. :wink:

Adventures of a limbo lander.

As my neuro says now, he was sure I had ms, 95%, but now he's confused if it's that or something else. Some of my symptoms don't fit my dxs, and do seem ms-y, but who knows?

So he can't rule it out and is keeping his eyes on it.

I presented with migraines, had fatigue and some vertigo. MRI found brain lesions and I had more tests. Ruled a lot of stuff out, but was dx'd with spinal disorders (C spine) and syringomyelia (T spine) in '04.

All this time the brain lesions remain unchanged, had all the usual tests come back normal - EPs, LP, etc. My reflexes are a little off, but that could be either of my spine issues.

I lost my job right out of the gate. (Headaches, yuck)

I now have the h/a pretty much under control, but deal mostly with chronic pain and fatigue and some weird sensory symptoms. Pretty lucky, for what's up with my neck alone, much less having other stuff going on.

I've had a rough time with docs up till now - finally have a good team on board. Very happy to say that.
I'm 44, have 2 grown kids who still live at home, one adorable granddaughter who stays a couple days a week. I also have 2 rescue dogs and 4 birds. You can probably hear them screaming from where you are.

:eek:

:p

I drown them out with my guitar.

And hey, it's really great to be here. This place rocks!

A big NT welcome to all of you new members. It's great to have you w/us. You'll find that there is so much info here. It's amazing.

Let us know if you need help w/anything. AMN does dishes AND windows!

Welcome again!! http://dl10.glitter-graphics.net/pub...w1gkt9m4fd.gif

Awww...DM, you are so helpful!

I am also a crossover:p

I was dx in 2004. Started on avonex, switched to Rebif last year and got divorced. Not sure if either or both of those have to do with my feeling great! :rolleyes: But either way I have had the best year of my MS so far.

Looking forward to chatting with you all:p

How did I forget to jump in over here?

Well, hi! :Wave-Hello: I am another one in LimboLand. I was given the diagnosis of "Possible MS" last week after 18 months of weird symptoms. My 1st neuro was a whack job who did diddley squat to try and figure out what is wrong with me. He ASSumed it was stress and migraines (I haven't had a migraine in over a year!).

I went to a wonderful MS specialist last week and he is on the ball. Things are moving quickly now, and I hope to know what is wrong with me definitively within the next month.

I just want to know, so I can move on and quit stressing about "what ifs".

This community has been awesome and I am looking forward to getting to know you all! :grouphug:

Hi,i'm new here too. Also stuck in limboland
MS sx since 2005
get to see my Ms neuro in march,hopefuly i'll finally get some answers :)

Greetings fellow MS'rs

I was DX last Sept. I didn't even really know what MS was, I have learned alot :p since then. I am on Copaxone.

30 year old male, I work on an assembly line 2nd shift. I am a proud PGR member (look it up if you need to). Other than that I live a fairly boring life.

:grouphug:

HardDrive

new here and cogfog..so not sure I may have posted here already lol...

Sarah is my name, I am 38, mom of five, work full time managing a McDonalds....and undx as of yet...but feel it is MS or neurological problem similar.....drs say stress....and that I dont have my sxs when pregnant due to being HAPPY at that time in life..huh.....

anyone that knows me knows I am happy go lucky most the time...haha

I am taking more time away from puter,so on only once in while...taking time to do more yoga, kid time, and rest time.....but love the company on sites as these....hugsss to all, :grouphug: sarah

Hi, I'm tante, and last week, during the mass migration, ;), I had planned on doing an intro Thursday PM, after my much (and long) awaited, "tie up the loose ends with my neuro," appt.

It was, however, once again re-scheduled, so I still do not know whether my 5 O bands, positive VEP and BAER, repeat ON, and eons of documented time and space will be attributed to MS or to CIDP (unlikely I would think, since my emgs are fine...always have been). Everything else has been ruled out, many times and through many referrals.

All I do know, and only second hand from another Dr. who spoke to my neuro., is that he plans on giving me some type of IV treatment. Somedaaaay....over the rainbooooow.......:wink: No, I do love my neuro and his staff, they are just seriously overworked.

But, for now, this one time female potter, soon to return to painting, would like to join you folks here, meet new friends, and keep an eye out for my old ones. :D

tante

Hi, I'm Sue. Also came over during the mass migration. I had my first flare in May of 2004 and was diagnosed in May 2005. Have been on Avonex and Copaxone, each with it's own problems. I'm now doing very well on Beteseron. I still have numerous symptoms, my worst being my lack of balance which I now use a cane for.

Glad to see so many familiar names here.

Hi, I'm Jeannie. I followed the rest of the flock over in the mass migraton!! I hadn't really been posting at MSW much in the last year so I guess that's why they lost all my user info during the change and I didn't even care enough to contact anyone to try and get it back!!! I know, I know bad attitude to have but when I couldn't even reset my password I came here and saw so many familiar names I didn't feel the need to get anything back. It already feels like home!!!! Glad I found this place.

new here
 

Hi,
I just came over here from MSW...following the pack! I don't plan on completely leaving MSW but always enjoyed the lighter side of things...no longer available!
I introduced myself on the first thread on the General tab...didn't realize there was a whole category just for us MSers! It took me quite a while to find it!
Anyway, there are lots of familiar user names here...I feel right at home! My user name on MSW was Missyb (probably should have kept it the same but jumped at the opportunity to have a new more inventive name :))

I was dx'd with RRMS 9/02 and started Betaseron 10/02. Currently I am the washout phase from Betaseron and am finishing the testing to see if I qualify for the fingolimod trial. I only have one MRI left and then I should know if I'm in or not. Randomization day will be Feb 19 if it is a go! I am excited and ready to get this show on the road.

General info...I'm 36, married with no kids, but 3 wonderful kitty kats. Live in Northern Kentucky and work in Cincinnati as a environmental lab technician.

Looking forward to meeting you all!
Melissa

:welcome_sign: Melissa
Glad you made you way over from the other land. I've got a question? what is fingolimod? Hope to see you around you've find a most awesome place here.

:hug:

Hi Beth,
Thanks for the welcome :)

Fingolimod is the oral drug that is in phase III clinical trial in the United States, Canada and Europe. The research study that I would be taking part in is a 24 month, three armed, double blind study with placebo. I am keeping my fingers crossed that I won't get the placebo.
I believe you can look fingolimod trials up on the NMSS webpage. Check it out! Last I heard, they were expanding the number of individuals in the study from 900 to 1000 and enrollment is still open.

:)
Melissa

new here
 

I am new to this site and found it to be really helpful ...
it has been over 2 years now since my dx and I am finally getting to understand how it works, thanks to these sites and all the help you all provide.. Hello to all

Mike

Another Newbie...
 

Hello everybody,

My name is Dave, I live in Alaska (for 32 years of my 56 years) and got my dx of MS in May of 2000. I went on Betaseron right away and stayed on a single dose every other day for the first 4 years and then the last two years I was on a double dose every other day.

I switched to Tysabri in February of '07 and have had good results, both in MRI results and a decrease in some very annoying symptoms. So I am pretty happy with the results and plan on continuing with the Tysabri until something better comes along or I croak from PML!

I am not new to MS boards but I expect it will take me a while to get the hang of this board. I am looking forward to getting to know you all and you all getting to know me!

Thanks,

Dave

Hello
 

Hi Everyone,

Let me introduce myself. Found this site through a thread on MSW. I was a member there for the last 3 years.

I was dx'd in Nov 2004 after a bout of ON. Did experience L'Hermittes in 2002, but they thought it was from Harrington rods I had put into my spine in 1980 for scoliosis. They removed the rods and I went for another couple years until my next exacerbation and then diagnosis. (Actually, one cool fact - Dr. Andrew Cappuccino performed that surgery - the doctor who operated on Kevin Everett - the Buffalo Bills player paralyzed in a game - who now walks - his story was on Oprah this week - cool, huh?)

I was on Tysabri to start (2 infusions before it was pulled from the market), then Avonex for 14 months, now on Rebif (twice a week). Last MRI showed I'm stable. That's a good thing. I quit my job in October and now I just stay home and take care of my husband, two daughters (18 and 20) and my two kitties.

I enjoy this site and look forward to participating.

Pam

Hi, Newbies! :Wave-Hello: Welcome to NeuroTalk!


Mrs.Mole-- I LOVE that name!!!:ROTFLMAO::ROTFLMAO::ROTFLMAO::ROTFLMAO: :ROTFLMAO:

hi dave and hi mrs mole,

glad to meet you.
this is a great place and i hope to hear more about you.

Hey everyone. I recognize some of you, so I will say a special Howdie to y'all.

Yep I have SPMS and now have developed RSD. Fun and games.

I live in southern ontario, female, married with children and 2 cats and one dog.

Live in constant pain, use wheel chair in home, and scooter outside.

Hate neuros, but then again who does not? :cool:

Don't know what else to say except: I'm heeeeeeeeere !

Welcome! Love your username and your sig line. Kitty litter! Ha!

Another BIG NT Welcome to our newest members. Take a look around at all our wonderful forums. And, please let us know if you need any directions or help. Glad to have you w/us.

http://dl2.glitter-graphics.net/pub/...tw866pkct2.gif

Yeaaaaa, My Friend CITH is here.:Trapeze 2:...So happy you made it. She and I started out long ago at BT and then to Plaintalk and then notta, for awhile.:(, so, I am glad you came.

I hope you like it here. :hug:

thanks everyone for the welcome.

Yep Sally it's been a long time, but as I emailed U, I'm trying to get back to the living. After my dad died it was very hard to do anything. I miss him so much.

Anyways, I am here, and I hope to get to meet ya'll.

Just jump in anywhere and enjoy yourself..:D

So so sorry about your loss..:hug:

Is that Lime Kitty??? :You-Rock:

So nice to see you here! Welcome welcome welcome!! :hug:

I am sorry to hear about your dad. I lost mine a few years ago and still miss him a lot. :hug:

Hiya Limekitty - I remember you from PT. I was bird there! Welcome!

wow lots of people here that I know. This is gonna be fun:cool:

I haven't changed, still have a warped sense of humour. :eek:

Hello everyone! I'm new here too. I haven't read this whole thread, but from what I've seen, it looks as though I'll know plenty of people here (and hope to meet some new ones too).

I'm currently living in limbo. It's been about four years now. I have many positive tests (neurogenic bladder, four brain lesions, documented cognitive problems, a history of many attacks, etc), but not quite enough for a dx.

I do know that I have a copper deficiency, so I'm eating pennies (sorry, couldn't resist :p). They haven't found out why I have the copper deficiency, and aren't sure if it's causing all of my problems, or just some of them.

Well, I better go. I'm looking forward to getting to know you all.

Sharon

http://i90.photobucket.com/albums/k2...ky/welcome.gif
Welcome Sharon, There's a few of us in Limbo Land here, I'm been there about 4 years also (I've had problems for about 10 years but was DX with fibromyalgia so I thought that was it until it got real bad 4 years ago).
Glad you found us and can't wait to see you post more.

Welcome to NeuroTalk, Sharon..:) Nice to meet you.

Just jump in anywhere and enjoy,

:hug:

I can't remember if I have interduced myself here on the MS board. I joined the board a few years ago and just lurked but came over with all the others in January...I am my hubbies fulltime caregiver. He was diagnosed in 1986. He has SPMS. Our biggest challenge is beside the fact that he can't walk and a lot of other things is memory problems. He had a real problem with short term mem. He is also challenged with Cog. problems. His name is Craig or the Olhipie as some refer to him. We have been together for seven years and I love him more everyday!!!

Fibro-my-pain in the back
 

HI I'm Jen (Debbie Downer to some :) ),

New to this, Have fibro, upper thorasic scoliosis, chronic pain. Take Topamaxx 100mg, Cymbalta 160 mg, and Lyrica 150mg, per day. No side effects but still in pain. What the hell is wrong with me? My back hurts every minute of the day even when I breath in and out. MRIs show nothing ... although I do have a slight pinched nerve in the C5 and a bulging disc in the lower back along with TMJ and carpal tunnel running thru both arms. Help me!!:confused::confused::confused::confused::confu sed::confused:

Woo-hoo! Shalynn's found us too. Glad to see you here :)