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I'm in a massive relapse - if I ever came out of the 1st one - so I went in today thinking he would give me steroids and for 1 time since 1-31 I might feel better, but no. He told me I was already on the strongest drug (TY) that could be given. He said "You will just have to learn to live with this". He*l, I can't balance, the room goes around even when sitting, I have new sx lasting over 24 hrs, I have terrible pain in arms to shoulder blades, I have too much to even try to list.
Due to the extreme fatigue, sx, cog prob... I am home bound. Since DXed, I have done nothing but get worse! My house is a total mess, not cleaned in for ever, clothes everywhere, dishes.... I need help and he will not even give me oral steroids. This is how bad things have gotten. I can't and don't take good care of my child. I know I will have to make a desion there. I have not been out of this house except to Dr and a fast in and out on grocery since dxed. This is the 1st time I have ever posted exactly how bad things are. I'm ashamed. I thought I would get better - not worse. I have noone to help me - all family has passed and since move here no friends. I want out of this relapse. I want to be normal. I guess they were for real when they said I has severe agressive MS. Mine seems to be fast moving. I don't have the money for a housekeeper and nanny. Soon, I guess it will be a caretaker for me. Dam**** this and Dam**** the neuro. I'm sorry about typos - I can't see and I hurt.
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. ~ Sheena~ . |
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