Welome Sloth. you made me laugh right out of the shoot, so I love Ya already.

Welcome to all the other newbys, I may have missed. I'm sorry as to the reason you are here, but happy to have the company.

:grouphug:

My intro
 

Oh Lordy, I just now figured out that I didn't post on the MS side of the board, but under general...so here I am again to intro.

I have been diagnosed since Sept. 2004 after an astounding sudden bout of ON. I never had any symptoms before that until I looked back and realized that mebbe some of the strange stuff that went on with my body wasn't just from beating it all to hell. Things have gone downhill from there but if I have to have MS, then this is a good time to have it!! I go for my first infusion of Tysabri in THREE days and after waiting since Feb 2005 to get it I say IT'S ABOUT TIME!!!

I am, going to be pretty old soon...:p I live in Maine, on a lovely spring fed lake.

I like chocolate, whitewater, stars, smoking, drinking, eating and sex...:eek: ...not necessarily in that order!

I am tall enough (6'2) but I could stand a few more inches of height to match my weight.:cool:

I like to stalk people and I have a victim in mind right now who comes here...shhhhh:Wave-Hello:

Welcome to Neurotalk, RW.:) So sorry for your DX of MS, but glad you found us. Here you are among friends who hear you and understand.

I hope Tysabri helps you to hold back the monster, until a cure comes along. Oh, and no problem on the stalking. It's a requirement here.:D

Looking forward to geting to know you.

I introduced myself on the general neurotalk intro, before I figured out what was what.

I'm Greta. Been hanging out at a couple of other messageboards for the last few years. I was dx'd by accident in 2001. Went in with headaches and came out with MS. I have a bunch of lesions, a positive LP, but no symptoms and no exacerbations. I started on a DMD within a year of my surprise dx and the Swank diet a year after that. I'm now 5.5 years into MS and I still have had no MS issues. My only MS symptom is fear of the future/unknown - which I deal with by hanging out at MBs and chatting with others. Good therapy.

I have 3 dogs who are practically perfect in every way. Unless they are busy vomiting on something - in which case, you'll hear me kvetching. 2 10-yr old greyhounds and a 2-yr old pug. They keep me busy and always laughing.

I'm married, but we have no kids at the present time. We are in the process of adopting, but it's a long wait. I'm pretty active - do a lot of walking and am getting more and more into kayaking. Life is good.

I have a mom with SPMS. She was benign for 20 years and then for the last 15 years has steadily gone downhill. Life is hard for her, but she is my inspiration. She doesn't know I have MS - and it's best that way.

I'm really glad to have found this place. It has some old as well as some new friends.:)

Hi Gerta!:Wave-Hello:

Welcome Greta, glad you could join us.:)

Your story sounds a little like mine except I'm the Mother with SPMS after 17 yrs of remission and my DD is non symptomatic MS, at the moment.

I'm not going downhill anymore, though, since I've been on LDN. Get your Mommy some, it may help slow her progression.

BTW my Daughter (36) has been on LDN from the beginning.

Thanks Sally - I've been thinking of getting my mom on LDN for awhile but haven't made the effort to pull together the necessary info. Her neuro is super cool and would probably be very open to it so I need to get off the pot. She could use some symptomatic relief.

Welcome Greta! Welcome everyone! Welcome Taffy!

Have some brownies! Your Welcome Wagon of Chocolates will be delivered soon!

Yeah! I get chocolates!!!!

Wow...another intro, how fun! I like this place!

I'm Taffy and I like chocolate and I have Ms.

(tapping fingers on desk)

What is taking that Welcome Wagon so long?

Hi Greta!

Hi Taffy!

Curious is probably taking some time off but I'm sure when she is back there will be chocolate:D

Did someone say CHOCOLATE? :p

Welcome Taffy.:D

hello to this group...
 

I am DizzyDean, new to this group.

I have RRMS, Sx started perhaps 17 years ago, but no Dx until a few years ago. Its been mild, more nuisance than disability really, my episodes/relapses seem to be spaced a few years apart so far. Over the years Sx have included ON, Lhermite's, numbness, tingling, tinnitus, but nothing that hasn't resolved after a bit.

Today I take LDN and a ton of vitamins., but I am "toying with tysabri" and "considering copaxone". I know that sounds like a weird dichotomy, to choose either the mildest and arguably least effective drug, or instead choose the most effective and potentially most dangerous one. I'm still negotiating all of this with my Dr, who doesn't seem keen on my doing tysabri as a firstline therapy but would probably go for it if I absolutely told him no way to ABCR.

yeppers. my son graduated high school this last weekend.

sooo.....i finally got around to baking today. :D Attachment 1415

howdy howdy all the new members.

:grouphug:

DizzyDean's in the house, and just in time for Curious's cookies! My, many alliterations abound!:Wave-Hello:

Welcome DizzyDean...(slapping hand) don't eat all the cookies!

Welcome DizzyDean. Glad you found us. I'm an LDNer too. :)

Hello DizzyDean and Welcome to NeuroTalk!

Great to find you at last...
 

... thanks to Cheryl from Idaho, the Fearless AviatorGirl on that other message board.

What a vast and elegant website! I don't think there's a subcategory missing from the roster. I'm VERY impressed with you all!

Okay, I'm Jane the Pain from Glendale, OH. I was officially diagnosed with the RR (no, my darling nephew, I am not a railroad...) in '03 after getting "the" news back in '89 that my mild optic neuritis would, in all likelihood, turn into "the real thang." UGH.

Four years and five neuros later (the gang from that other message board will affirm that I'm something of a problem-child... :D ), I'm smack dab in the middle of the Tovaxin clinical trials going on in Columbus, Ohio.

And since I noted a Tovaxin thread on the list, I'll save the "volume" for that.

Once again, you all have a first-rate website--"inhabited by" some of the most informed and interesting people I've read in ahile.

It's great to be here--THANKS again, Cheryl, for sending me the link!

Best to you all and I have to get caught up here!

--Jane the Pain

:Wave-Hello: well howdy jane and:welcome_sign: to NeuroTalk.

i'm glad you found us. thanks cheryl. :D

soooooo...did she tell you to bring snacks? :winky:

Snacks? Hey, I'm the Queen of Cheetos in my neck of the woods... and anything/everything else that's supposed to be bad for me... :D

(Thanks for the welcome!) :)

Hey Jane!

How about fixing me an omelette, now that I'm watching my cholesterol and all.:trampoline:

Hello Jane and welcome to NeuroTalk!

I'm glad Cheryl showed you the way:)

Hi Jane, A big Welcome to you. Nice to meet you.:)

Pass the Cheetos....here's some chocolate.:D

Howdy Jane and Welcome! ;)

:D Now that I feel so much better, I can dust off my "Recipes To Try" to-do list. I think the first grand experiment will involve making something omelette-y that makes you think of Kentucky Hot Browns. You know, lots of sharp, rich Cheddar sauce and bits of country ham.

How does that sound?

Okay, okay, I'll add some turkey, too, so the Food Police don't put me up there with the primary "fat" offenders like Emeril and Paula... :D

Me, too! Lots of good people and oh-so-many informative posts! :)

I think they should be the new breakfast food... and lunch... and second breakfast... tea (and all those other Hobbit Meals)... :p :D

Thanks! I LOVE that Pepsi-drinkin' icon! :D

A big HELLOOOOOOOO to Dizzy Dean, Jane and anyone else I may have missed!! It's great to have you added to the bunch! You're right, you'll find a lot of friendly, caring and knowledgeable people here. Enjoy!

Taffy: I love your Pepsi icon too -- especially since they're one of Jeff Gordon's sponsors! Woo Hoo!!! Can you tell I'm a NASCAR fan?

Hope everyone's having as good a day as possible.

Thanks you for the warmest of welcomes! :)

It's great to be here.. now if we can just find a Cheetos-chompin' little icon, I think the roster will be as complete as anyone could ever imagine. ;)

Lots of new people! Hello! I've been a little remiss in my welcomes! Some familiar faces tho! Good deal! Nice to have you here! :hug:

Hello all!
 

It's wonderful to find this!!! Thanks ever so much for being here!

I'm Bethany...dx was just this past Jan but, as in most cases, several misdiagnoses sent me all over h*ll's half acre before I got here (carpal tunnel flare ups due to writing term papers in '92, l'hermittes was cervical disc problems in '98, thyroid problems related to pregnancy in '00)

so here I am now... actually kinda glad they were wrong for so long. I took the news MUCH better at 34 then I would have at 20 when ms signs first came on the scene. I can't STAND when people hear my dx and reply "I'm so sorry..." UGH! I'm not DEAD, I just wobble! To the outside world, I really just appear to be tipsy! I'm always worried that someone will truly think I AM rocked and give me a sobriety test... i'd never pass! (can't walk heel-to-toe, can't touch my nose w/ my finger, never did know the alphabet backwards...)

Anyway... supposedly the lesions are there and numerous and sizable. I have such limited knowledge that I don't always know exactly what I'm being told or what my next question SHOULD be (I'm making ALOT of this up as I go along and learning as I go!) Had first MRI's in December, went to the MS center @ Johns Hopkins 2 weeks ago for second opinion (they agreed... it's MS... no surprise there) and now I'm being sent for neuro-cognitive testing the end of the month.

The first neuro handed me all of the shiny, pretty marketing goodies for the big 4 and said... here are your meds options... pick one. Yikes! I, again had NO clue... anyway I researched & read and went w/ rebif which all the neuros (three now) have though was my best bet. The neuro at Hopkins thought that (if rebif didn't pan out) tysabri should probably be the next step.

Life on rebif has sucked (although not as bad as others, from what I've been hearing.) any pain or stiffness i had before rebif has quadrupled with the meds. i complained and they gave me neurontin... never again! The migraine that came after lasted for 3 days!

sorry-- 'nough of my bemoaning... thanks for listening!!

Bethany

Hi Bethany, nice to meet you. So sorry about your DX, but glad you found us.:)

I've had Ms for lots-a-years. My Daughter is your age and was also DX with MS a few years ago. She decided not to go on any of the MS Drugs and instead, is on LDN..(LowDoseNaltrexone)

I hope you find a Med that works for you. It's a pretty sad choice but, at least, now we have a choice. When I was first DX, their were no meds, except steroids..Yuck!

I do so hope they find a cure in your day, Kiddo.:)

Come on in and make yourself at home. We are a fun bunch of people who know a bunch about MS, so we all understand you, when family doesn't always.

WELCOME..:grouphug:

Hi there Bethany! Pull up a chair! Remember...whatever the others say...I am the nice one here...really!

:Wave-Hello: Hello Bethanylynn and :welcome_sign: to NeuroTalk

Hi, Bethany!:Wave-Hello:

Welcome to NT! Glad you found us, we rock the cashbox. Sorry about the diagnosis though, I wish that no one ever had to hear that again.:(

Stick around awhile, we're pretty obnoxious but we understand what you're experiencing and have clever ways to foil the foe.;)

Welcome Bethany,

Sorry you;re here, sorry we're all here, but misery does love company :hug:
I'm new here myself and am finding wonderful, warm, caring people! funny too!

Cindy, thanks for the avatar, you're brilliant :)

You got it, Eva, and welcome to NT. Hopefully, we won't scare you off too quickly!;)

Is it snowing out? Someone sure has Eva "snowed".. ha

Hey Bethany... WELCOME! Sorry I am late w/this greeting.

Taffy said she's the "good" one, but my bet is on ME!!!!

Glad you found us.... Sorry about your DX tho...... take care...:welcome_sign:

Hi from new member
 

I just posted a new thread in this forum introducing myself and then I saw this thread. DUH!!

Should I redo it?

Margie

I didn't read your intro in the general intro forum, so, WELCOME to the MS Forum...I'll go read it now..:D