I almost didn't even read this thread. I try to avoid "this is what I DON'T got", because it's very easy for me to dive in and wallow there. But then I realized: No. Every once in a while, in the company of people who understand, you need to just face the reality of what you've "lost". How can you re-group if you are in denial?

I try (don't always succeed) to balance the loss with a "but", and I see that you folks are doing that as well. For example:

I can't walk around the lake any more, but I can still walk to work.
I can't walk (safely) without a cane or rollator, but I can still walk.

So far, I have had mostly reductions, as opposed to losses. I can't do things as well, as often, as fast, as spontaneously, etc. But I can still work, see, drive, walk, talk (and talk and talk), and sometimes even think. Thank God.

I so agree, B2Y.

I can't think about it to the point where it depresses me. But I do think about it enough to remember to enjoy what I still have, to fight to keep what I have, to look for more, to see the window that opened when the door closed.

First, let me send a hug your way. This disease sucks!

I have lost my career that I spent many thousands of dollars being educated for. I have lost most of my eyesight. I used to be able to read day in and day out, now I use books on tape. I lost my ability to drive myself anywhere. I really hate that! I used to love being in the car. it was my freedom, my escape, and now, its just a way to get to the MD or pharmacy. I lost a large chunk of finances by being forced to retire. I lost friends who cannot adjust to my new needs. I lost stamia and the ability to stay out till one am, or walk up the mountain to have a picnic. I no longer run marathons.

I gained the true knowledge of just how much my husband loves me. He LOVES to listen to those books on tape with me. I used to read alone, now we enjoy stories together. When I am able we take a leisurely stroll down our own block. I have gained a chauffer. No more struggling for a parking spot or worry about a hot day taking my breath before I can get into the store. My chauffer drops me off at the door. I cant climb mountains anymore, but I can watch videos of mountains with my family. I dont go out to eat at fancy places anymore, but we cook together as a family. I have learned that my bed doesnt have to be made perfectly in order for the day to begin. Vacuuming can wait till I am able to do it. Laughing and being with my family is now my focus, not taking care of others.

I hope you feel better and are able to stop and smell some of those roses while you are in the slow lane.

Cheryl I am so sorry this is such a rough time for you.

You have met me before. You saw how badly I was walking. Now I am doing so much better. You wouldn't even believe how much improvement there has been. I really didn't think it would ever get better, but it did.

I really hope your loss of stamina is temporary and that you will improve dramatically.