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Old 05-12-2008, 04:18 PM #1
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Default Results- I have to crow!
I had my one year neuro appt. since going on Tysabri.
The doc did a full exam, listened to my chief complaint (still spasticity) and prescribed an increase in Baclofen ( 20 mg TID from 10 mg TID)

He is pleased with my progress and so am I! Everything appears normal! Who knew that a real doctor would EVER say I was normal!

All tests from my last appt came back normal, LFT normal, everything right in the correct ranges! I have been taking 2000 mg of Vit D all winter and he was semi concerned about that, but I reminded him that I work a long night shift and don't SEE the sun for months, and since the levels were within normal range He said keep it up and we will check again in 3 months.

I started the Baclofen yesterday and as I posted on another thread, I was able to put my socks on without a struggle!

I went to work last night and I made it ALL night without having to HOIST myself out of the chair and wait before I walked! I just got up and walked when I wanted to. I got stiffer as the night ended and when I came home this morning I was ready for more, so I took the last dose with my tizanidine and went to bed.

This afternoon I got right out of bed without stretching!!! ( I had to go reaaally bad!) I went back to bed just to do the stretches because it's routine now, but I FELT like I could have skipped them.

One thing we noted is that I haven't been SICK even once during this whole year! No colds, no infections, no blurting, no rashes, no NOTHING! I don't get sick much anyway but it's strange not to have even had a cold, especially with the population I work with coming down with everything under the sun in the past few months! Just this last month it's been diarrhea and vomiting non stop at work!!

I am glad that we have drugs. I was NEVER a pill popper, always worked through illness, hardly even took aspirin except for menses pain. I've even gone off the Tylenol 3 I took for that! (Could Baclofen work on mens. cramps??)

Now I am willing to try what my doc suggests when I DO have problems. If it doesn't work I can always quit, but things are better with drugs! I guess ya live and learn, huh?

I feel like I have been waiting for the other shoe to drop for the past year and something bad to happen. Now if it does, I can bend down and pick it up!!

Infusion # 14 on May 22!

Onwards and upwards!
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.
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Old 05-12-2008, 04:54 PM #2
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Yeeee Haaaa !!!

Good for you !!!!
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Old 05-12-2008, 04:58 PM #3
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River glad everything went well for you that is awesome!!!!

I can't take baclofen because it doesn't work for me..I take zanaflex and YES I have used it for menstrual cramps and it works great! So I say try it and see!

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Old 05-12-2008, 05:07 PM #4
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Oh my friend I am sooooo very happy for you! As you know I take Baclofen and wouldn't go without it! Did that once and won't ever do it again. I am now taking the 20mg 4x a day. There are some days I only take it 3 times but I won't go without....

Congratulations now I want his number so I can get into him!
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Old 05-12-2008, 05:22 PM #5
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Glad to know that everything is going so well!

Whoo hoo!!!!

I would call it the Tysabri superhero solution. (TSS)
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Old 05-12-2008, 05:24 PM #6
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Congrats RW! I can't compare like these girls, I'm just a caregiver. LOL

I love good news and thanks for sharing yours!
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Old 05-12-2008, 06:49 PM #7
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Oh, I love to hear good news, like this. WooHoo!!

Congrats!!
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Old 05-12-2008, 07:08 PM #8
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Great news!!!
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Old 05-12-2008, 07:09 PM #9
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That's great RW. It's always nice to get some good news once in a while, isn't it?!
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Old 05-12-2008, 07:30 PM #10
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Wowwweeeeeeeee!!!!!!
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