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Old 03-19-2009, 11:14 AM #641
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Hi Mishi....Welcome. I'm so sorry for your MS DX, but glad you found us. You will find our bunch a very welcoming fun lot of people.

We are Family and if you want, you are now a member. Come back and talk to us....don't be shy, join in anywhere.

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LarryLDN (03-21-2009)
Old 03-19-2009, 12:03 PM #642
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Hi Mishi, and welcome to NeuroTalk! This is a great forum. Don't forget to check out The Stumble Inn for some non-MS topics and also fun and games.

I was diagnosed with MS in the early 1990's, and am borderline SPMS. I'm on Betaseron, wondering if it's worth it but still injecting.

Looking forward to your posts!
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LarryLDN (03-21-2009)
Old 03-23-2009, 08:29 PM #643
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Hi all:

I was diagnosed with MS a little over a year ago. I'm a 30 year old woman, but as of late, I feel more like I'm 60! I'm still trying to get a handle on all of this; I'm confident that I can.

I'll poke around on here and see what I can learn from all of you.

All Best,

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Old 03-23-2009, 08:41 PM #644
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Welcome to NeuroTalk, AaHaA. Glad to have you here. Pull up a chair and stay awhile.

I am a 60something year old, so I can tell you how it feels..LOL!
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Old 03-24-2009, 09:46 AM #645
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Hi AaHaA, and welcome to NeuroTalk! This is a great place to come to with lots of friendly and helpful people.

I have MS, and this is mostly where I hang out. There is also The Stumble Inn for non-MS posts and games that are fun and help take your mind off your problems for awhile. Hope to see you around.
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Old 03-28-2009, 06:22 PM #646
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Hello everyone,

I have not been diagnosed with MS as yet, but am due to see a neurologist in the next few weeks. I have had 2 MRI scans in the past, both of which were on the brain, (1996 and 2003) but came back OK. This time round, I am getting more neurological symptoms which do not appear to be abating.

I know no one other than a neurologist can diagnose me after the appropriate tests, but can anyone comment on the list of symptoms that I have, especially those with a *
*Temporary blindness, after increasing blurred vision (resolved after about 20-30 seconds)
Numbness in legs, right hand and arm
Slurred speech/hesitancy in speech/can't find right word
Burning/pins and needles
*Pinging electrical sensation down spine
*Sensation like someone is unzipping my spine?
*Inflamed back
Stiffness in legs on walking and worsening when hot and stayed in bath too long
*Groin pain
Tremor in hands
Limbs feel very heavy, even after a short walk
Sensory neural hearing loss
Tinnitus
Vertigo and nystagmus
Balance problems
Dizzy/giddy spells
Tingling in lips
*Had drooping left eye lid in 2003 and unequal pupils (went away within a month or so), this is also when I lost my hearing in my left ear, but had mild hearing loss prior to that
Arthritic fingers and one lump on right middle finger and ganglion on wrist?
Swollen glands behind the ears that appear to be up most of the time....
Feeling of my chest tightening, which does not appear to respond to my asthma inhalers

I already have degenerative discs in the c region and lordosis...

I was previously diagnosed with ME in 1993, but had neurological symptoms from the outset and now beginning to wonder if this was right. The pattern was relapse/remitting, but neurological symptoms are much worse now...

Sorry to go on and on...

Regards Maroc Orange
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Old 03-28-2009, 07:03 PM #647
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Welcome to our little corner of the world, Maroc..

I'm not a Doc but, I hereby deem you as most likely having MS or something similar.

Some Neuros wait to give a formal DX of MS, until 16 zillion tests are positive....but, that's just it, there is no positive test for MS.

Hang in there and hang with us. We are helping each other through this carp, one day at a time. In the meantime, make sure your Neuro or PCP properly treats your symptoms.

Again, Welcome and I hope you like it here.
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Old 03-29-2009, 09:26 AM #648
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Hi MO, and welcome to NeuroTalk! This is a great forum, I come here myself quite a bit. There are lots of friendly and helpful people here, and before long you feel like you fit right in.

My advice to you is to keep a journal, if you haven't started one already. I keep one with all doctor visits (not just neuro), questions, tests, answers, lab work, and meds. It makes every visit so much easier if you have everything written down and in one place.

I'm looking forward to seeing more of your posts.
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Old 04-03-2009, 01:16 PM #649
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Hey, .. some of you may remember me,

After approx 2 years of going really well, I was set majorly back by a nasty flu in about Feb this year, it left me fairly weak in the legs and bought back on my anxiety and memory problems.

So I'm back researching stuff .. I've kinda been through hell and back with other stuff since I was on MSWorld (my main hangout...account has since been removed upon my request)

So to all my old buddies, hi And drop me a PM if you'd like! Id love to know how you're all going.
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Old 04-03-2009, 02:04 PM #650
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Hello, PhireX and to NeuroTalk.

I'm sure you have already seen many usernames that are familiar.

I remember reading about you and another board member. I hope it's going well Why not start a thread and tell us all the latest news, good or bad.

I'm sorry you had the flu. It's recommended we get the flu shot, I wish you would have gotten one
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