I got a bit better for an couple hrs. Still much pain, sx..... but less for a few - no drive -food ext.... My ex stayed till I guess tonight or am. I know that is why I started to get better. I just can't be alone or w/kid. He thinks I am not alone due to my 6 yr old - I love her - but it makes it worse at this point. So much non MS stress factors too.. I think that is way I am so bad. I'm getting worse as I post - stress I know now. Everone has to have someone for support. Yes, I have found that to be true. 100% !!!!!!

Mem. day is to be his this yr, but he will not take Emily. I don't want her gone - but I want out of this relapse. I am no good for her if not out. I guess what will be - will be. and no I don't want my ex back. I just want a friend or even a so-called one.

Cheri - I guess if not much better I will take you advise. Thank you very much for it.

Sheena, thanks for updating. I understand how hard it must be to care for your daughter while your so sick. Maybe it's time to ask your ex if he can take her for just a few weeks, even part time so you can get some form of rest to heal. I have no doubt you love her but we all need a break sometimes. Don't be ashamed to ask her father for help.

Sheena, I would never have survived as a single parent, if it wasn't for the support of my ex at certain times along the way. He is not only a good father, but he is a good friend to me too.

Your ex (and his family) need to understand that teamwork is a necessity in order for your daughter to have the best opportunities she can have. All other animosity needs to be forgiven, for your daughter's benefit.

If it comes down to things being TOO difficult on an ongoing basis, then you will have to do what is "most" right by your daughter. You would not be the first person with MS who has had to make this grueling decision.

Again, I would just caution you to wait till you get through this first year to make anything permanent. Things can change on a dime with this disease; from IMPOSSIBLE to POSSIBLE, and back again.

Cherie

I woke up at 2-3am sick as a dog. Fells like around 102 temp. I doubt drs are open Mon. It's in my lungs again...

I think the major relapse may be getting better. The pain has eased a bit more and I am so grateful. But, I am sick a heck as am still in many parts of major relapse and illness too.

Cheri

No, I had a psy for 13 yrs and he retired in Dec. We could never find an anti that worked. I asked Neuro for prozac hoping it might work this time, but he refused.
No, on conseling and no money to pay for it or way to get to appointment. You know I was pull over and kept by police for being to sick to drive.

No, I don't think it is that. I seem ok there.

He does not as far as I know. However, I was told at the infusion center he had ordered the anti body test. I had it - no results yet. When mentioned at last appoint. w/him, he know nothing about the test or even what kind it was. I was told another Dr in practice must have ordered it due to swelling. I only left message for him. What is another Dr doing in my file?

You are so right here. I have no quality of life here or anywhere. I have a beautiful home just in a he** of a mess... I can't take care of it or Emily or really me since 1-31. BCBS will not pay for HC - I can't and don't know how to find help. But, it is terrible. I can't go on like this.

I think you just made my list for me. Add where is the money, have to get out somehow to close mother's estate this week, just got thing for jury duty and have to go to Dr for letter to get out of it, have to get my mother's headstone up over 1 yr late, (I feel terrible about this), and a list of 10 or so majors that have to be done this week w/noway to drive. Then 20 or so musts like will... for later. More major stress.

Ref Emily:

I'm going have to make that decision by end of summer. But, I may not even be able to get him to take her. While my life has gone to hel* since separation in 1-06, his has gotten great and he DOES NOT WANT HER. I'm putting it all in another post and trust me you will not like it.

On top of everything - this really sucks!

sheena,

can you contact your local MS society.
perhaps they can help with some referrals for help.

from your other thread...i'd try to call some local churches and see if one will help you, even temporarily.

if the TY isn't working (and i'm no dr) would it be an option to stop? then you could try some roids. again, i'm no dr.

is there any way you could see someone else?

(((sheena))) i'm new here, but I saw the title of this thread, and I really feel your pain. I hope it goes away. Perhaps the neuro you have isn't a fan of steroids, so since you are opting out of other treatments, you may need to seek a new neuro who does believe in using them when needed. Mine hardly uses them on me because my mother died of liver failure and he is trying to take it easy on my liver since I'm already using rebif. He waits until I completely lose something to give me roids.

If it makes you feel any better, my house is trashed too. I have about a years worth of laundry and haven't had a matching pair of socks in 6 months. I also have piles of mail and bills I've never opened.

Sadly, when you have MS, you don't just have MS. Seems like alot of other things seem to come along with it..which brings on more stress, which more than likely makes the symptoms worse.

Hope your symptoms go away and soon for you. Sometimes I don't think I'd hate MS so much if I didn't have to deal with so many ignorant people to make things more difficult.