Hi, I'm a regular on the Parkinson's disease forum. Chemar, Curious, jo55 and kimmydawn will recognize me as that nutty white rat Professor who thinks that low-dose dextromethorphan is providing him with neuroprotection. For your information, it has been demonstrated in laboratory animal brains that several drugs in the morphinan class, which includes naloxone, naltrexone and dextromethorphan prevent the inflammatory response of brain microglial cells to LPS (bacterial cell wall lipopolysaccharide). These compounds are effective at unbelievably low concentrations. This may be the basis of the apparent effectiveness of the low-dose naltrexone (LDN) treatment made famous by Dr. Bihari in New York. According to reports, a very large number of MS patients are achieving complete cessation of MS crises with this medication.

I have chosen to use dextromethorphan in cough preparations such as Pedia Care Long Acting instead of naltrexone since it is available over the counter, whereas naltrexone requires a Rx. I have been taking 4-6mg each night at bedtime since 2002, and have experienced very little, if any, progression of my PD.

I would like to hear from members of this forum whether and how many of you have heard about LDN, or are currently taking it. Please feel free to pm me if you prefer not to respond on the forum.

Thanks, Robert

hi robert.

i know some are on ldn. maybe make your own thread? or i can make your post it's own thread. i would hate for it to get lost.

(butting in here) Hi Robert! You've been here alot longer than me, but let me just say "It's nice to meet you".

Hi I'm over here from MSW - good to see familiar names...

my info

My name is Scott
Have had ms for a long time,diagnosed in 2004 when it turned progressive.
Im in a power chair now"oh well"its not too bad.
I was in the USMC in the early 80's and worked as a tech for 10 years at a Chevy dealership until I could no longer walk.
Now I spend my time designing stock car paint schemes,working on my web site and web logos and design.
happy to find a good place and good people!

Hi there my fellow NASCAR fan. How many weeks? February 17th, I know where I'll be. Haven't picked my new fav yet. Still disappointed in Kasey Kahne for getting in trouble. Didn't he learn from the Busch brothers. LOL.

Good to see you here.

Hello all

My name is Maureen - but most people call me "Mo". I am a native New Englander, born in Rhode Island - lived a good part of my life on Cape Cod in Falmouth, MA. I was diagnosed with MS in 2001 - am now Primary Progressive MS. My husband and I moved out to Seattle 5 years ago - believe it or not - for the weather. The heat really aggravates my MS - and the Pacific Northwest has a great year-round temperate climate. We now live happily with our two cats at Alki Beach.

I no longer work - am on Social Security. Prior to MS, I was a news editor for 8 years and a high school teacher for 10 years.

Thankfully I still get around with a cane inside my house, but for anything more than a couple of blocks outside - I need my scooter or powerchair.

Photography is my passion. Also am a news-aholic, love travel, cooking, genealogy and reading.

Glad to have found this community and look forward to getting to know you all

Thanks
Mo

Ditto.

Yes, Curious. Please post my message as its own thread.
Thanks,
Robert

I can't remember if I introduced myself. I think I did on the main intro page.

My name is Joelle. I was dx with RRMS on my birthday last year. I have been married for 21 years. I have two man/boys ages 20 and 16. I have 4 cats (one is pictured to the left, Millie).

My youngest son has Crohn's, so I'm pretty well-versed on that disease too.

Glad to see so many familiar faces and to meet new ones!

this place is gigantic!