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Old 05-17-2008, 12:00 AM #1
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Natalie8 Natalie8 is offline
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Join Date: Apr 2008
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15 yr Member
Natalie8 Natalie8 is offline
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Join Date: Apr 2008
Posts: 900
15 yr Member
Default advice on DMD dilemma

I think I know the answer (and right decision) but I need some confirmation? reassurance? support that I am making the right choice.

I've been on copaxone for 6 1/2 weeks. It is making me feel like crap. I'm on anti-nausea meds they normally give to chemo patients to help with the extreme nausea. I'm taking prescription naproxen for muscle aches and flu-like feelings. The drug makes me fatigued. I am only half functioning in my life right now. It's all I can to do to get up in the morning.

I don't think I can take it anymore. I have toughed it out for what I think is a good while. I have an appt. on June 5 with the big MS clinic in my city. Every week that goes by, I keep telling myself, just hang on until then. You can talk to the new neurologist about what to do, what the choices are etc. Each week I say, maybe you will feel better if you last one more week. But I just don't think I can take it anymore.

If I go off the drug I feel like I am a failure or I am letting my DH down or letting the current neuro down. I think I am conflicted about what to do too because the C. people and the neuro seemed so surprised I feel this way -- of course, everyone says that C. is not supposed to cause flu-like side effects etc.

It it terrible to stop the drug? Should I keep hanging on? It seems a "quality of life v. possible benefit" question to some degree. I guess I just want someone to tell me that it is not the end of the world if I decide to stop the drug....that there are other options.

Ironic, that I just told someone else hours ago that they shouldn't beat themselves up about not tolerating meds but I can't seem to believe it for myself.

Thanks all.
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