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Old 10-05-2010, 03:44 PM #1
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Hi everyone,

I am just seeing this site for the first time today. It seems like there are heaps of information and support to be found here.

Maire
DX probable MS because of my abnormal MRI and negative LP.
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Old 10-05-2010, 08:24 PM #2
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Welcome to NeuroTalk, Maire. Nice to meet you. Come on in and join your new family..
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Old 10-05-2010, 08:42 PM #3
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Welcome Sunflower, Clark, and Maire!! loads of info and support here!!
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Old 10-05-2010, 10:30 PM #4
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Hi Maire,
Welcome! I'm glad you found our NT forum. There are so many people here that can be kind and helpful to you, and you can help us too.

There are many people here in limbo, probable, or definite MS, along with other dx's thrown in. We have it all here.

If you have any questions, or need help or support we are here. If you need to just talk or vent, we listen.

Nice to meet you.
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May happiness be at your door. May it knock early, stay late, and leave the gift of good health behind.


"Life is what it is". We can only focus on controlling those things we can control, we must let go of the things we can't.
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Old 10-06-2010, 12:45 PM #5
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Default Thanks for the welcome!
Good to meet you all. I look forward to learning more about individual issues and ways to deal...
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Old 10-09-2010, 07:38 AM #6
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Smile I'm glad I found this site!
Diagnosed in 2001. Relapsing/Progressive. It's very difficult to discuss MS related problems with friends and family for various reasons. I've already seen discussions here about the problems many of us apparently share. Thanks!
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Old 10-09-2010, 12:25 PM #7
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Welcome, Mamo, glad you found us. We are your MS family and we do understand. So come on in for the giving and receiving of support....and even a little fun at the Stumble Inn..
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"The best way out is always through". Robert Frost



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Old 11-05-2010, 06:40 PM #8
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Hi, I was diagnosed with MS in January 1998. I didn't start medication until after my second child was born. Started Avonex in 1999. Took that for about 6 years until I had a big attack and my neuro switched me to Rebif. I have been on that for the past 5 years. I have to admit that I wasn't the best at taking the shots three times a week. I recently had a bad MRI and now my neuro wants me to swith to either copaxone, Tysabri, or gilenia. I know I can't do copaxone. If I was not good about 3 times a week I'm sure I would be a nightmare if I had to take a shot every day. I am so torn between the T and G. I would like to take the G but am worried because it just came out and because of risk of infection. Have been trying to research my options and came across this board. If anyone has any input I would really appreciate it.

Thanks,
Lisa
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Old 11-05-2010, 07:47 PM #9
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Hi Lisa and welcome to NeuroTalk.

I'm sorry that the MS Meds arent working for you so far.. That's a long time to be shooting yourself for nil.

I don't have any suggestions, other than LDN, because It has help me to stay stable, when the DMDs did not.

I hadn't tried Tusabri and for some, it works and seems to be a good thing, but for some, it does not work at all and then of course, there is that looming risk of contracting PML.

I hope you stay right here and work it out with us. There are plenty of people here on one DMD or the other, who will tell you of their experience. We will support you, whatever method of treatment you choose.
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~If The World Didn't Suck, We Would All Fall Off~
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Old 11-06-2010, 07:41 AM #10
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hello Juanita and Lisa! Welcome to the club house. Pull up a chair and join us.
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RRMS 3/26/07
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