Welcome back Sunflour, it's good to "see" you. Please join in here on the board too -- quite a few of us can't "chat" anymore.

Welcome Clark! Nice to meet you, but sorry it's here on the MS board. It sounds like you're having a flare (relapse) and is probably why you were diagnosed. I'm not sure if anyone can prescribe IVSM (steroid infusion -- solumedrol) until your appointment with the neuro, but that's the usual course of action. Sometimes Prednisone is given also. These usually help to end the relapse and send your MS back into remission. Did you have many symptoms before this exacerbation?

Hope you get some help soon and find what course works best for you. Take care!

Welcome to NeuroTalk, Clark. I'm so sorry for your suffering right now. I hope your exacerbation ends and you feel better soon.

Please come join us.

Hiya Clark. Pull up a chair and squat a while. We would love to hear your story.

hugs to all the new wee ones, come on in!

Hi sunflour and welcome back. I wasn't on here ten years ago but I wish to welcome you back to our friendly neighborhood. I am sorry to here you got tagged with another DX, Lupus. I have a few dx's myself, autoimmune stuff. Not fun, but I'm glad to meet you.

Hi Clark, Welcome! I'm glad you found us. Yes you do sound like you are in a relapse. Call you Neuro and see what he thinks. Maybe you need to start with IVSM (IV steroids) before going on Avonex or one of the other DMD's.

The DMD's won't help you to get out of a relapse, just considered long term therapy. Good luck and I hope you feel better. I get bad and then good again, it's the nature of the beast. (MS). Nice to meet you.

Hi everyone,

I am just seeing this site for the first time today. It seems like there are heaps of information and support to be found here.

Maire
DX probable MS because of my abnormal MRI and negative LP.

Welcome to NeuroTalk, Maire. Nice to meet you. Come on in and join your new family..

Welcome Sunflower, Clark, and Maire!! loads of info and support here!!

Hi, I was diagnosed with MS in January 1998. I didn't start medication until after my second child was born. Started Avonex in 1999. Took that for about 6 years until I had a big attack and my neuro switched me to Rebif. I have been on that for the past 5 years. I have to admit that I wasn't the best at taking the shots three times a week. I recently had a bad MRI and now my neuro wants me to swith to either copaxone, Tysabri, or gilenia. I know I can't do copaxone. If I was not good about 3 times a week I'm sure I would be a nightmare if I had to take a shot every day. I am so torn between the T and G. I would like to take the G but am worried because it just came out and because of risk of infection. Have been trying to research my options and came across this board. If anyone has any input I would really appreciate it.

Thanks,
Lisa

Hi Lisa and welcome to NeuroTalk.

I'm sorry that the MS Meds arent working for you so far.. That's a long time to be shooting yourself for nil.

I don't have any suggestions, other than LDN, because It has help me to stay stable, when the DMDs did not.

I hadn't tried Tusabri and for some, it works and seems to be a good thing, but for some, it does not work at all and then of course, there is that looming risk of contracting PML.

I hope you stay right here and work it out with us. There are plenty of people here on one DMD or the other, who will tell you of their experience. We will support you, whatever method of treatment you choose.

I just stopped taking copaxone after many years, and a failure off of Betaseron. since I had a bad reaction to the Beta, I am not eligible to do Ty. I cant advise you on Galina other than to say I am hanging back and waiting to see what happens when they put a much larger group on it. The clinical trials were so small and a tight knit, well chosen group. Lets see what happens when everyone gets a chance at it. Please read, read, and re read all about it. it carries alot of risks, just as Ty does. Its a choice that deserves great research before its chosen.

Welcome to the club house!