HI Sue! welcome!

Hi Sue! Welcome to NeuroTalk. We have lots of members here with MS so just join right in wherever you feel comfortable.

A big Welcome to all the new members. I was not on here for a while so I missed many of the new people. So I just wanted to say hi and glad you found us at Neuro Talk.

We love new people. I hope you post down on the main forum when you can. If you think any of the other forums on here can help you just ask. We have so many wonderful places you can talk about your problems, and/ or questions too. Nice to meet all of you.

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I am Sally, and have been DX with MS for 32 years, with symptoms dating back to 1964. Yep! Long Time. The good news is, I was in remission for 18 of those years. I am now SPMS, can still walk, but use a scooter around the house and for outside distances. I walk as often as I can, so I won't lose the ability.

I am on LDN (for 3.5 yrs) to steady my MS and Paxil for Anxiety. I have used Avonex and the Copaxone in the past.

Tell us about yourself and ask any questions you want. We are here to support you in your fight and your coping with MS. We might even have some fun, while you're here.

Best Wishes

Hello, Sally, my name is Margo..I have recently been kinda diagnosed with Multiple Sclerosis. The Neuro found 8 lesions on my mri, but my spinal tap came back negative. I have been so tired that it has been a super challenge to even go to work. I really feel drunk, and I hate the feeling. My kinda diagnosis has been rather frightful, for I thought I had a pinched nerve in my arm. I have been having a feeling in my hand that it is frost bit. However, this feeling only comes when I am sleeping, while awake my arm is just heavy and very tingling. My legs are weak and wobbly. If you could give me any information on mulitple sclerosis I would greatly appreciate it. My neuro really doesn't have many answers for me, and as scared as I am I need some kind of feeling of peace with this.

Thank you so much,
Margo

Hi Margo, welcome to NeuroTalk and the MS forum.

I can't help you with your DX, except to say, that, if your Doc is not a MS specialist, it would be a good idea to see one. It sounds MSy to me but I'm only a specialist in having this disease for a long darn time.

Come in and join us and we'll all try to compare notes with you and see what we see. Hang in there, you're in good caring company here.

hi. i've been checking in here the past few months looking for answers, trying to understand what is going on with me. right now i am scared, nervous and just plain tired of feeling lousy. let me start at the begining and see if anyone can help me understand. last june i started to drop things with my left hand, a small area above my wrist appeared at same time with mild pain. dr didnt know what it was and sent me to ortho dr. when mri of wrist and emg was "ok". ortho dr. didnt know what was wrong with wrist either. he did xrays of neck (arm from elbow to fingers ached with tingling). dx: degenerative changes in cervical spine. "can't do anything more for you- go see a neurosurgeon . 1st neurosurgeon told me my problem wasn't in his realm of practice . now both arms ache bad, can barely work and all tests come back "ok" or normal. new neurosurgeon in nov. did emg on left arm. omg - severely pinched at elbow. surgery to move nerve dec 3. had heavy legs (dead legs) for couple weeks last fall but it went away, well its back along with my foot feeling like ice. periodically it feels like hot water is poured down my calf but skin is fine. wake up with headaches last forever as well as both arms heavy and numb. this new symptom is the most annoying. my face feels kinda numb after novacain wears off on my cheeks towards ears. i am just so frustrated hurting all time and being ignored or dismissed by dr.s. i sa the neurosurgeon for less than 2 minutes, this time brought my list with me. getting mri of brain and cervical spine this tuesday. sorry so long but i'm desperate to understand and be understood. thanks for listening at least.

Welcome to NeuroTalk, Snookie.

Sure sounds like it could be MS, but your Neuro will do all the tests to try and determine that. In the meantime, hang with us and we will try to help you along the way.

Welcome Snookie (love the name) I hope you find answers. Dismissive MDs tend to be common and that makes me mad. Perhaps a visit to an MS center would be of value to you? Your regular MD could help you schedule it. If your regular MD seems tired of you, or dismissive perhaps you can search out a new one. Sometimes fresh eyes can be helpful.

Pull up a chair and stay a bit.

Welcome Margo and Snookie,
I'm glad you found us. You both are in the same situation. You have symptoms, pain, tired and more, yet you can't get an answer.

Everyone deserves to know what is wrong with them. You want to know why you feel so crummy all the time. An Ms Specialist in a teaching hospital might be the answer. They know what tests and the protocols for these tests to ask for them correctly.

They have seen MS and other neurological diseases in many patients and how it can present itself in so many different ways. No two people have the same symptoms.

If you feel that bad, don't give up. Some drs wait and see, over time, before they dx a disease. But get tested and keep the results and all tests, and keep a journal of symptoms. Good luck to both of you.

Hi my name is Carol and I have MS. I have many questions for everyone on this site. I live in upstate NY and have 3 children. Single mom. two of them are grown 24 and 20 both girls and I have a son that is 15. I suffer from knee and arm pain since the summer. I suffer from a emotional disorder I think because I don't handle situations like most people. I also suffer with depression and cry a lot of the time. It scares me to be like this. I don't want family to see me like this and don't want to complain all the time. I just need to talk to people in my situation, so if your out there please let me know. Thanks, Carol