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Old 05-25-2008, 11:42 AM #1
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I also agree, you doc is wrong. I have numbness and tingling on both sides. It's worse on the right, and seems to hurt more, where on the left it's a quiet numbness.

I'm hoping it's not MS for you, but a dx will set you on a path of learning and acceptance. Even though I don't wish MS on anyone knowing is better in my book.

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Old 05-25-2008, 11:52 AM #2
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Your doc is right and wrong.

You may very well have a B12 deficiency, and this could be causing your symptoms. If a B12 deficiency goes on for too long, your nervous system can be affected, and you may end up with peripheral nerve damage (and Paresthesia). In fact, that is one of the first things they should rule in/out when we present with MS-type symptoms.

http://www.b12patch.com/about-b12deficiency.html

The part that he/she is wrong on, is that we won't get symptoms bilaterally . . . that is not true. Numbness is one of my most prevalent symptoms with my attacks, due to spinal lesions. I will get it on one side OR both sides (either at the same time, or progressively affecting both sides over time).

Cherie
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Old 05-25-2008, 01:40 PM #3
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Quote:
Originally Posted by lady_express_44 View Post
Your doc is right and wrong.

You may very well have a B12 deficiency, and this could be causing your symptoms. If a B12 deficiency goes on for too long, your nervous system can be affected, and you may end up with peripheral nerve damage (and Paresthesia). In fact, that is one of the first things they should rule in/out when we present with MS-type symptoms.

http://www.b12patch.com/about-b12deficiency.html

The part that he/she is wrong on, is that we won't get symptoms bilaterally . . . that is not true. Numbness is one of my most prevalent symptoms with my attacks, due to spinal lesions. I will get it on one side OR both sides (either at the same time, or progressively affecting both sides over time).


Cherie
Thanks for answering Cherie,
I guess I was half hoping you all would be like "oh yeah your doctor is right" I was trying to kind of reassure myself. Like I said above, for now I don't have anything really bothering me. My eyes go blurry every now and then and my memory can be really foggy, but those are all b12 deficiency symptoms also. Now that my level is back up, if I ever feel as bad as I did over the summer I will get another MRI.

Thanks for all your help
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Old 05-25-2008, 02:17 PM #4
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Hi Cat

I am also one of the people who has symptoms on both sides and I am also dx'd B-12 deficient.

Some neuro's are still old school and need to be a little more aggressive with their thinking and treat the patient and not the disease.

Have you checked out the NMSS website or multi-sclerosis.org website for symptoms and explanations?

http://www.nationalmssociety.org/abo...oms/index.aspx

http://www.mult-sclerosis.org/mssymptoms.html

These two websites may help YOU understand in order to help HIM understand. Asking your doctor specific questions is the first step towards dx, but also knowledge is power (for you!).

It took a while for my doc to figure out the B-12 deficiency, but I now get monthly b-12 injections which has helped my fatigue, tingling a lot. I can tell when it's time for an injection.

Good luck. Keep us posted on your progress!
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Old 05-25-2008, 02:15 PM #5
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I took b-12 thinking my numbness was just that..a deficiency. Nope.. lol. All of my symptoms are always, or always have been bi-lateral, but my right eye hasn't recovered the same as my left. They both went out at once, as well as my legs and hands. Most of the folks I spoke to with MS were always on one side, and it had me wondering if I had ms or something else. Although I'm being tested for Devics Syndrome just in case, my neurologist assured me that MS can indeed be bi-lateral.
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Old 05-25-2008, 10:38 PM #6
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hello and welcome
the numbness use to always effect just my left side, now its also attacking my right side along with my left side, yes it can be annoying, so can people who cant drive
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Old 05-26-2008, 01:11 PM #7
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I can't feel my feet on the gas and break pedals. I see double too as well as flashes of light etc. Yea, i can drive, but I wouldn't recommend it. I only do in emergencies. Currently have a suspended license.. but working on fixing that problem.
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