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Good news! My appointment got moved up!

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Old 07-02-2008, 09:27 PM #1
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Great news, Faith!

Here's a song to get you there:

http://www.youtube.com/watch?v=DOTKrnBtDg0
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Old 07-02-2008, 09:39 PM #2
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That is great news! I wish you the best of luck tomorrow. Let us know how it goes.
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Old 07-02-2008, 10:02 PM #3
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Thanks for all the good wishes, everybody. I'll let you know how the appointment goes.

Twink, I absolutely loved your link! I didn't know that song (Kansas City), but I enjoy the Beatles. Oh, they looked so young, like little boys, back in that 1964 clip. I just had to show it to DH.

Three hour drive to KS City, so I'll be spending 6 hours in the van tomorrow.

~ Faith
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"Thanks for this!" says:
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Old 07-03-2008, 12:31 AM #4
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good luck with the docs visit, glad you were able to get in sooner
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Old 07-03-2008, 10:32 AM #5
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Yay Faith
Your persistance paid off. Travel safe and be sure and let us know how it went.

's
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Old 07-03-2008, 11:08 AM #6
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Quote:
Originally Posted by Twinkletoes View Post
Great news, Faith!

Here's a song to get you there:

http://www.youtube.com/watch?v=DOTKrnBtDg0
Here's the original, Fats Domino......before the Beatles...one of my Favs from the 50s.

http://www.youtube.com/watch?v=Q978YtUlMBk
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Last edited by SallyC; 07-03-2008 at 11:42 AM.
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Old 07-03-2008, 12:40 PM #7
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Good luck, Faith. I will be waiting to hear all about it.
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Old 07-04-2008, 12:15 AM #8
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Default Update -- I'm in limbo
Went to Kansas City today for initial appointment with Dr. Lynch. I liked her. She was personable, and seemed thorough. She didn't find out until after 4:00 pm yesterday that my appointment was changed from July 30 until tomorrow, yet she had already read much of 6 1/2 years of my medical records from Wichita Clinic, and Mayo Clinic's records from an almost 2 week-long visit in 2002.

Her first comment was that my medical hx was interesting. Well, I don't really aspire to have doctors find me "interesting".

She is not convinced that I have MS. In 2002, Mayo Clinic was unable to give me an official dx. They did not rule out MS, but leaned more towards the dx of CNS (central nervous system) Lupus. She used this term fairly interchangeably with CNS Vasculitis.

Dr. Lynch believes that the ANA blood tests that were done at Mayo Clinic make a good case for Lupus. She also believes that my manic symptoms during flares, and my response/dependence on prednisone during flares are more consistent with Lupus than with MS.

My neurologist diagnosed me, in 2003, with MS, after my being in limbo for almost 2 years. My LP and MRI results, as well as symptoms, were what he based his dx on. However, the written medical reports that she saw in my records did not convince her that MS was more likely than CNS Lupus.

She spent over an hour with DH and I. She did some lab work to check for a bunch of things, including re-checking the ANA blood tests that were done at Mayo Clinic. She also ordered an MRI, which I scheduled to be done locally on Tuesday morning.

She plans to change my medication, regardless of whether she decides that MS or Lupus is the correct dx, because she says that my having 1-2 flares per year indicates to her that it is not effective.

She has requested that I hand carry a CD of my past and current MRI results to our next appointment, which I will make after I have my MRI.

Thanks for listening.

~ Faith
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Old 07-04-2008, 05:04 PM #9
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Faith,
So glad that this doctor is going back and looking at your whole situation. I hope she comes up with something that can be treated and relieve some of the annual flares you've had to endure.

Just curious, did you have o-bands in your LP?

Take care and let us know how it goes!
Kathy
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Old 07-04-2008, 07:33 PM #10
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Quote:
Originally Posted by hjmom View Post
. . . Just curious, did you have o-bands in your LP? . . .

I thought so, but she didn't seem to think that my LP results were necessarily indicative of MS, so now I've been wondering, too.

~ Faith
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