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Old 01-24-2008, 12:16 PM #271
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Welcome new Friends. Nice to meet you all. This is the place..

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Old 01-24-2008, 09:24 PM #272
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Cool

Hey,

I'm RRMS...was in remission for 10 years, in fact nothing interesting happened, so during that time doc took away dx!!! (something about new dx standards) and then I had the attack from you know where last year. Now I'm on Avonex and doing ok.

Been recovering nicely, but ever so slowly!!!

I, too, belonged to another group, but I am so excited to be here! I check it out a little at a time!!!

I recognize Maureen I think from a smaller group???

Anyway I'll see you guys around!
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Old 01-24-2008, 11:15 PM #273
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HI everybody! I too am new here from another site...I was diagnosed in May of last year out of the blue, I have been married for almost nine years and have 3 children who we adopted about 6 years ago....twin boys who are 19 and a girl who is 18, my son in the picture with me was in a car accident 2 years ago and is a very lucky to be alive, I consider him my miracle child! so anyways I will stop rambling now! talk to you all soon!
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Old 01-25-2008, 11:16 AM #274
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Default New here

Hi - My name is Kristin - I have been a "probably" patient of MS for the past almost 4 yrs - go to Shepherd Ctr in Atlanta - I recently heard of this site and thought I would nosey around and find out more about things as I wait for more definitive testing to prove either I do or do not have MS - such a struggle as I'm pretty sure alot of you can relate to. Thanks in advance for creating someplace we come and read on!!
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Old 01-25-2008, 12:04 PM #275
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Hi, Kristen! Welcome to NeuroTalk!

Feel free to jump in anywhere, the water's warm!
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Old 01-25-2008, 01:12 PM #276
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Default Hello, I am new here

Hello!

I am a transplant for the "other" site. I was upset at some of the changes that happened and moved over here following the trail of bread crumbs left behind by the masses that are leaving. I am happy to be here!

I was diagnosed in March of 07. it was a complete shock to me, even though I had many sx and many signals that something was wrong for a long long time. I was told by MDs that I was "sensitive" and or "over analyzing" or "looking for answers, when none were needed" "typical migraine syndrome" I moved to a new state and had to get a whole new health care team. My new MD was upset that I had a headache and was hesitant to let him examine me. I said, "look, I have played this game for years, you look, and say its nothing, go home and rest. I go home and stay upset, so lets not start this game" After some pushing I allowed him to examine my eyes and dropped foot. he said " dont be upset again, but i believe I know why you are always having trouble. lets get you signed up for some simple tests" He turned my world upside down. All here have been extremely compassionate, and not once have I been made to feel like a "whiner" or a "hypochondriac"

Started Betaseron in March and was pulled off in July because my liver enzymes were so high. I set a clinic record. Went on to Copaxone in August and just had my follow up six month MRI. I am now in the "stable" catagory. No new lesions! I was starting a collection. So, I feel better, I look better, I walk better, and I am once again hopeful for a better tomorrow.

I was forced to retire as a nurse/medic because I wasnt able to keep up anymore. At first I thought it was a horrible thing, but it has given me so much rest, peace, and time to be able to care for myself. Had I known I had MS I would have retired years earlier.

so, that is me! I am happy to have found this place
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Old 01-25-2008, 01:12 PM #277
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Default New to this site

I too came from the other site. I was dx'd with RRMS in July 2007. My dx came one month after getting married and moving to Houston. Having places such as this to come to and make new friends has been a God send to me and I am so appreciative of everyone here!
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Old 01-25-2008, 02:36 PM #278
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Been out of the loop for a while - Bird directed me over here to join the rest of the crew.

Dx RRMS since May, 2007 with sx since 2004. Currently using Rebif and trileptal for TN. Need to go back on xanax for anxiety (oh wait - that's the work stress......)
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SallyC (01-25-2008)
Old 01-25-2008, 07:23 PM #279
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My name is Keith and I too am a refugee/member of the other site. I'll still go there from time to time but I appreciate the opportunity to socialize a little (and laugh at our situations) with others that know where I'm coming in the MS respect. I was dx'd via craniotomy last year and the surgery is far worse than the disease let me tell ya.

My symptoms have been relatively mild so far. A little speech difficulty when I'm tired and a myriad of ever changing twitches and strange vision. Nothing that hurts too much, thank God. Fatigue has been the biggest issue so far. But I'm figuring out how to cope.

I take the bif (rebif) and have tolerated it ok I guess. I hate the stuff but I'm seeing no progression so - so far so good.

Thanks a bunch to all here at NT for being so hospitable with the rash of us newcomers here lately! Cheers!
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Keith - dx'd 2/07
rebif 3/07 - 12/07
relapse 2/08
copaxone 3/08 - 11/08
relapse 5/08
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Old 01-25-2008, 09:36 PM #280
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I posted in the Newbie section out on the main board, but I belong in here. About me:

I started having MS symptoms around 1990 - first visual stuff, then pain in my wrists while keyboarding. Tests came back negative. After that, four definite flares which I never saw a doctor for - three were numbness and "heaviness" in my legs, and one was my whole right arm.

In fall of 1995 my lifestyle and relationship were unhealthy and my stress level high as I tried to get a job at a company where I was temping. On a Saturday my legs got "that feeling" again...by Tuesday I knew something was seriously wrong. I was admitted to the neuro ICU early Wednesday morning, numb and near parylized from the chest down with ON in my right eye and a contracted left hand. By that afternoon had a diagnosis of Multiple Sclerosis (RRMS).

I've been fortunate to not have a flare that severe since. My legs would occasionally give me trouble in very cold weather or during illness, but nothing else. In recent years my disability has progressed somewhat, including an unsteady gait and hand tremors.

In a bartering move with my neuro to get a prescription for Estriol, I started Copaxone in October. Estriol is a pregnancy hormone currently in clinical trials, and it is making a difference. I am steadily improving now. I tolerate the Copaxone well, too. The increased disability affected my outlook on life, though, and I finally asked for an antidepressant so that I could stop being a miserable meany to my DH. It has helped - a lot.

I'm a former karaoke diva/host (met the love of my life at a karaoke bar) and a tech gadget junkie. I love to cook and invent recipes, research stuff on the internet, and share the wisdom of my personal journey if it might help someone else.

I am a very spiritual and intuitive person, but not all that good at relationships. Fortunately, God sent me a man who understands me. We have a business out of our home, and he does the technical work while I keep the books, keep him company and tend the cats. We are up to our ears in debt, business is booming, and we're happy as pigs in a wallow. I am truly blessed.

It's good to be here. I'm looking forward to getting to know everyone and seeing some familiar "faces", too.
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and miles to go before I sleep.
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