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Good news! My appointment got moved up!

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Old 07-04-2008, 09:37 PM #1
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sounds like a great dr faith.
i hope your f/u appts go well and you can start on an effective plan of care.
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Old 07-04-2008, 10:22 PM #2
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That's awesome Faith!! Did she tell you what she's changing your meds to yet? I really hope she finds some answers for you!
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Old 07-04-2008, 10:43 PM #3
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Quote:
Originally Posted by NurseNancy View Post
sounds like a great dr faith.
i hope your f/u appts go well and you can start on an effective plan of care.
If it's MS, probably Copaxone. If it's CNS Lupus, we didn't talk about that.

~ Faith
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Symptoms since 01/2002; Dx with MS: 10/2003; Back in limbo, then re-dx w/ MS: 07/2008
Betaseron 11/2003-08/2008; Copaxone 09/2008-present
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Old 07-04-2008, 11:30 PM #4
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ANA can be elevated in MS also.

jackD

Quote:
1: Neurology. 1995 Feb;45(2):384-5.Links

Comment in:
Neurology. 1995 Dec;45(12):2299-300; author reply 2300-1.
Neurology. 1995 Dec;45(12):2299-300;author reply 2300-1.
Frequency of anti-nuclear antibodies in multiple sclerosis.Barned S, Goodman AD, Mattson DH.
Department of Neurology, University of Rochester Medical Center, NY.

We found anti-nuclear antibodies (ANA) in 26.7% of 150 relapsing-remitting and in 30.4% of 23 chronic progressive definite multiple sclerosis (MS) patients by retrospective chart review.

These patients did not have systemic lupus erythematosus.

Since ANA are not pathogenically relevant in MS, they are false-positive, and likely reflect systemic immune dysregulation in MS.

PMID: 7854544 [PubMed - indexed for MEDLINE]

Quote:
1: Mult Scler. 1999 Apr;5(2):121-5. Links
Autoimmunity in multiple sclerosis: study of a wide spectrum of autoantibodies.Spadaro M, Amendolea MA, Mazzucconi MG, Fantozzi R, Di Lello R, Zangari P, Masala G.
Institute of Nervous and Mental Diseases, University of Rome La Sapienza, Italy.

The aim of this study was to assess the frequency of organ- and nonorgan-specific autoantibodies in MS patients and evaluate whether the presence of autoantibodies is an indicator of disease activity and/or a prognosis factor.

One hundred and five definite MS patients in different stages and with different course and 75 blood donors were tested for the autoantibodies TgA, TMA/TPO-A, PCA, ANA, aCl, SMA, AMA and ANCA.

All patients were screened for the LAC. Autoantibodies to at least one autoantigen were found in 66.6% MS patients and in 13.3% controls (P < 0.001). The frequency of TgA, TMA/TPO-A, ANA, aCl and SMA was statistically higher in patients than in controls. Circulating ANCAs were found in seven MS, a never reported finding.

An early onset of MS (< 20 years) was associated with a lower autoantibody frequency (P < 0.01) Primary and secondary progressive MS had a higher antibody frequency than relapsing-remitting (P < 0.05) or benign (P < 0.001) MS.

Up to 86% of patients were autoantibody-positive during the acute stage, but only 30% of them remained positive during the remission stage (P < 0.001).

A generalised immune dysregulation occurs in MS patients, mostly during the acute stages and in the progressive courses, involving activation of both autoreactive Th1-cells (mainly linked to CNS lesions) and B-cells via Th2 cells.

PMID: 10335521 [PubMed - indexed for MEDLINE]
Last edited by jackD; 07-04-2008 at 11:31 PM. Reason: Irodit cait sppell
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Old 07-24-2008, 07:30 PM #5
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Just got back from Kansas City. Had follow-up appointment with Dr. Lynch today. Initial appt. was July 3. Took films and CD's from 7 MRI's (2002-2008).

She compared past ones to current one. she also compared blood test results from July 3 to 2002 results. Symptoms and 2002 blood test results had led her to suspect CNS Lupus, rather than MS. However, current results looks more like MS to her, so, although CNS Lupus will reain a question mark and possiblty in the back of her mind, she will treat me for MS at this point.

Has decided that the Betaseron has not been effective, so she gave me several other options, including Copaxone, Tysabri, as well as some studies.

We decided to try Copaxone first, and hope for the best. I tend to be what I call "IV-imparied". Hard to find veins, etc.

Will continue to work through my neurologist in Wichita, since he is closer to home, so I will have him set up the Copaxone for me.

~ Faith
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Symptoms since 01/2002; Dx with MS: 10/2003; Back in limbo, then re-dx w/ MS: 07/2008
Betaseron 11/2003-08/2008; Copaxone 09/2008-present
Began receiving SSDI 11/2008
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