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#631 | ||
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New Member
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Good to find this place I have much needed, and hope I may help someone some day. I am rounding the corner of what feels to me as big changes in my life. I am 56 female with MS 20 +/- years. Starting my 3rd year on LTD. Since January I have been down with "it", sort of at home with "it", because of all the years of up and down, ins and outs of "it" (MS), I find myself poorly packed for this one. My suitcase of tricks (coffee, provigil, napping in car) are not working now. . I am on some home care now, which I am glad to have. I joined Netflcks, and I am hoping for some guidance from those who find themselves in a similar way, beached.
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#632 | |||
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In Remembrance
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Welcome to the "Beached Club", Annerich..
![]() I've been a member some 40 years, now, give or take 10 for remission.. Come on in and join your new Family. Happy to answer any questions you may have. ![]()
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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#633 | |||
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Magnate
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Quote:
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Mair . |
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#634 | ||
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Member
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Well I guess I will jump in and say hi.
I was diagnosed with RRMS one year ago and have been on Rebif since. I have been looking for an answer to my symptoms since I was about 14. I'm 24 have a four year old daughter and two year old son. I also have a very supportive husband and a wonderful family who I would be lost without. I was also diagnosed with POTS last June, and now they are in the process of trying to diagnose me with some type of myopathy most likely MG. I get spells where I can't move or talk and can barely breath. As far as MS goes I have ON, cognitive issues, balance problems and left sided weakness. I have been through so many tests in the last two years I want to scream and will be glad when they finally decide they know what's wrong with me. Well besides the fact that I'm just weird ![]() ![]() I have been on the web md support group for a while know and found this site for the MG support group. I have been on there for a couple weeks now and thought I would join in some conversations here. I hope everyone is doing good today. Kristie |
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#635 | |||
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In Remembrance
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Welcome, Kristie....so nice to meet you and glad you are joining us over here.
Sounds like you have a lot on your plate, for a youngster.. ![]() ![]() Come on in and join us anywhere or start a thread and tell us your story so far. ![]()
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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#636 | |||
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Magnate
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Hi Kristie.
![]() I wish you the best of luck getting some answers from your docs. ![]() ![]()
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Mair . |
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#637 | ||
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New Member
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hello this is Ozzy, my Fiancee jennifer was DX with MS at 13 she is now almost 20yo there is a thread in the MS section with more info we are here to seek help from others,to learn more about Ms and to help others with our personal two cents. you will be seeing us around.
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"Thanks for this!" says: | LarryLDN (03-21-2009) |
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#638 | |||
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In Remembrance
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Quote:
Jump in anywhere.. ![]()
__________________
~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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"Thanks for this!" says: | LarryLDN (03-21-2009) |
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#639 | |||
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Magnate
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Popping in to apologize for not stopping by more and welcoming everyone new!!
![]() Welcome to everyone!! Jump right in! ![]()
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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#640 | ||
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New Member
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Hi my name is Mishi. I have been DX for 3 and half years we rmms. I was on rebif and had a good result but changed to avonex because of convenience and I am yet to see the results of that change. I was in major denial for the first couple of years but think I am starting to cope. I wanted to get into contact with others and hear their courageous stories to help me through the bad times. I really have no idea what this drug is doing to my brain except that it slows the progress of the illness. So if any one has any stories or would like to reply, please do so. Hope to hear from you.
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"Thanks for this!" says: | LarryLDN (03-21-2009) |
Closed Thread |
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