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#1 | |||
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Magnate
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AGE??? ![]() I refuse to accept age as a disability! I am just as nimble in my brain as I was at 25...( nevermind how old I am now) Age didn't do this to me. MS did. Before MS started attacking me, I was just as able as I was at 25. Everything changed after MS( that $%^&*) I STILL believe that I will have more return of function. I just need time. People report return of function more than two years after the start of Tysabri. I AM going to be one of those people. I just need to quit eating and move my hiney more and sleep more and...I will...eventually...when I git rid of the spasticity! ![]() Glad to hear the baclofen kicked in so fast and the Astelin seems to be helping!
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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#2 | |||
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Wisest Elder Ever
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Does Baclofen make either one of you sleepy? I take 20 mg at a time along with 600 mg of Neurontin and it makes me very lightheaded, sleepy and loopy. It does help with the spasticity and pain, though. If I have something to do that I know about ahead of time I will skip my midday dose because I know I'll be staggering if I take it.
Just wish I could find something that doesn't give me side effects. I told my Neuro that I can produce the dizziness myself - I don't need a medication to do it for me! ![]()
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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#3 | ||
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Member
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Hello Herekitty. My spasms are from spinal cord damage from an accident, so I only need a muscle relaxer at night. They have calmed down from the initial damage, proabably because he swelling is better ( I had damaged 2 vertebrae in my neck) I was on 4mg of Zanaflex and I did find it made me sleep fast. I would never drive on it.
I am able to go to exercise classes a few times a week and I do find that stretching does help. Now I just started 5mg (cut pill in half) of baclofen. I did not feel as sleepy after taking it, but I think it may work longer on the spasms. I usually feel them when I am up to tinkle, faithfully around 3am ish when I am on Zanaflex. Supposedly Zanaflex has a peak effective time of 6 hours. Time will tell how different baclofen is compared to zanaflex. So far the astelin is still working on my drippy sinuses!! |
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#4 | ||
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Member
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Hi Riverwild. Chances are you are much younger than me. Sorry this disease has taken so much from you. It is nasty, and I feel bad that it can affect people as young as their teens. Its just not fair.
I am a realist, at 51, and I do think my age can influence my energy level, especially when my room is not air conditioned at work. Also I have some unresolved muscle tightness in my legs from a back surgery done through my abdomen. That does not help. I will be back at PT this summer to work on that. I have been reading your posts about tysabri and I wish you have much success with it. I am still deciding what to do next and going through some other tests. I could not tolerate Betaseron. |
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